11 year old cannot sleep on asthma meds. Help!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

2820
New Member


Date Joined Apr 2011
Total Posts : 4
   Posted 4/8/2011 10:07 AM (GMT -7)   
confused  My 11 year old was just diagnosed with asthma this year. We have had to do 3 courses of oral steroids in 8 months so we need meds. She cannot sleep ( about 4 hrs a nite) and is jumpy and nervous and shakey. I automatically cut the dose in half, against doctors advise, and it helps some with the nervousness. We have tried Singulair, Advair, Pulmicort, Asmanex and are currently on Symbicort. Anyone with similair problems? We are desperate for advise.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 4/8/2011 10:14 AM (GMT -7)   
There is a reason that doctors don't recommend a fast taper off a steroid or a drastic reduction. It can put the adrenal glands in shock, especially if the steroid is taken long term. I understand your concern. My son was very jittery on steroid inhalers and had a hard time sleeping. But please be careful when reducing the oral steroid.

Steroids are both a blessing and a curse. Sleep deprivation is a common complaint with steroids. There really no cure for it other then time and patience. However, there are things that can help calm her down. You can try giving her Melatonin to help her sleep along with a warm bath at night. Maybe even a cup of Sleepy Time tea, if she likes tea.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

2820
New Member


Date Joined Apr 2011
Total Posts : 4
   Posted 4/8/2011 11:29 AM (GMT -7)   
Thanks sherry. I think I gave you the wrong impression. she does take the oral steroids as directed. the inhaled steroid dose is what I cut in half. Do you worry about the lack of sleep affecting their growth? She just looks so strung out all the time.
?

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 4/8/2011 11:57 AM (GMT -7)   
I think I worried more about the steroid use stunting growth then sleep deprivation when my son was on them. It did stunt his growth a bit. He's 19 now and is only 5'9 1/2". But the lack of sleep can be detrimental to their health in the long run...such as the inability to focus or maybe even allow them to get sick easier.

When does your daughter stop the oral?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

2820
New Member


Date Joined Apr 2011
Total Posts : 4
   Posted 4/8/2011 2:12 PM (GMT -7)   
I agree. She is off the oral, she is just on the inhaled steroids currently. They are what are giving the side effects now.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 4/8/2011 3:24 PM (GMT -7)   
Oh, I thought she was still on the oral...maybe I misunderstood (sorry). My son's hands would jitter like crazy when he was on the steroid inhalers. He also was on medication for ADD/nonADHD (Adderall XR) so that compounded the jitters. He was a mess during his early teen years. I know what you are going thru...I truly do. I know we want our children healthy and not have to worry about a thing, but when they get sick or have a chronic illness/condition it makes it much more harder to bear.

Like I stated earlier...there is nothing really you can do about the insomnia induced by steroids short of getting prescription sleeping meds. But the way I look at it is this: To breath or to sleep? Both are important but she can take naps during the day but one can't go without breathing.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

2820
New Member


Date Joined Apr 2011
Total Posts : 4
   Posted 4/8/2011 3:43 PM (GMT -7)   
I understand your point but she cannot nap. She sleeps about 4 out of 24 hrs. She has been like this since Dec. 31 2011, on Symbicort currently. Just thought someone might have an idea.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 4/8/2011 4:24 PM (GMT -7)   
All I can suggest is Melatonin (which is completely safe btw) or Valerian Root - but I am not sure anyone under 18 can take Valerian. Have you asked her doctor about it? To see if there is something she can take to help her sleep such as Benedryl?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 4/8/2011 8:14 PM (GMT -7)   
Advair vastly increases my insomnia. Like your son, I sleep less than four hours a night. Benadryl does help me get to sleep, and I use it frequently for that reason.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. In remission since 2006 with Remicade.
Inflammatory osteoarthritis
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Meds: Remicade, Colazal, Levothyroxine, Mobic

Co-moderator thyroid forum
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 11:19 AM (GMT -7)
There are a total of 2,905,798 posts in 318,891 threads.
View Active Threads


Who's Online
This forum has 158242 registered members. Please welcome our newest member, Jay777.
435 Guest(s), 18 Registered Member(s) are currently online.  Details
NicHostetler, George_, PeteZa, clo2014, PeppermintTea, SeattleJ, FoxRun, Girlie, Starlight*, getting by, magoo2, Samura, Lynnwood, franko63, three 5's and a jack, Potter86, straydog, iPoop