help sulfite (sulphite) tachycardia

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worriedmum
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Date Joined Sep 2013
Total Posts : 5
   Posted 9/30/2013 9:13 AM (GMT -7)   
my daughters and myself have worked out after many years it is sulfites (sulphites in uk) making us very ill (tachycardia, headaches, stomach problems)
so i decided i would cook some cakes but my daughter ended up worse after eating my cakes than shop brought ones, i realy dont know what to eat my daughters are losing weight because food makes them ill
has any of these got sulfites (sulphites) in
 
tate and lyle granulated cane sugar
plain flour and self raising flour (cheap ones from asda)
i cant believe its not butter (margarine)
 
one of these things made my daughter very ill within 30 mins of eating
i didnt think any of these had sulfites in but i must be wrong
 
other things that make us ill are chocolate dark chocolate is worse
some cheeses, fizzy drink, pizza, bacon,
 
this is getting very worrying our heart rates go up to 200 bpm and makes us feel very ill and weak
 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 9/30/2013 7:05 PM (GMT -7)   
Welcome to the forum worried.

How did you determine that sulfites are your triggers? Did you make icing for the cakes? Use any powdered sugar or food coloring? I'm not sure what's in self rising flour. Is the margarine artificially colored. Yellow #5 is toxic to us.

I always recommend keeping a food journal - a calendar with a page for each day is good. Put in time, foods and drinks, meds, reactions, again with the time. There are loads of threads about this.

Do NOT do "challenge testing" to determine tolerance to amounts of the individual foods! With heart rate as high as yours it could be very dangerous.

http://www.learningtarget.com/nosulfites/index.htm There's a free book to read that explains a lot.

The foods you listed do contain sulfites. A half hour for a reaction can definitely happen. That's about right for me if I eat something with fairly high sulfite content - sausage, maple syrup. I tolerate a couple thin strips of American bacon but not the UK type which we call Canadian bacon. Reactions can take up to 2 days if your reaction is migraines.

You should be able to eat most foods except processed stuff. Stay away from pork and don't overdo on beef, but chicken, turkey and fish are fine if they are fresh or frozen without additives. Most vegetables are clean unless they are processed. All bread in the US on the store shelves have preservatives unless labeled as not having it. Same with cakes, etc. Here the stores buy frozen cakes and such and just bake them in the store.

Keep food journals to help determine if you react to other foods. It's entirely possible to have more than one trigger.

worriedmum
New Member


Date Joined Sep 2013
Total Posts : 5
   Posted 9/30/2013 11:50 PM (GMT -7)   
Thankyou forr your reply . We all started to get very ill about two years ago. My daughters have had lots of heart tests and they was all fine except a very fast heart one of my daughters was given tablets fotr acid reflux they made her worse.

We all noticed we was feeling ill at the same times and we wrote out a food diary thats how we came up with sulfites because if we at chocolate we all would be ill same with pizza and fizzy drink and some ready made foods in shops .

When we make our own foods we are normaly ok untill yesterday when i decided to go baking cakes

My youngest daughter now also has a low thyroid her thyroid was ok six months ago .

The flour we used has wheat flour raising agents (calcuim phosphates. Sodium bicarbonate )
The margarine has vegetable oil. Buttermilk, salt emulsifiers ( mono and glycerides of fatty acids. Sunflour lectithin) preservative ( potassium sorbate) citric acid , flavourings, colour ( beta carotene) vitamins a and d

Please has anyone any idea i didnt ice the cakes or add anything like fruit because i didnt want to chance us getting ill

My daughters have lost loads of weight and now my food has made them ill . Is there sulfites in anything i listed ?

This is worrying me so much i remember my dad could not eat his fav foods dark chocolate strong cheese and wine he said they made him ill

Im thinking it must run in our family but what could it be something other than sulfites this is such a worry

Trevor koch
Regular Member


Date Joined Aug 2013
Total Posts : 29
   Posted 10/1/2013 4:50 AM (GMT -7)   
Hello worried Mum.I 'm Trev from Australia. Recently most of the information about sulfites says if you are sulfite intollerant you will also be salicylate intollerant. In that case it would be the sugar making your daughter sick.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 10/1/2013 7:04 AM (GMT -7)   
Sugar has sulfites. Sugar made from sugar beets is worse than cane sugar.

I don't have a problem with salicylates and my tolerance for sulfites is better than a lot of sufferers, so I don't have all the answers. I do have a true allergy to sunflower seeds though.

"Flavors" can contain anything. I run into trouble with flavored and artificially sweetened foods and medicines.

I suspect your dad may have had the sulfite intolerance. His favorites are mine too, and I react to them with tachycardia and upset stomach. I believe this intolerance can run in families, but I don't have proof.

As for losing weight, the only solution is to eat more clean foods. I need to gain weight right now after being in hospital for 2 months. I eat small "meals" several times a day. A baked potato is easy.

worriedmum
New Member


Date Joined Sep 2013
Total Posts : 5
   Posted 10/1/2013 8:37 AM (GMT -7)   
I never new sugar contained sulfites
Is there a list anywhere on safe foods we can eat ?
If i buy organic will the foods be safe?
Any idea why we all got ill at the same time ( within a couple of months of each other)?

Im sorry for all the questions but this is such a worry

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 10/1/2013 5:20 PM (GMT -7)   
If you read Rick's No Sulfites (see the link I posted earlier) website he explains how many foods are sulfited during processing.
He has lists of how much sulfite is in various foods, how you can calculate your intake. That's how I found out I can tolerate up to about 2000 micrograms per day.

Organic has nothing to do with sulfite content. Some foods contain sulfite naturally, some get it through processing. Sugar beet sugar is bleached with sulfite. So are some nuts and french fries and canned or flaked mashed potatoes. It's on the labels. Lemon juice is preserved with sulfites if it is bottled. It's clean if it's frozen.

Gelatin is made from pig skins, snouts, etc. It's boiled up in a sulfite bath. Gelatin is fine if you tolerate sulfites, but I get tachycardia and upset digestive tract.

There are many other websites listing foods containing sulfites. The only ones to avoid are the ones listed as highly sulfited. This is not like a peanut allergy, it's about tolerance levels.

I thought from your first post you meant you all had a sulfite reaction on the same day. If there was more time involved you'd have to each look at what you ate that day.

Check out the websites. There's a ton of accurate information.

worriedmum
New Member


Date Joined Sep 2013
Total Posts : 5
   Posted 10/1/2013 11:28 PM (GMT -7)   
Yes we all get a reation the same day and within a hour of each other but we all didnt have this problem until two years ago then all of a sudden one of my daughters got ill then a few weeks later myself then a few more weeks my other daughter something must of set the problem of
Now if one of my daughters says shes had a reation or myself and we have all eaten the same food i know within a hour we all will be ill
But two/ three years ago we could eat foods without a problem

worriedmum
New Member


Date Joined Sep 2013
Total Posts : 5
   Posted 10/1/2013 11:48 PM (GMT -7)   
Although i do remember chocolate always gave one of my daughters bad migraines and she would be sick when she was very young but not tachycardia
And i could never drink wine i would be jumpy for days.but not a heart rate of 200 bpm
And a cup of tea (tea bag) used to make us jumpy so we changed to weak decaff and seemed ok

But now its everything with sulfites and our hearts go crazy

But i realy didnt think the sugar i used had sulfite it was granulated white cane
But the margarine did just say flavours what could they of used to flavour it

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 10/2/2013 7:28 AM (GMT -7)   
OK, here's a simple website listing the amount of sulfite in some foods. http://www.sulphites.co.uk/sulphites-in-foods.php

You only need to avoid the high sulfite foods unless you have "true allergy" reactions.

Yes, even cane sugar has some sulfite. Here's Rick's page showing ppm (parts per million) and how to calculate how much you are consuming. http://www.learningtarget.com/nosulfites/knowing.htm

I have read some tea labels listing sulfite.

With products like bakery items I use the rule of thumb if the list of ingredients is over an inch high I don't buy it. I've gotten so sick I've had to go to the ER (ED) to get my heart rhythm reset. Google cardioesophageal reflex.

Sulfite intolerance can be acquired according to some sources. I've had problems with certain foods, notably gelatin, for so long I can't tell if I started out with it.

Cherylt58
New Member


Date Joined Jan 2013
Total Posts : 4
   Posted 1/3/2014 8:05 PM (GMT -7)   
Hi Worriedmom"

I have been using unbleached white flour, with no additives it in for all my baking. I seem to be
ok with this flour. Can you get this type of flour where you live? It sounds like your tolerances are
very low. Like Alcie said, that link learningtarget.com is really good. He knows is stuff. And I
have ordered his minerals. Very good.

Hope that helps.

Post Edited (Cherylt58) : 1/3/2014 8:13:57 PM (GMT-7)


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 1/4/2014 4:55 PM (GMT -7)   
Hi Cheryl.
I'm not sure if mum is around anymore. If you would like to get some replies on issues of your own you are most welcome to start your own thread.

So glad you've found us. Let us know how the minerals work for you.
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