Sulphites....HELP

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cmc
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/8/2013 6:51 PM (GMT -7)   
My 16 yr old daughter has been diagnosed with a sulphite allergy. I have been all over the internet for information and have found some very useful information. The allergist gave us a very condensed version of dont eat foods so when that didnt really help much I started my own research. We dont eat out because of lack of control of what is cooked and spend HOURS at the grocery store reading labels. Yet it still sneaks in on us and her reactions are awful. Hours of her body trying to purge its self and hives. Benadryl helps but only when she finally stops vomiting but then she has terrible headaches and constantly fidgets(that gives me a headache). The latest thing that set her off seems to be fresh strawberries. Does anyone have information on this? I cant find anything on it. This is really hard on her and just puts me in tears because there is nothing I can do to help her. And like most of the other posts I have read on here her Dr has no clue about it. Said she is the first patient she has ever had with it.

Post Edited (cmc) : 4/8/2013 8:10:54 PM (GMT-6)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4401
   Posted 4/8/2013 9:47 PM (GMT -7)   
Email me (click the envelope under my name at the left) and I will send you a more comprehensive list of sulfite-containing foods.

But sulfites can be in sprays (pesticides, fertilizers, etc.) and stuff put on foods that are not labeled.

And it sounds as if her reactions can be triggered by very small amounts of sulfites, much like mine.

I too get the hours of purging...but no hives. Benadryl does help.

Here's what else helps me:

As soon as I start to recognize the sulfite reaction symptoms (for me, this is neck/head pressure, light-headedness and shaking chills, which preceeds the anaphylaxis by mere minutes....), I take a huge dose of Vitamin B12 spray (methylcobolamin), and an extra dose of Claritin. I also try to get a Vitamin B12 shot, since I don't absorb B12 sublingually or orally very well.

As prevention, I take 1000mcg Molybdenum every 3 days, plus the molybdenum that is in my multivitamin every day. And I get weekly Vitamin B12 shots, and take B12 spray sublingually with each meal.

Molybdenum and Vitamin B12 are needed for the enzyme that converts sulfites into sulfates. Sulfites are toxic to the body but sulfates usually aren't (unless you're allergic to sulfates too).

I also have similar reactions to sulfur containing foods such as broccoli or cabbage.

Eating a low-sulfite diet also helps. I find I also have to avoid meat and eggs, because the sulfur amino acids are also turned into sulfites by the digestion/metabolism process. I'm ok with milk in moderation, but some others with sulfite sensitivity can't do milk.

Be aware that it is the total amount of sulfites one has been exposed to within the previous 48 hours that determines one's tolerance threshold. So for example, eating a food containing sulfites once may be fine, but if another food containing sulfites is eaten within 48 hours of the first, then a reaction may occur.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Andrographis & other herbs, homeopathy, supplements, etc.

cmc
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/9/2013 4:33 AM (GMT -7)   
Thank you Razzle for helping us. I have heard of the B12 and even got her started on it but its only been a few days and right ow she in one of her reactions and her stomach wont tolerate anything. I havent heard of molybdenum. What is it? I have read a website that is pretty extensive named No sulphites, and the man also did an e-book named Headaches, Asthma, Fries and a Cola. In it he talks about a supplemant called chlorella. Has any one heard of it?
I have read on this site where some people are getting tired of talking about this subject but for us it has been a breathe of air because we have never heard of it and no one I know including the Dr has heard of it so we have no where to go for help and my daughter feels better knowing that shes not the only one. And I feel better that I have some where to go for help

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4401
   Posted 4/9/2013 9:28 AM (GMT -7)   
She may need B12 injections. But be sure she gets methylcobolamin or hydroxycobolamin and not the cheap cyanocobolamin. Usually, one must get this kind of B12 from a compounding pharmacy.

This is important because the body has to detox the cyano part of that form of B12 and convert it into the methyl or hydroxyl form first before the B12 can be used. So by getting the already converted form (i.e., the methylcobolamin or hydroxycobolamin), you are saving her body extra work and effort.

Molybdenum is a mineral and is also an element on the chemistry periodic table.

Yes, I've heard of chlorella. Haven't tried it yet, but will be doing so soon. Chlorella is a type of single-cell green algae.

Rick William's site has a lot of info on it, and it can be a good resource for those with sulfite problems.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Andrographis & other herbs, homeopathy, supplements, etc.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, February 20, 2018 2:56 AM (GMT -7)
There are a total of 2,931,117 posts in 321,599 threads.
View Active Threads


Who's Online
This forum has 160336 registered members. Please welcome our newest member, Katiehurts.
239 Guest(s), 4 Registered Member(s) are currently online.  Details
RedLabel, alunke82, Skypilot56, Andy1986