Anyone know about allergies without positive test?

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Pixers
New Member


Date Joined Sep 2013
Total Posts : 8
   Posted 9/7/2013 2:51 PM (GMT -7)   
I have major allergies but none of them pop up on the test. The allergist explained how they can test for a few mold items but that there are a hundred to two hundred more that they can't test for.

I was just wondering if anyone else has allergies but rare ones that don't register on tests. I am very sick from allergies, i have to take allegra in the morning and a different one at night and it still doesn't help completely.

I was just wondering what you do for your allergies as the doctor told me he can't help any more than the normal allergy pills and what you know you are allergic to that doesn't register on test.

I get dry flaky skin, spots on legs, post nasal drip, severe itching, swollen body everywhere etc.

Any info you can give on what you go through would be great. Thanks.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/7/2013 4:18 PM (GMT -7)   
I've been thoroughly tested three times, and none of my skin tests are positive. Yet I have allergies and asthma, as well as eczema. The allergist and immunologist say I have "non-IGE medicated reactions."

Basically, the same thing as allergic reactions except a different part of the immune system is involved and standard allergy testing doesn't show them. Likewise, desensitization (allergy shots) won't help so treatment is only symptomatic.

Apparently this is relatively common in those of us who have autoimmune disease.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. Currently in 7th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum

Pixers
New Member


Date Joined Sep 2013
Total Posts : 8
   Posted 9/7/2013 8:29 PM (GMT -7)   
Thank you. I do have rheumatoid and osteo arthritis. So that helps a lot. :)

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/10/2013 11:31 AM (GMT -7)   
Lucky us. One more manifestation of how much our immune systems love us.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. Currently in 7th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum

Zots
Veteran Member


Date Joined Jun 2005
Total Posts : 1635
   Posted 9/10/2013 6:05 PM (GMT -7)   
oh my goodness u have run right up my ally! i am the absolute QUEEN of autoimmune mediated medication reactions. i have gotten to a point where i can take no medications at all. was sent to mayo clinic where i was dx'd with cyp genome deficiencies. then was sent to an international expert on medication reactions in oregon wbo dx'd me with a rare form of mast cell disease. its been pretty horrible. my mouth throat hands feet lips tongue all swell up and they cant give me anything for it. i am currently going on disability because of it. what testing have u have done sweetie?

Pixers
New Member


Date Joined Sep 2013
Total Posts : 8
   Posted 9/12/2013 4:32 PM (GMT -7)   
I had all blood tests done, cost me a fortune since I have no medical due to lack of income. The allergist said it was related with my rheumatoid arthritis as a rare symptom that just happens and to see my rheummy to get help from her.

With the rheumatologist, I have had all kinds of tests done from stool samples, to blood tests for everything from rheumatoid to cancers, infections, hep a b and c etc. I have been poked for blood so many times I call myself the human pin cushion. :)

The one thing that hurts the most is sorbitol. It's a sweetener they like to put in foods to lower their calorie number from trident gum to all sorts of drinks and foods. When I eat it, I get rappid pain so bad I can't walk, sit up, roll over in bed etc. someone has to do it for me.

Things that hurt me allergy wise the most are dust, molds, sorbitol, anything dairy except cheddar cheese (weird hungh), any artificial sugar makes me hurt like sorbitol but not as bad and other goodies made of chemical that i either breathe in or digest. I also can't be near new paint, new carpeting and if you have a brand new home, i can't visit for at least four years. My chemical allergies are huge.

Sometimes you think you just can't win.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/12/2013 7:27 PM (GMT -7)   
Sorbitol is awful, it gives even well people diarrhea if they eat too much. Any particulate in the air - pollen, molds, smoke, whatever - will trigger my "allergies" if it's in higher concentration. I take zyrtec daily and use an advair inhaler twice a day to prevent my asthma from rearing its lovely head.

I'd never heard of this either, but then I mentioned it when I was getting my remicade infusion one day and the GI research nurses said it was happening more and more as autoimmune conditions increase.

On the plus side of my runaway immune situation, I never get colds and I've had flue twice in the past 20 years.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. Currently in 7th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum
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