Urticaria/ Hives - What worked for me!

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hivesgonenow
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/14/2014 3:07 PM (GMT -7)   
I registered for this site just to report what worked for me. I searched for a cure for the whole year and a half I had hives and took every test the doctor and allergist gave me. It was chronic, every day with breakouts all over my body. Nothing helped except taking zyrtec every day which made me moody, depressed, anxious, and tired. What finally worked after a year an a half was antibiotics! I went to the dentist and mentioned that I wanted all my teeth looked at because I read on some forum somewhere that a dental infection was the cause of someone's hives. Well the only other time in my life that I had hives was when I got a few root canals done after years of neglect of my teeth. So this last time at the dentist they checked my gums and same some inflammation around an old root canaled tooth and crown. Long story short, two rounds of antibiotics and treatment of that tooth and my hives are gone. I haven't had to use anything to control the itching for about two months now. Every now and then I get like one or two hives on my arm but then I floss and use an antibiotic rinse around that tooth and the problem clears up. I know long term I might have to do something more aggressive for the tooth or have it extracted but I encourage everyone with chronic hives to rule out any and all dental issues. Even a low grade infection or bacteria around a tooth or crown (or periodontal issue like bacteria getting trapped in the gums) can affect your whole body system. In my case I think my body couldn't handle the bacteria any more. I pretty much know it was the tooth causing the hives because I didn't take general antibiotics by a pill. The dentist just put some antibiotics deep into the gum pocket twice over a two month period. So that's a local treatment and now, again, the hives are gone!!! I was so depressed about this issue and I promised myself that I would tell as many people as possible that if they have hives and can't figure out why, maybe they should look into any underlying dental issues. I'll update again if I become overrun with hives again but right now I'm pretty sure I found the culprit and I'm working on treatment options to deal with bacteria and the mouth given that I have a few old root canals and crowns that could be a problem in the future.

Good luck to everyone researching and dealing with this issue!!! Godspeed.

Kitera
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/18/2014 8:54 PM (GMT -7)   
I have suffered from hives for over 40 years intermittently -primarily when I travelled toward the equator for holidays ( I live in Canada) and like many Canadians we like to go south for the winter. I was beginning to think I was allergic to the equator. My doctors said it was food - but travelling in South America and South East Asia provide very different foods. I figured out my problem by accident. I get hives from the sun only when I drink alcohol. I can stay in the sun as long as I don't drink alcohol - the kind of alcohol doesn't seem to make any difference.
I can drink alcohol in a cold climate with no obvious side effects. I have been living at the lake this summer and this is the first time I encountered the problem in Canada - from reading this form I am guessing my liver is getting older and doesn't stand up as well as when I was young. If someone breaks out with hives on a southern holiday I hope this post helps.

Jasandrew
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/25/2014 10:00 AM (GMT -7)   
Hello Everyone,

I had hives all over since May of this year. Finally it was under control with 3 zyrtec,one zantac in the morning and 3 zyrtec, one zantac and one singulair at night. I am so tired with taking so many pills a day. Finally I tried to decrease the pill bit by bit. And now I only take one zyrtec, one zantac and one Singulair at night. I did get a few bumps here and there in the morning usually 4 am in the morning. I found a good home remedy to stop the itch. Try Tumeric power mix with milk to make a paste and apply on to the hives. They shrunk and disappeared for me. Make sure you get a thick layer on the hives. It feels really good if you chill the paste in the fridge. I know tumeric is messy but I would rather be messy then to deal with the itch. I am still dealing with the hives. After reading some of the posts, I am going to see my doctor tomorrow and try to get more tests done to see if it's not other infection that is causing this hives break out.

AmaraLiz
New Member


Date Joined Oct 2014
Total Posts : 1
   Posted 10/2/2014 10:14 AM (GMT -7)   
Hello! I suffered from severe urticarial and angioedema for the past 8 months. It was bad. disfigured face. Swollen eyelids to a closed eye completely. Itchy. Ugly. there were days I took 6 zyrtecs and 3 prednisone tablets and Benadryl to sleep... I was miserable.I don't even remember I found a research paper that spoke about a particular combination of 3 meds...
1 zyrtecn 10 mg
1 zantac
1 montellukast 10 mg

I take them as soon as I open my eyes in the morning. Gone. It took 3 weeks to have them all gone. The beginning was just smaller patches. Then one or two specks on my forearms or legs. And now it has been over a month and a half of no shows! My husband is an ER Physician. He explained to me why it s working. It has to do with distinct histamine blockers in the cells. I hope this helps someone! I have had blood tests done to see if the three meds are causing anything else on my body. But no. Everything is perfect.

smilewinkgrin

Yashpatil
New Member


Date Joined Jan 2015
Total Posts : 1
   Posted 1/4/2015 7:11 AM (GMT -7)   
Hello Everybody,
My son Yash was suffering from Urticaria since 2 and half months from now. We visited many Docs..Alopathy..Homeopathy also Ayurvedic. But none of them worked for him. Past week it was becoming very serious when i sat on Net for 6 hours to search for something which will help my son. at 6 in morning i found a link which stated that Sugar might be the cause. I immediately told my wife about this and we eliminated SUGAR from everything he ate. It was wonder and such a relief for us that since last 7 days his Hives disappeared.
We suggest all of u to try this. Good Luck
Sandeep patil

Tellannasomething
New Member


Date Joined Jan 2015
Total Posts : 1
   Posted 1/7/2015 7:06 PM (GMT -7)   
My hives are associated with chronic Lyme disease. Lyme mimics many other diseases, so it's worth checking into. Just know, the blood tests for Lyme are unreliable and you can have it but the test can come back negative.

Miamore
New Member


Date Joined Feb 2015
Total Posts : 1
   Posted 2/6/2015 5:14 PM (GMT -7)   
Hello everyone, I'm hoping someone can offer me advice on the next step in my fight against Hives. I'm 39y I've never had an illness nor an allergy EVER! I started experiencing an itch on my hand the morning of Nov 16th 2014, a Sunday. We have had a lot of work done on our home since April indoor and out. Our Cabinet crew came to my home the day before, a Saturday. We were already 4 weeks into the job however this day stands out because the worker was drilling in the island installing an outlet when my 8y old said "mommy it smells like burnt popcorn". The fumes from the wood drilling was pretty intense. They also installed our plumbing and the odor from the plumbers putty permeated the kitchen. I didn't think twice because I've never had sensitivity to chemicals or odors. The next morning is when I woke with the itch. By the following evening I had red streaks up both forearms. The next morning, a Tuesday, I woke with a huge swollen bottom lip and my hands were so swollen it made my knuckles turn blue. That said I immediately drove to the ER. The ER Doctor gave me a cocktail od Prednisone, Benadryl and Pepcid AC intravenously. I knew nothing about allergic reactions so I decided since the reaction went away, why fill my Prednisone script. Unbeknownst to me, you must wean off of this steroid so when I failed to continue the meds the reaction happened again 2 mornings later, a Thursday. It was worse this time, my eyes were swollen in addition to the hands and lip. No hives at this point but I drove myself to the ER again. I filled the script on my way home and took the entire bottle as prescribed. By the following Thursday, Thanksgiving morning my entire body, waist up and also my feet were covered in hives and my eyes were swollen. This would be my 3rd trip to the ER. I was really concerned with my condition and made my husband accompany me this time as my tongue was swelling and my throat was tightening...very alarming!
Here I am almost 3 months later and still taking Prednisone! I am concerned that these meds while suppressing the hives are breaking me down physically and emotionally. I am a very fit woman, I weight train 2 hours a day 5 days a week and I eat healthy and drink a minimum of a gallon of water a day. I haven't changed a thing in my normal routine from what I wash my clothes with to what moisturizer I wear on my face. My diet is pretty consistent as well. The only thing I can blame would be the cabinets.
We met a man on our 4 day Disney Camping vacation in December. Ironically he was parked right next to us. He happened to own a cabinet company and in the midst of our conversation my condition popped up. He warned that these cabinets while real wood on the exterior have press board inside which is glued and the main component in the glue, Formaldehyde. I called OSHA, EPA and the Florida Department of Health to ask if someone would come out and test my home for airborne chemicals and also Mold. Nobody will help me. I am running into dead ends every route I take.
This is insane that as healthy as I am, I now am poisoning my body with these meds in order to avoid anaphylactic shock. I carry my epi pen everywhere however I do not want to take the chance of having a worse reaction then the last if I stop the meds.
I'm currently taking Zyrtec in the am and 5mg of Prednisone and 25-50mg of Benadryl each night and I still have hives while on these meds.
Can anybody offer some advice?

lymedisease1
Regular Member


Date Joined Jan 2015
Total Posts : 132
   Posted 2/9/2015 11:48 PM (GMT -7)   
you should remove what ever you installed in your house, since those maybe causing the problem. Prednisone is not good for long term use, have you tried using fexofenadine(allegra). Wood can also contain microscopic particles, that can cause allergies.

e4ofhearts
New Member


Date Joined Mar 2015
Total Posts : 1
   Posted 3/4/2015 6:26 PM (GMT -7)   
Oh, wow, I never knew hives could be like this. First time sufferer for 7 weeks now. I have been racking my brain trying to figure out what the heck triggered them, food, soaps, clothes, etc. I am now keeping a food journal and everything that goes in my body and touches my body. All of the previous posts I have read are very helpful. My dermatologist just put on prednisone. I took it for 4 days with no relief. She upped my dose to 60 mg x2 days then tapering down, plus Allegra twice a day. If not better in 2 days, I have to stop the prednisone. They seem like they are clearing a bit and then BAM right back to being bad again. Very frustrating trying to figure it out. I appreciate everyone who has posted and who will continue to post. I am going to take into consideration doing away with sugar in my diet and adding probiotics to see if this may help at all. Anything at this point would be a help. The one thing about them is I don't have them completely covering my whole body. Legs, arms, and stomach are the culprits. Does anyone else have a burning sensation with them?

Baronsmom
New Member


Date Joined Mar 2015
Total Posts : 9
   Posted 3/6/2015 12:15 PM (GMT -7)   
I have had hives off and on for about 4 years. The triggering event seems to have been going to Iraq in the Army. Since then, every irritant is treated by my body like an allergen. The hives most recently returned about a month ago, with bronchitis. Two more weeks till I see the allergist. I also have asthma. I think I will try just eating organic and adding some probiotics to see if that will help my body calm down. They are definitely made worse by stress.

Driftboat
New Member


Date Joined Jun 2015
Total Posts : 1
   Posted 6/4/2015 6:36 AM (GMT -7)   
Hi,
I have finally recovered from hives after more than 1 year of struggle. My hives were accompanied with high body temoerature, reddening in one ear, stinging sensation felt after urination, anal itching, occasional itch on palms n feet, extreme sensitivity to certain types of soaps.

After a year of trying to self heal by exercise and going on a detox diet, I didn't recover and I didn't want to depend on antihistamine drugs , i decided to try Tcm (Traditional Chinese Medicine). 3 weeks into the Tcm meds, I was free from hives but in the 4th week , I find that it's losing its effectiveness. Although I no longer get full attack of hives at night, my skin is still abit sensitive and may get 1 or 2 hives around my bra strap when I feel hot and eczema on legs. My urine still stings a little. Then I started drinking lime juice with warm water every morning and I started seeing improvement. about 2 weeks later, I started taking fish oil with Vit D by kordel's, Vit C and probiotics to build up my immunity . It's been one week into taking these supplements complementing the lime water and I am so happy that the stinging in urine is gone. I don't get hives or skin sensitivity anymore too!

In summary, regular bowel movement (aided by Tcm meds), drinking lime warm water every morning and taking the supplements to build my immunity cured me.

Note: Tcm med also required me to avoid taking heaty and allergic causing foods , canned, processed, seafood, liquor , nuts, candy and dairy foods . My diet was restricted to rice, fish pork, veg n fruits which I could only adhere to 70% of it as I didn't want to stress myself too much over such a restricted diet.

Post Edited By Moderator (achievinggrace) : 6/4/2015 9:02:55 AM (GMT-6)


Lanisatu
New Member


Date Joined Jun 2015
Total Posts : 1
   Posted 6/7/2015 8:05 PM (GMT -7)   
I've been suffering from chronic idiopathic urticaria and delayed pressure urticaria for about 3.5 years now. I also have endometriosis, and in the past year I have been trying to find a better treatment for the endometriosis because I was having intermittent dizzy spells.

My gynecologist put me on Visanne, and after giving it two tries to work, I will never take it again because it made me miserable. Visanne is a low dose progesterone pill that is meant to treat endometriosis by stopping periods. Unfortunately, because it's a hormone it has unfortunate side effects for anyone who suffers from chronic hives.

For me, what happened was it took about a month for my body to adjust hormone levels and then I broke out in hives that would NOT go away for at least a month on higher doses of cetirizine (up to 40mg a day). Every time I tried to wean off cetirizine, they would flare up again. The first time this happened, I went off the Visanne for a while and the hives went away.

But to rule it out as a coincidence, we tried it again and the same thing happened.

I was so worn out and desperate to find a way to make things better. I did some reading and came across articles recommending vitamin D. My doctor okayed it and I now take 4000 IU per day of vitamin D3. And it actually helps!

However, the side effects with the Visanne kept getting worse. I have been absolutely exhausted almost constantly for the last month or so. I get too hot in my sleep and often wake up with hives on my scalp and behind my ears. I also can't seem to have a restful sleep. My flares were more frequent and intense and took longer to get rid of. My daily limit for standing/walking was noticeably reduced. Standing for more than an hour would use almost all my energy for the day and I'd have to not do any more standing or walking where I could avoid it for the next 12-24 hours plus take cetirizine. My gynecologist said to stop the Visanne because it caused too many problems for me.

Unfortunately I do have to take something for the endometriosis, but my gynecologist is now wary of recommending any hormone based option because it could make the hives worse.

Just wanted to mention that anyone taking hormonal treatments (including birth control pills) might want to carefully monitor if that makes their hives worse.

I just started something new for managing my endometriosis, but it could be up to a month before the side effects of the Visanne completely wear off. It's so disappointing that in trying to fix another issue, my hives got worse :(

For background, my hives were initially set off by a flu-like virus. It got bad enough that I had chest pains for a couple days and went to emergency twice (the second time with half my face swollen). I took prednisone for a while, prescribed by one of the ER doctors, but it turned my hives into bruises and made me feel worse as a result. Especially since my feet and the backs of my thighs ended up covered in bruises.

It was about 4 months until I finally saw an allergist the first time. He recommended a higher dosage of cetirizine for my flare-ups, and to wean off at the end of a flare up. He also said to avoid Aspirin, ibuprofen, and most other pain killers aside from acetaminophen and Celebrex. If you take any prescription pain killers, please have your doctor check to see if there's any possibility they can cause hives. It's better to take something that doesn't have that chance!

Avoiding Aspirin helped quite a bit. I also take cetirizine as a preventative measure when I need to walk/stand more than an hour. And lots of breaks to sit down or I have to use a wheelchair. If unchecked, my feet will swell up to half a shoe size and it's too painful to walk when that happens. If I need to take a flight anywhere, I have to take cetirizine about 30 minutes before the flight and get up every 30 minutes during the flight to walk a little bit otherwise I overheat and get hives on my lower back/tail bone/thighs.

The second allergist that I saw more frequently said that when I have to walk/stand pretty much all day (like a convention) that it is okay to mix antihistamines if I stagger when I take them and only take for 2-3 days. She said to start with cetirizine (10-20 mg) then four hours later take Allegra D. Four hours after that, I can take cetirizine again OR if I'm about to go to sleep, take Benadryl.

I tried this recently and it upset my digestive system a bit, so I think it might have been a bit much for me. However, it did keep the hives mostly in check and I was able to walk as much as needed for a 3 day convention. So that might be an option to ask your doctor about for really bad situations.

I'm still trying to figure out a good balance for me so I don't have to feel so fatigued all the time and that the flares are more manageable. I hope that some of what I mentioned above may be helpful to others at least. This can be such a stressful, limiting condition.

ChronicHivesHealed
New Member


Date Joined Jun 2015
Total Posts : 1
   Posted 6/13/2015 12:00 PM (GMT -7)   
I also felt compelled to tell my story and tell people what worked. Hives were so bad I fell to the ground at some point after taking piles of drugs and just cried my eyes out.

I was 22 and male and developed hives slowly but surely. It became in the top 1% of the worst cases my allergist had ever seen. I was a monster running around my college campus with giant lips and a blotched face.

Enough testimony. You know know how bad it sucks. Let me skip to the solution and then I'll tell you how I go there.

I may ultimately be allergic to bacteria but my gall bladder was my cause. I had no gall stones and I was a young man but we took a chance and removed my gall bladder (other tests showed it wasn't working very well). After my immune system calmed down I was hive free.

I was hive free for a decade after my gall bladder was removed. But I recently found out I develop hives from Simvastatin. Back to being hive free and cholestorol rich (Statins reduce cholestorol).


Here were the clues that led to me being hive free:

1.) Every test I took showed my white blood cell count high (I was fighting an infection I later realized).
2.) while volunteering abroad I came down with dystenery. My hives went away for a week while taking antibiotics.
3.) about 8 months in I went to the ER after I experienced a sharp abdominal pain.
4.) I started being bloated and taking anti gas medications.
5.) ultrasound revealed nothing and I had no gall stones
6.) we did another test that checks the functionality of the gall bladder. It was underperforming but not badly.

COLLETTL
New Member


Date Joined Jul 2015
Total Posts : 1
   Posted 7/1/2015 8:49 AM (GMT -7)   
I had hives for 8 months from 9/14 - 6/15. After many many doctors visits and an ambulance I found out that the HCL in my medicine Lisinopril (PRESCRIBED BY MY MAIN DOCTOR WHO WAS ALSO TREATING ME FOR HIVES was causing the problem. Another doctor (at Kaiser) explained that HCL causes hives. CHECK IT OUT. once I stopped taking LISINOPRIL for blood pressure my hives disappeared. then I was prescribed CIPRO HCL and they came back. Its the BINDER USED IN THESE PILLS manufactured in China. I am trying to get my strength back. but I feel that irreparable harm was done to my immune system and strength.

RevFlores
New Member


Date Joined Sep 2015
Total Posts : 1
   Posted 9/12/2015 10:18 AM (GMT -7)   
I suffered from chronic uticaria all my life since I can remember. Then at age 24 I gave birth to my second child and the hives stop. They came back 20 years later after catching a MRSA infection. After a year on benadryl I decided to do some research online. I found that drinking a tablespoon of Apple Cider Vinegar in a glass of water 3 times a day and rubbing the cider straight from the bottle on my skin after I showered for a whole month made my hives lay dormant again.I have been hive free for two years now and loving it. I hope this helps others.

Allie304
New Member


Date Joined Oct 2015
Total Posts : 1
   Posted 10/6/2015 7:01 PM (GMT -7)   
I've had chronic hives for six years. When I turned 35 I suddenly became allergic to wheat, corn, soy, codeine, nsaids, I could go on and on. Also, I get hives from pressure - my palms after mowing the yard -you can forget a back massage. I've had little relief from zyrtec and elimination diets. I finally asked my physician for something for depression. I scratch until I bleed and the scabs / scars on my legs were really weighing on me. I swear to you - I've been taking prozac 20 MG once a day for the last 11 days and I can't remember having hives in the last week! I just read an article about 3 other people who have experienced this. I was the worst hive case my doctor had ever seen - she talked about me at seminars for chrissakes. I. Don't. Have. Hives. No clue how long it will last, but I've been waiting 6 years for relief and I found it!

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 945
   Posted 3/7/2016 6:02 AM (GMT -7)   
Hivesgonenow-great story-its amazing how many problems root canals are the causes of-and for some strange reason everybody looks everywhere but the jaw

goawayhives
New Member


Date Joined May 2016
Total Posts : 1
   Posted 5/16/2016 9:38 PM (GMT -7)   
I've been suffering from chronic idiopathic uticaria for over 4 years. I tried different anti-histimines, diets, prednizone, accupuncture, and herbs. It got to the point that I had hives riddling my back and shoulders, neck almost every day. I finally got a referral to an allergist who prescribed taking a morning and evening zrytec and xantac for 3 months to see what happens. I'm about 2 months in and my hives are pretty much under control. I do sometimes feel them coursing through my body but they don't really break through.

The game plan is to get to the point where I'm hive free for a while to see if my body will reset and then hopefully I'll be able to wean off the zyrtec and zantac (H-2 blocker).

It's interesting what people are saying about the root canal connection. I always associated my trigger with antibiotics. I developed hives while on a course of antibiotics after some minor skin surgery. about 2 years later I took another course of a different antibiotic due to an infection around an old root canal. The hives got really really bad after that. My allergist said its probably not a reaction to the antibiotics but rather to the trauma of the surgery and infection.

I should also add that I had been vitamin d deficient and I started taking vitamin d supplements around the same time I got on the regimen of 2 pills of both zyrtec and zantac daily. My allergist said there have been correlations of vitamin d deficiencies and hives...

Post Edited (goawayhives) : 5/16/2016 10:44:17 PM (GMT-6)


donkk
New Member


Date Joined Nov 2016
Total Posts : 1
   Posted 11/10/2016 7:14 PM (GMT -7)   
Hi, im a new member, but frequent reader, I have had cronic Hives for 1 1\2 yrs.
I have tried everything know to man to figure this out. Im writing this because I JUST got it figured out.
To make it short, and I wont tell you my whole sad tale. Im alergic to chlorine and chlormine, bot are in my water, i spent $60 at home depot on a water filter with carbon filters, It has been a week, and I have not had one hive.
I hope this helps someone figure there problem out

Erica James
New Member


Date Joined Apr 2017
Total Posts : 2
   Posted 4/17/2017 11:05 PM (GMT -7)   
Hello,

My name is Erica James I am 27 and I wanted to share my CIU story because I know others stories and treatment trials helped me immensely to cope and find things that worked during my struggles with the disease.

The very first time I got hives was in January of 16' and I woke up in the middle of the night with them covering my entire body, some the size of pancakes. I had never had hives so you can imagine the feeling I had seeing that!! Plus I was miserable and In pain! I would take benedryl or sleep it off and they'd go away but they came back every day for about a month. I finally saw a doctor and they gave me a shot and told me to keep taking the Zantac and Zyrtec I was taking that would get rid of them daily. But they didn't ever go actually go away. This went on for about 4 months straight hives every day until they just never went away period for weeks, I felt like my body was on fire, literally miserable! I cried, I was depressed, I couldn't go out or do anything! And doctors were no help!! So I decided to up the dose and take them 3 times a day no matter what. And it worked they stayed gone for a few months. Then they came back, with a vengeance, and this time the Zyrtec and Zantac was not working. So I went back to the doctors got a shot and 5 days of prednisone. They went away on day one, but as soon as I finished the prednisone, they came back even worse. So I went back and got more and finally got rid of them while also still taking Zyrtec and Zantac. I did this song and dance for a few months, they would leave and come back almost every other week. Finally I did some more research and I found a lot of people talking about gut health and diet, so I put myself on a low acid diet and I started drinking green juice and taking probiotics. This actually seemed to help a little but still I would get a little but if hives every now and then. I continued to have small bouts of hives a few times each month but Zyrtec and Zantac instantly fixed it. But I still was in search for something to prevent them!

I was introduced to a nutraceuticals company called Kyani, by a friend. I started taking their triangle of health, one of the products is the sunrise, which is juicing in a pouch but better! With 22 super foods, which was way better than the juices I was drinking and the food I was eating. The other two products are also amazing and have helped with my sleep and other issues... I have been taking the triangle of health for 3 months now, and I havnt had a single bout of hives! 🙌🏼 Because kyani changed my life, I actually became a rep so I could share my health story and help others with similar or even different health problems. I've also, cut back on my thyroid medicine.

Which btw, I have Hashimoto's thyroiditis (another auto immune disease) which is commonly linked to CIU. I also have 4 other auto immune diseases

If you would like to read about kyani products I strongly encourage you to do so! We also have a 30 day money back guarantee! Check out the science behind the products at www.kyaniscuence.com and to purchase products go to www.ericamarie.kyani.com

I came back on here to share my story because I was once desperate and absolutely miserable! I tried everything (not even kidding 🙄), even juicing myself which is extremely costly, messy, and time consuming! Please do your research and be your own advocate!

Oh also, I had angeodema (swelling) weird places my fingers, bottom of my feet, my lips (often) and on my forehead- Almost like a lump! At first they came with the hives but later it would be by itself sometimes even.

I hope this helps someone! Don't give up, there's hope! Our bodies are all different! What I will tell you is our bodies are meant to be healed with food not chemicals and medicine! That's why I love that kyani products are all natural food based products!

Erica James
New Member


Date Joined Apr 2017
Total Posts : 2
   Posted 4/17/2017 11:07 PM (GMT -7)   
Hello,

My name is Erica James I am 27 and I wanted to share my CIU story because I know others stories and treatment trials helped me immensely to cope and find things that worked during my struggles with the disease.

The very first time I got hives was in January of 16' and I woke up in the middle of the night with them covering my entire body, some the size of pancakes. I had never had hives so you can imagine the feeling I had seeing that!! Plus I was miserable and In pain! I would take benedryl or sleep it off and they'd go away but they came back every day for about a month. I finally saw a doctor and they gave me a shot and told me to keep taking the Zantac and Zyrtec I was taking that would get rid of them daily. But they didn't ever go actually go away. This went on for about 4 months straight hives every day until they just never went away period for weeks, I felt like my body was on fire, literally miserable! I cried, I was depressed, I couldn't go out or do anything! And doctors were no help!! So I decided to up the dose and take them 3 times a day no matter what. And it worked they stayed gone for a few months. Then they came back, with a vengeance, and this time the Zyrtec and Zantac was not working. So I went back to the doctors got a shot and 5 days of prednisone. They went away on day one, but as soon as I finished the prednisone, they came back even worse. So I went back and got more and finally got rid of them while also still taking Zyrtec and Zantac. I did this song and dance for a few months, they would leave and come back almost every other week. Finally I did some more research and I found a lot of people talking about gut health and diet, so I put myself on a low acid diet and I started drinking green juice and taking probiotics. This actually seemed to help a little but still I would get a little but if hives every now and then. I continued to have small bouts of hives a few times each month but Zyrtec and Zantac instantly fixed it. But I still was in search for something to prevent them!

I was introduced to a nutraceuticals company called Kyani, by a friend. I started taking their triangle of health, one of the products is the sunrise, which is juicing in a pouch but better! With 22 super foods, which was way better than the juices I was drinking and the food I was eating. The other two products are also amazing and have helped with my sleep and other issues... I have been taking the triangle of health for 3 months now, and I havnt had a single bout of hives! 🙌🏼 Because kyani changed my life, I actually became a rep so I could share my health story and help others with similar or even different health problems. I've also, cut back on my thyroid medicine.

Which btw, I have Hashimoto's thyroiditis (another auto immune disease) which is commonly linked to CIU. I also have 4 other auto immune diseases

If you would like to read about kyani products I strongly encourage you to do so! We also have a 30 day money back guarantee! Check out the science behind the products at www.kyaniscuence.com and to purchase products go to www.ericamarie.kyani.com

I came back on here to share my story because I was once desperate and absolutely miserable! I tried everything (not even kidding 🙄), even juicing myself which is extremely costly, messy, and time consuming! Please do your research and be your own advocate!

Oh also, I had angeodema (swelling) weird places my fingers, bottom of my feet, my lips (often) and on my forehead- Almost like a lump! At first they came with the hives but later it would be by itself sometimes even.

I hope this helps someone! Don't give up, there's hope! Our bodies are all different! What I will tell you is our bodies are meant to be healed with food not chemicals and medicine! That's why I love that kyani products are all natural food based products!

Ethanmacleod77
New Member


Date Joined Apr 2017
Total Posts : 2
   Posted 4/27/2017 2:24 PM (GMT -7)   
heres my story, I hope I can help people that struggled with this. I was so depressed that I couldn't figure out what was happening to me and there wasn't much information about the condition. But after spending hours every day for a long time researching this condition, experimenting with everything and anything I could, I finally found something that worked for me. First of, I'll explain what happened. I played sports my whole life but when I was 19, I was playing ice hockey and I started to get rashes during and after play. I wasn't sweating at all. It happened on a just a normal random day, I play hockey twice a week and had done for years. It came out of nowhere. A few months later, I moved to Australia and basically couldn't live because the weather was so warm and I couldn't sweat. I was anxious and depressed because every time I was supposed to sweat I broke out in rashes. I spoke to numerous doctors and specialists, spent hours on forums, all of this to seek a solution. Finally I looked into a website that claimed to have a cure. I forget the name however, essentially the solution was a lifestyle change. I realised I ate junk my whole life, I also had a blood test and realised I was intolerant to wheat, milk and eggs even tho I had been consuming these intolerances my whole life but perhaps my gut had enough and was acting up. So I had an allergy free diet, ate organic, natural and healthy foods. I juiced daily. All this for an entire year, I gradually saw improvement over the year and finally I was cured. No more rashes. I couldn't believe it, I could finally live without anxiety. I'm completely normal now and I'm so happy. I'm sorry I can't find the name of this website but it's out there. But I would suggest to everyone that's suffering to have a blood test, see if your intolerant to anything, look at your diet, figure out if your eating crap. Lead a healthy lifestyle, juice daily, eat clean and give it time, give your gut a rest, time to reset it self, the gut can do this. I hope you all find this helpful, it worked for me. I wish you all the best, I too once was on these forums looking for answers and can now say I'm cured.

jbro903
New Member


Date Joined Apr 2017
Total Posts : 1
   Posted 4/29/2017 9:49 PM (GMT -7)   
I've been getting hives on my lower lip for about 6 months now. I have taken an allergy steroid shot, otc allergy meds, and used a topical steroid cream. The redNess will subside but then come back after a week or two. I have had constant swelling in the center of my lip that has not gone away since it started. I remember that I was eating a muffin and bit my lip by accident. Then the swelling started. I was told by the dermatologist that I had angioedema hives. Nothing has worked. Any explanations?

ctcurl
New Member


Date Joined May 2017
Total Posts : 2
   Posted 5/5/2017 4:15 AM (GMT -7)   
Just a suggestion & maybe someone has already posted this. But , consider dust mites may be a possible cause. Launder all your bed linens in unscented detergent, & double rinse. Do this fairly often. Same with clothing, pajamas, bath linens, etc. Vacuum & dust more frequently too

Eboon10
New Member


Date Joined Jun 2017
Total Posts : 2
   Posted 6/10/2017 5:53 AM (GMT -7)   
I was "diagnosed" with chronic hives in October 2016. Up until about January 2017 I was covered head to toe in hives with no cure or reason. My doctors put me on 5-6 different meds and also steroids. I gained almost 20 pounds and I am a personal trainer/health coach. I was miserable to say the least. I have a history of thyroid disease in my family and I was almost positive it had to be that. My numbers came out borderline high but they still didnt think it was the thyroid... Hmmm.. they wanted to start me on Xolair which if you know anything about is TONS of money and TONS of risks. I took the first shot and paid way too much for it. After one shot, I did not want to continue. The steroids were working for the time being even if I was 20 pounds heavier. My doctor told me that most cases clear up within a year so I thought maybe that was my only choice. Like you all I read every thread, every forum, every website, called holisitic doctors, went on diets, took supplements, drank tea.

I FINALLY found one thread of a woman who was allergic to yellow dye... Hmmm... During that time I was taking effexor, birth control, singulair (for the Hives), predisdone (for the hives) THAT ALL HAD YELLOW DYE! Turns out I am allergic to FD&C Yellow dye... I went off of EVERYTHING and my hives are GONE! I am now in debt for emergency rooms, doctors visits, prescriptions when my doctors told me there was nothing I could do except for live with it. You may not be allergic to yellow dye but what I am saying is don't give up, dont stop researching, you know your body best and you will find your cure.
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