Newbie with COPD -- Bronchitis and asthma

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MamaLama
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Date Joined Oct 2010
Total Posts : 4833
   Posted 10/31/2011 3:43 PM (GMT -6)   
I have posted often on HW on the Hepatitis forum about  partner, who had a liver transplant in May 2011.
 
But I see there may be some support for me here also.
 
For the past 7 years I have had a COPD diagnosis, ever since I got sick on vacation in Arizona. We had gone to visit Sedona and the Grand Canyon, etc.  One evening I had flu symptoms at dinner time and went to bed early. IN the middle of the night I had Mike take me to an ER because I could barely breathe.  I had 105 temp and they had a heck of a time getting me calmed down. I am surprised now that they didn't intubate and I was in desparate shape.  I had a second episode of impaired airway for whatever reason and 105 temp later that same day.  They started me on all kinds of meds...antibiotics, antivirals, and antifungals as they didnt know what was happening to me. 
 
I spent 5 days in ICU, never having any lung problems like this before this.  They never gave a firm diagnosis, said I had some kind of valley fever that is not uncommon out there and sent me home.  We couldn't travel home for a while as I was too weak.  I needed to use an inhaler all the time to get through the days.
 
Now, 7 years later, I get these horrible bronchitis episodes and need to use a rescue inhaler often.  I went up north (I live in Florida) early in October to visit family and got a bad cold and then bronchitis while up there and I am a total mess now.  I feel like I'll never get over this episode.
 
Two years ago they did a full allergy battery on me and I reacted to EVERY allergen.  So they just fluffed it off and said I was allergic to the medium they use for the allergens.  What?  Even the control spot.
 
I have had a couple of PFTs and they tell me that I have 60% diminished capacity in my lungs, but that is because I am over weight.  What?  And that my diaphram is high on the right side for some reason. (What reason?)
 
Before all this, I did have some problems with odors...some perfumes or aerosols would make my throat feel closed up and my voice would get wierd. It also happens if I am very anxious.  That still happens.   Albuterol usually makes it stop.
 
I use Symbacort daily and Veramyst nasal spray daily.  I use the Albuteral as I need it.
 
Does anyone have any ideas about what I can do so as NOT to get these bad episodes? 
 
I already know I need to lose weight!    I try.  I really do.
 
Have a great evening.
 
Mama Lama from Florida

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/1/2011 6:06 AM (GMT -6)   
I'm sorry you are having so many issues :( Your story reminds me of a story you would hear off the TV show "Mystery Diagnosis". Do you suppose you have some sort of fungal infection still to this day? In between "attacks", do you breath fairly well with the medications?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4833
   Posted 11/1/2011 2:42 PM (GMT -6)   
Today is day 6. I'm finished with the pred. Have a few more days on Cipro. But felt so awful this afternoon I searched for my nebulizer. Feel a little better now. The elephant on my chest seems to be on break. Very very productive, loud cough. Worse when there are allergens nearby. ML
Mike received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

Cinders4228
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/3/2011 11:50 PM (GMT -6)   
I really feel for you.  Someone else replied with the same thought that I had.  I'm wondering if you did inhale something that day...I posted myself today about being diagnosed with ABPA, it's an allergic reaction to aspergillis..but I'm wondering if something like that could have happened to you.  Fever is one of the symptoms as well as shortness of breath and asthma like symptoms. I'm wondering if you've ever been tested for Aspergillis sensitivity...they would do IgE tests for it...it's just a thought.  I'm getting ready to go to an Infectious Disease specialist, to find out what's next for me.  I truly feel for you.  They always say "when you can't breath, nothing else matters"...it's true for me.  I just got off of 40mg of prednisone, a months worth, I just tapered down last week, and I'm already having issues again.
 
I hope you get some relieve!!

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4833
   Posted 11/4/2011 7:48 AM (GMT -6)   
Thanks for your posts.
 
My doc has written an order for the test you mention. But wants me to be finished with the pred for 4 weeks before doing it.
 
Today is day 10 and I'm not barking or bringing up goo anymore, even slept 4 hours in a row last night...ahhh.
 
But I feel like the inside of my chest is ON FIRE.  I have a bit more energy, so will do some laundry!  Glad I am retired as no boss likes their employees out so long!
 
ML

Cinders4228
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/4/2011 3:45 PM (GMT -6)   
ML...the only thing with waiting is that "if" you do have this sensitivity to Aspergillis the steroids will decrease it and the numbers won't read true. That's what my doctor told me and I've read that. I hope that's not what you have. I hope you feel better too...sounds like you are improving..that's good news. Cin
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