sulfite intolerance and tachychardia

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Acojo
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 4/4/2011 5:07 PM (GMT -7)   
I think I have finally found my problem... I would go to bed at night and wake up with my heart racing, and trying to calm myself, take deep breaths but was unable to... like my lungs were tiny... ( i am a runner and a swimmer, and have good lung capacity) I was sure something I was eating or drinking was the culprit. I am a drinker, love my beer and wine. It seemed like the symptoms were especially bad after I ate a bagel or thick crust pizza later in the evening. I thought I had celiac disease but bloodwork showed I don't. I ate pretty much low sulfite for a couple of days, and took B12, and low and behold I slept so much better! My doctor doesn't really believe that what I am ingesting is causing my symptoms. not sure what she thinks??? I am sure there is an answer and am hoping to hear from someone else with similar experience!

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 4/5/2011 3:23 AM (GMT -7)   
I wouldn't rule out gluten as an issue though.  Just because you do nbot test for celiac disease does not mean you are not gluten intolerant.  Celiac Disease is just one symptom of gluten intolerance.  I have several intolerance's along with gluten intolerance, including sulfite.  When I first went gluten free, wheat and rye were very definite issues for me, but barley didn't seem to cause the same reaction..I found this out by accident when eating Quaker Cracker Jack rice cakes, they contained barley and I didn't catch it. 
 
After just one glass of wine, the next morning I feel like I went on a drinking binge.  Of course, you may be intolerant of sulfites only, it's possible.

Acojo
New Member


Date Joined Apr 2011
Total Posts : 2
   Posted 4/5/2011 8:12 PM (GMT -7)   
well all i know is this is all very frustrating. I used to be able to eat anything. I know that something I am eating is causing my symptoms. Any help is appreciated.

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 4/6/2011 3:42 AM (GMT -7)   
When I went gluten free, I had no medical insurance nor a job, and was newly divorced with no extra money..so I went gluten free without testing.  My sister had been diagnosed celiac 4 months earlier and said I should at least try gluten free to see if it helped me.  That was over 10 1/2 years ago.  I went gluten free in July 2000 and never returned to gluten.  Our dad was diagnosed celiac over 6 yrs ago.
 
My neuro had a celiac panel ran on me 2 yrs ago, which came back that I do not have the correct genes for celiac disease..I have double DQ1 genes, which are both gluten intolerant genes along with one being a neuropathy gene.  Being gluten intolerant is every bit as bad as being celiac, if not worse.  A double dose of DQ1 genes often means the person is much more reactive to gluten.  I have celiac friends, even my family whom are not anywhere near as intolerant as I am.
 
I can't eat anything processed as gluten free, meaning none of the pasta's, breads, cookies, and such.  I can't eat any grains.  Beer and wine do contain sulfites, yet you can have an issue with both gluten and sulfites.  First you should be tested for celiac unless you already were.  Then go gluten free and see how you do.  When you want to try something new, just try one food and see how you do.  This is the only way to test foods.  Do a research on elimination diets.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 4/6/2011 1:34 PM (GMT -7)   
You are getting some pretty good advice.
 
It's important not to dismiss tachycardia.  I had an episode that went into cardiac artery spasm, causing a heart attack.  It was triggered by the sulfite in a bowl of cereal with dried fruit.  I have had to learn Valsalva maneuver (bearing down with abdominal muscles like going to toilet), also trying coughing.  My cardiologist has me keep a few pills of atenolol on hand, and I also take a couple of aspirin when this starts.  You did see a cardiologist, didn't you?
 
The blood test for celiac is sometimes innaccurate.  The "gold standard" is the biopsy.  But that's not much fun.
 
You can start new allergies or intolerances any time.  Intolerances can build up from things you are eating or drinking.  Beer has sulfite, but also gluten and wheat.  Wheat intolerance is different from gluten intolerance.  Allergy is different still!
 
The first thing to do is start keeping a food journal/log.  Write down everything you eat and drink, all meds, the times.  Then write down your reactions.  Sulfite will usually cause tachycardia within a couple of hours.  My reaction is usually about a half hour, but has been as long as 4 hours.  Migraine sufferers can get reactions to sulfite as far out as 2 days.
 
When you find a list of foods or drinks that trigger your racing heart, google them with the words "food intolerances" or food allergies."  That's how I found my whole list.  There is no cure.  If your problem really is sulfite, you'll have to give up the beer, wine, pizza, chocolate, etc.  It can be life-threatening, as you can see from my heart attack!  But don't assume this is your problem without checking for sure.  There is no blood or skin test that is approved yet, and most doctors have never heard of sulfite intolerance, so you'll have to do it on your own.
 
Best wishes!

look1433
New Member


Date Joined Apr 2011
Total Posts : 12
   Posted 4/12/2011 10:51 AM (GMT -7)   
 I WAS BORN WITH ALLGRGIES AND ASTHMA, allergies can be delayed more then 12 hours or happen right after, If I eat something with sulfite and didn't reallize it, I would wake up in the middle of the night with allgeries and have to take 2 benagryl, it's possabile you and wine or beer that your drinking could be the problem, but I wouldn't rule out anything else.
 wine and beer can give and asthma attack.
 
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