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Running-with-scissors
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 2/14/2011 3:05 PM (GMT -7)   
My name's Anthony; I'm new here.

Couldn't find a forum for my issues; (COPD)
This is the closest I guess!

Anyway; I shall have a nose around and see what's happening.

nono

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7122
   Posted 2/14/2011 5:39 PM (GMT -7)   
Welcome Anthony! There isn't a forum just for COPD. I am betting that if you take medications some are the same as those with asthma take. My mother has cOPD and uses the same inhalers I use for my asthma.

Feel free to post here. I hope your COPD is well controlled and you are doing well!
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 2/14/2011 8:36 PM (GMT -7)   
Yes, by all means you are more then welcome to post here. Like Ides said, we don't specifically have a COPD forum but I'm sure many of our asthma sufferers will be able to relate.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel

Running-with-scissors
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 2/15/2011 6:37 AM (GMT -7)   
Thanks folks,
Now entering my second year with this.
Evidently down to my past working environments and of course, smoking hasn't helped.
I know this will not end well but I'm staying positive. Can't get a straight answer from the medics about timescale etc.
I seem to have coped with the initial panic attacks re: SOB...They were not pleasant for one who's led an active, athletic lifestyle. I miss my daily run, but I'm working on it .
Some days I can function normally and on others.. Well, I don't need to tell you lot about the bad days.
Anyway.. Onward and upward.
Happy to chat anytime.
Carpe Dium..
Anthony
Jesus Saves - Buddha makes incremental backups

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 2/15/2011 9:04 AM (GMT -7)   
Running as a COPD sufferer I understand how COPD can be very limiting. Keep your chin up.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 2/15/2011 12:50 PM (GMT -7)   
Can you do a daily walk instead of the running??? it'll keep you active...
Do you use Spriva? does it help? Sorry about all the questions.
Nice to meet you sure wish it was under better circumstances.
(((((((((((((((((((((((((((((Anthony))))))))))))))))))))))))))))))))))))))
healing hugz and well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Running-with-scissors
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 2/15/2011 3:56 PM (GMT -7)   
Really appreciate the support.
Which is more than I get from the NHS, but don't get me started lol.

I do indeed try to walk when I feel up to it. I live by the ocean in Cornwall and as a sufferer I reckon the air has to be of great benefit.
Yes, I am on Spiriva. I can't decide if it's helping that much. In fact, I find the Ventolin of more use. I got reprimanded for buying my own oxygen when things were really bad and that did help.
I'm also on Carbocisteine caps every day to help clear the lungs.
My biggest issue is the coughing. It's caused me to break a rib 3 times and I don't have to tell you how painful that can be.
I'm a mess Lol...
It really does help to chat about all this, so thanks for your concern and good wishes.
This won't beat me without a darn good fight...
You all take care
Anthony
Jesus Saves - Buddha makes incremental backups

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 2/15/2011 5:27 PM (GMT -7)   
I see my father in law fight with COPD every day. He too has coughed so hard he has broken ribs and had to be hospitalized for pain management, plus he got a hernia from the coughing. Just recently he was hospitalized for pneumonia. I know that it's a challenge living with COPD just like it is to live with asthma. I don't know what sort of meds he is on but for the most part they are helping...now if only we can get him to stop smoking :) He's a heavy smoker, though he has gotten better. He is down to one pack a day as opposed to his 3 he was doing.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 2/15/2011 6:00 PM (GMT -7)   
I had pneumonia last year and broke 2 ribs with that, yes those hurt, My
Pain management doc gave me injections for the broke ribs, those helped.
Maybe someday you can cut the cigs back...
((((((((((((((((((((((((((((Anthony)))))))))))))))))))))))))))))
healing hugz and well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Running-with-scissors
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 2/15/2011 7:13 PM (GMT -7)   
Hi Red.
You and your father-in-law have my sympathy. It must be hard to observe such a decline. I have a teenage daughter who stays with me some weekends. I try real hard to allay her worries. She's hoping I'll be around to give her away when and if she marries, but she can see her old dad is struggling.

Anyway.. Funny/ironic story:
I had all the 'spirograph' tests etc at the hospital. Really nice lady operative who ran the tests, showed me the graphs, we went for a stroll along the hospital corridors with bits of diagnostic kit strapped to me and chatted. I asked her how my results compared to her own. She said hers were quite similar to mine as she was a heavy smoker!
Yes, I still have the odd rollup. Giving up totally made no difference and I do enjoy a smoke, although don't fully inhale. Tests showed no signs of the big C. I don't drink and I try to eat healthily.
Isn't this all about quality of life? I could sit alone waiting for the reaper to call, but I don't. I have the odd puff, I drive much too fast, squeeze the last drops of fun from life and enjoy my many hobbies and interests. All that's changed is that everything has to be done at a drastically reduced pace. That's a major irritation to me, being someone who lived life in the fast lane. I guess most of you can identify with that side of things and resent occasionally feeling totally useless.
But we aren't useless. I look around and see some people so much worse off than I, and when I consider what I have achieved in life, I guess I'm not quite ready for the scrapheap just yet!

I'm really interested in how you guys cope with your own issues. How has your life changed? What is your mental attitude? How have friends and family reacted?

2am again, and I'm off out on t' tinterweb to participate in an online quiz. maybe drive out to the beach and look at the stars....
So much still to do!

Take care..
Anthony.
Jesus Saves - Buddha makes incremental backups

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 2/16/2011 4:14 PM (GMT -7)   
With what all I got, I would not wish it on anyone, but heck yeah it gets
hard some days..Somedays it helps for me talking to my pain management psychologist.
It's hard finding one that's good, but he's also experienced pain himself..I know
this next one might sound funny but mediation sometimes helps. The lung
specialist I saw last year gave me meds for copd, so I'm not sure if my asthma
has gotten worse. That's kinda why I asked you about sprivia as I was on that.
well wishes to you, maybe start a new thread maybe titled "what helps you (copd).."
most people coming here have asthma so finding some people with copd might take
a little time, try out the chats...
(((((((((((((((((((((((((((((((Anthony)))))))))))))))))))))))))))))))))
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 2/16/2011 5:38 PM (GMT -7)   
Not to mention, if you create a post with COPD it can open the gateway to search engines and you might get more responses then you would otherwise.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel

Running-with-scissors
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 2/17/2011 2:10 AM (GMT -7)   
Good thinking guys and gals...
Be kind to yourselves..
Catch up later

Anthony.
Jesus Saves - Buddha makes incremental backups

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 2/17/2011 6:59 AM (GMT -7)   
While I don't have COPD nor asthma (my son does/did) I can relate to what it is to have a chronic condition. I was young when I was diagnosed, so in the prime of my life I was struck with having a condition that put the blocks on my wheels. I handled it mostly with denial at first but as I got older, the denial died away and left me with the can do attitude. Sure there are days that I just can't do anything but when I can, like you, I try to squeeze the most out of life. We only have one life so we might as well try to enjoy it and if roadblocks get in the way, we go around it. I imagine that having a hard time breathing might put even more of a damper on going around that roadblock, but I must say that I applaud your tenacious attitude! Just to give you example of how I go out and enjoy what life has to offer...I refuse to let my conditions get the best of me, so me and my husband make frequent trips on his Harley Davidson. Just last year we traveled over 3000 miles with a group of friends on the bikes. We also like to take vacations with our children. I just make extra preparations then most people :)

I guess I got lucky in regards to family and friends. My husband has been nothing but supportive along with his family. I have had my friends for over 25+ years and they have stood by my side no matter what. The ones that have faded away just tells me that they weren't friends to begin with.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel

Running-with-scissors
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 2/17/2011 7:54 AM (GMT -7)   
Sherry; you are an inspiration to us all.
Good for you.
And remember: while we still have a pulse, Let's rock n roll!
Jesus Saves - Buddha makes incremental backups

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 2/18/2011 9:46 AM (GMT -7)   
I hope today is going to be a good day for you...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******
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