I have had chronic hives for the last 6 months and I am going insane. I am on a whole slew of meds. My doctor has me on a daily regiment of 100mg of Dapsone (autoimuno suppressant) 100 mg zantec, 12 mg cyproheptadine, 60 mg zyrtec, 150 mg hydroxazine, 100 mg doxepin, and 10 mgsingulair. I still have hives the size of silver dollars up and down my legs. I had to switch doctors because my last one said not to call him until it started effecting my daily lifestyle! I also battle angiodema of the extremities and face so I carry an epi pen.
I since have a new doctor and have been waiting 4 weeks for the paperwork for xolair to get filed and the prescription dispensed. I am really hoping this one works so I can get rid of some of the other meds. I have to get my blood checked every 4 weeks to make sure the dapsone doesn't lower my cell count. I have a 6 month old daughter and this all happened a week after she was born. My wife has been pretty stressed because dealing with this has made it hard for me to help with my daughter. I couldn't hold her for the first 2 weeks because holding her close made my torso and arms itch like made. I spent 4 months last year losing weight to I could be health and active for my daughter. Now all that is gained back from the prednisone and cyproheptadine. I had a lull in the hives so I build a swing to push my daughter in and now I cant because it is too hot for me to go outside and the hived are back with a vengeance. The steroids and antihistamines are not a good mix with a new baby because they make me irratable. Sucks......
I got checked for lupus and that came back negative, had a comprehensive blood test that came back fine. Organ function is fine, even checked the kidneys. Had a allergy test via blood work because I couldn't go off antihistamines and it came back negative as well. Changed up my diet like no other with no luck. It getting scarey because every time I go on a new med it works for a week or so and then my body finds a way to break through it.
So here is my question, sorry about the long history rant, has anyone else had a similar situation where not a single med works and then had good luck with xolair? Thanks in advance for your help. If you have no info on xolair success could you recommend another place to post my question?
I saw your post today and I'm curious how you did with Xoliar. It has been a Godsend for me. I started my shots in January 2014 and my hives went away. I tried to stop the shots due to the costs in April, and the hives came back with a vengeance. I've been back on the shots since May and I've been Hive-free thank God. I prayed for relief for years and the only thing that gave it was the Prednesone, and we all know what it's like to live on that. Since starting the Xolair, I've lost about
60 lbs and I'm on my way to being healthy. I pray that all of you find relief and Artguy has had the success that I've found. If your on Xoliar, there are several programs out there to help with the costs. Healthwell Foundation is a new blessing I just got approved for. They will help with about
4K of the out of pocket costs.