I saw my ENT yesterday, who treats my acid reflux. In discussing my throat issues with certain foods, she was very adamant that anything I feel immediately after eating something must be due to the food, not to reflux. She said I should avoid eating those foods.
The depressing part is that this now excludes EVERY FRUIT and many vegetables from my diet. (Side question: could that be a fructose allergy, and not just the individual fruits?) She wouldn't even look at how huge my list to avoid has gotten, nor consider a food challenge with the throat scope to see what's going on. At this point, I've been SO FRIGHTENED by my doctors about avoidance, that I don't think I can trust an ordinary challenge where I just describe for them how I'm feeling. My only symptom ever for the fruits is the throat closing, and whenever I mention that, I get the "you should avoid ___" advice. But now my diet is so limited that I can't follow that advice and still stay healthy.
My allergist, who does know the seriousness of the problem, is supposed to be setting up food challenges for me, but he's having to negotiate with an outside clinic for that, and there's been no progress in nearly three weeks, except a call two weeks ago that they were "still trying." Now I'm afraid those will be the "usual" kind of challenges where I would eat something and then they just "observe" symptoms. If it's happening entirely in my throat which they can't see, how will I get an objective response about whether that food really is safe? It might as well just be my med history in the office again at that rate.
I've lost over 20% of my weight in the past four months. My GP shares my concern about the weight loss, and threatened to "do something" if it continued, but I don't think food challenges are the something he has in mind. He believes all I have is anxiety. I picture him sending me to the hospital and force-feeding me things that might kill me.
Please offer ideas, or at least let me know I'm not alone. I don't know why my docs are all fighting me about this. They either toss out the "avoid it" advice but don't step up to the plate when the avoidance list gets too big, or it's the other extreme, where they tell me I can't really be having an allergic reaction yet won't help me to confirm that. It's the allergists and ENTs who say "avoid," and the ER and regular docs who say "can't be." I feel like I have to do what the experts say, but now what am I supposed to eat?!
Sad and discouraged,