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Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 8/2/2012 3:38 AM (GMT -6)   
Here I am, a baffle to many doctors. Test after tests. Got this, got that, need this, need that.
Why? Because I am literately a walking medical mystery.
My tests show I have two benign brain tumors caused by auto immune diseases
Which auto immune disease ? White cells shoot up, showing auto immune and the disease hides. No medical evidence of what it is besides bloodwork showing there is some kind of disease and tumor biopsy showing a clue towards diseases.
So I either have two types of lupus, wegener's, sacroidosis, and many more that cause these tumors. Which one caused it? Only known to God and Jesus.
Why I will suddenly lose function of my legs? Fibromyalgia
Why I have double vision? Those tumors are lodged upon my optical nerves in my brain
How come my brain is damaged? Because I was an idiotic and not taking asthma serious
Why I have cysts on my ovaries? Because I have PCOS
Why my A1C is normal, however contradicting because I need insulin? Because I am 1 in 10,000 who was able to catch diabetes early and change around my life fast accordingly to diabetes.
Why I get migraines? Because it would be too simple to have an actual headache
Why I have to switch hands in writing and become an ambidexterity person? The car accident left me with carpal tunnel and worsened my arthritis
Why I almost died while being "put under" - Respitory failure, Heart attack and asthmatic attack at the same time (I am thinking, thank the Lord I was asleep and already surrounded by doctors)
Why I have to write everything down? My brain temporarily wondered off whilst it was fried during radiation treatments and it hasn't returned to my head yet
How come I drive the doctors crazy by taking it all in good faith? God managed to leave my faith in Him and my sense of humour in tact
How can I still be alive? I'm telling you God has a plan, and when He wants to reveal it He will
Why I am drugged for a dentist? I just had to be one of those terrified of them and with FAST reflexes making instruments fly
Why I still have problems with my hips? Pelvic fracture that wasn't caught from the car accident. It was caught last year, when I had severe adnominal pain and they thought it was my appendix. The CT showed the fracture. It is healed enough that they didn't find it important to treat
Why I think I have lost my mind? I never had one to begin with :p
Why doctors named me a mystery? Because they can't figure out my body!

How the heck I became a caregiver with all my medical problems? Because I am a helper, giver, passionate person with a good heart and I wanted to give back what the many hospitals gave me - my life
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

New Member

Date Joined Dec 2012
Total Posts : 2
   Posted 12/13/2012 1:22 AM (GMT -6)   
I also feel like a baffle to my doctors, in July 2012 I had kidney failure, after many tests I was diagnosed with Wegeners disease, went on dialysis for 3 months and was taken off when the kidneys functioned at 15%' now at 30%. Then in September had a ruptured colon causing 7 weeks in the hospital with many complications, almost died but God had a different plan for me I suppose. Now I have a temporary bag to wear for bowel movements which will hopefully be reversed by end of January 2013.
Problem is, I am on Predisone for the past 6 months and still showing signs of swollen ankles, urinary infection which is almost impossible to cure, hip and leg pain from 5 bad discs which requires me to use a walker. Thank God I don't suffer with rumors such as you do, you also have a lot too deal with. I also had to have 4 Chemo treatments of Rituxin due to the Wegeners. One of my concerns is that when weaning off the steroids the Wegeners can get out of control again. Tonight my ankles are very swollen and numb, not sure if it the steroids or Wegeners. Have you had any of these symptoms?

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 12/13/2012 7:28 PM (GMT -6)   
Surf, You're ment to keep the doctors scratching their heads and make them keep up on their studies. :)

My asthma has been worse since I was weaned off of advair to qvar. It messed me up. I'm back on advair but can't seem to get it under control. I've been through two rounds of predisone and once it's over I start back wheezing again. :(
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

New Member

Date Joined Dec 2012
Total Posts : 2
   Posted 12/13/2012 7:47 PM (GMT -6)   
I am going to stock up on lemons and perfect my throw! Today feeling worse than ever, now Edema is in the picture, but I will try to keep a positive attitude!
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