New intolerance to lactose-free ice cream after colon surgery, or worsening sulfite intolerance?

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Alcie
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Date Joined Oct 2009
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   Posted 9/16/2011 6:11 PM (GMT -6)   
Has anyone heard of developing an intolerance to lactose-free ice cream after colon surgery?  
 
I recently went to an ER with severe abdominal pain, where they found an abscess, put in a drain which leaked.  I  had lap surgery where they removed an inflamed, burst appendix extending into the abscess.  Went home, readmitted 2 days later, more surgery.  This time a piece of sigmoid colon was leaking (tested in previous surgery and fine then).  Amazingly, docs were able to clean me out with just lap + 3" incision and put everything back together.  Home now 10 days.
 
I feel fine in the AM, nauseous when I eat a few bites of anything.  I have sulfite intolerance, under control with diet. 
 
Lactaid ice cream has dextrose, corn starch and carrageenan (all contain sulfite), but I used to tolerate the amount, was able to eat the product previously.
 
Could I have gotten more sensitive to sulfite, a milk protein, or maybe it's something else?  Maybe it's just increased gas pain sensitivity in the colon?  I have an appointment scheduled with my gastroenterologist, also another followup with the surgeon.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/16/2011 7:11 PM (GMT -6)   
You might want to ask this on our Ostomy, Crohn's (better forum to ask) or Uc forum. You might get a better response.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs), Remicade/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea~IBS~Diverticulosis~Fibromyalgia

SmurfyShadow
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Date Joined Dec 2008
Total Posts : 2386
   Posted 9/17/2011 2:38 AM (GMT -6)   
Theres Soy Yogurt, Soy Ice Cream, Sorbet... omg I live off those hehe, I cant have dairy. I do think you may have to be on a special diet though with all that is going on. Maybe do hte BRAT diet til you can get in.. Bananas, Rice, Apples, Toast
"The Walking Medical Mystery"

Too many Allergies
Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig

Alcie
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Date Joined Oct 2009
Total Posts : 5024
   Posted 9/17/2011 9:19 AM (GMT -6)   
Thanks for the suggestions -
I thought of the ostomy group, but it's not allowed to post the same thread in more than one place. Maybe just a brief line is ok?

I think I can tolerate sorbet, but soy products have a lot of sulfite because of processing the beans into flour. I can try a small serving since I'm able to kep other sulfite low right now.

Bananas, more than 1/2, and apples are finally back on the diet as of a couple days ago, but I'd better not rush into them since they are high in fiber, according to my diet sheet which allows applesauce. I only tolerate a single piece of toast a couple times a day.

I tried adding a little whey this morning to my "latte." I like half a cup of skim Lactaid milk (wish I could find 2 percent) with a little cane sugar, half a cup of mostly decaf coffee. This gave me immediate cramping/spasms in two parts of colon, but I'll need to test a few more times to be sure it wasn't just a chance occurrence.
Alcie
 
 

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/17/2011 12:47 PM (GMT -6)   
If a moderator refers you over to another forum, you can make a duplicate post - just make mention that so or so mod referred you over so that forum mod doesn't delete your post. Perhaps even a brief summary will suffice as well.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs), Remicade/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea~IBS~Diverticulosis~Fibromyalgia

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/17/2011 3:09 PM (GMT -6)   
Sorry to hear your troubles, Alcie. I hope you find a solution soon.
Joy

Alcie
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Date Joined Oct 2009
Total Posts : 5024
   Posted 9/17/2011 5:31 PM (GMT -6)   
I've been reading a whole bunch of forums I googled and found out I am not unusual. New food intolerances are common after major intestinal surgery. Pain, spasms and nausea are to be expected, if a few hundred people's posts are to be believed - and no one saying it was easy!

I found out I have to cut back the portions of tolerated foods and eat more often too. I'm heading back to the couch and heating pad after eating a whole baked potato without skin.

The good news is that some of the foods can be reintroduced into the diet later.
Alcie
 
 

SmurfyShadow
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Date Joined Dec 2008
Total Posts : 2386
   Posted 9/20/2011 2:59 AM (GMT -6)   
Fresh Mint Ice Cream

2 c. mint leaves and stems
3 cans coconut milk, preferably Thai Kitchen brand
1 c. agave syrup
1 avocado (adds color and fat–will not noticeably affect the flavor of the final product)
1/2 c. chocolate chips or cocoa nibs or other desired add-in (optional)

Wash 2 c. mint leaves and stems thoroughly.

Heat 3 cans of coconut milk and agave syrup on medium heat until the mixture gives off plenty of steam but before it reaches the boiling point. Add the mint leaves/stems, cover, and turn heat to low. After 10 minutes, turn off the heat, and allow the mint leaves to steep an additional 50 minutes, covered, at room temperature.

Strain out the mint leaves by pouring the mixture through a mesh strainer, pressing the leaves against the strainer to extract all of the mint flavor you can from the leaves. Discard the leaves and stems.

Refrigerate the mixture until it is very cold.

Once the mint mixture is ready to use, prepare the ice cream maker of your choice for use according to its directions.

Remove the mint mixture from the fridge and pour it into a food processor. (A blender might also work fine.) Add the meat of one avocado, and blend until the avocado is completely obliterated into the mint mixture. Pour the mixture into the ice cream maker, and make ice cream! If desired, add 1/2 c. chocolate chunks or 1/2 c. cocoa nibs when the ice cream maker has a few minutes left.

Freeze according to your ice cream maker’s directions before consuming. (Or, you know, eat it straight out of the churn–whatever works for you!)
---------------------------
um its dairy and soy free :p
"The Walking Medical Mystery"

Too many Allergies
Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 9/20/2011 3:02 AM (GMT -6)   
When I wake up in the morning (now that sounds crazy, but I got the laptop with me in bed, and its 1am cant sleep) I will look in my freezer. I'm not sure if the store brought dairy free icecream taht I get has soy...
"The Walking Medical Mystery"

Too many Allergies
Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5024
   Posted 9/20/2011 8:20 AM (GMT -6)   
Smurfy - Thanks for the recipe idea.

I think I'll just avoid ice cream of any type for now. I scared to try coconut milk because I've read it contains sulfites unless it's organic. I know I react to lots of soy products, so that's out too. Chocolate has too much sulfite. but canned peaches might work. I had a little sorbet in the hospital and it was OK, so I'll read ingredients and try to find a clean one. Too bad there's no nutrition in it. I had a couple of popsicles in the hospital too, would have rejected them for the sulfite, but wasn't getting too much IV (520 mcg/liter of IV fluid), and I was starving!

I'm having an awful time getting enough protein between the sulfite intolerance and new post-op food intolerances. Pork is out for sulfite, beef in any serving-size quantity because the new gut just doesn't want to digest it. Whey was the new surprise because I used to use it and now don't tolerate it. Even chicken seems to be a problem after 4 small bites - nausea! I refuse to cook fish in the house. Maybe I can get someone to get some nice grilled fish to go from a restaurant.

I've found several Progresso soups are tolerable at half a can, also small cans of spaghetti or other pasta and sauce. I don't consider them food normally. Oatmeal is my morning food. Dry cereals bring on nausea. 1/2 baked potato is an entire meal.

At least I have stopped losing weight. I eat as often as I can, a cup of warm Lactaid milk in the middle of the night with another pain pill. The second operation, the sigmoidectomy, doesn't hurt much, but the appendectomy area from a week earlier is still pretty painful and still spasming.
Alcie
 
 
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