Huge fear of eating after anaphylaxic shock. Please help?

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Bluejay1117
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Date Joined Sep 2013
Total Posts : 39
   Posted 10/21/2013 1:48 PM (GMT -7)   
Hi, I already have pretty bad anxiety, but last Monday made it ten fold. I've always known I was allergic to a hand full of things, but things that are really easily avoided. On Monday however, I was eating the same thing I always eat and in a matter of minutes my tongue had swelled, sores and welts covered it, my face turned red, my lips went numb, I couldn't talk...It was terrifying. I ended up in the hospital and given an epipen and benadryl. Couple days later, I ate something else I ALWAYS eat. But made extra sure it had nothing I thought was in the last thing that set me off. However, I had ANOTHER reaction. My throat felt like it was on fire, my lips went numb, eyes got red, it was hard to swallow. All the bad signs. Since then I have been absolutely terrified to eat ANYTHING. I really don't even want water, just in case. I haven't eaten in three days except for a four piece mcnugget from mcdonalds (it took hours and hours for someone to talk me into it). WHICH, put me right back in the hospital. This time with my whole body burning like crazy, rash all over, my body numb and tingling like hell, throat swollen. Terrifying.

I told the ER doctor how terrified I am of eating and he said, 'well. you'll eat when you're hungry.' I just want help. I know I can't just NOT eat forever. But I'm so terrified to eat or drink anything I don't think I could force myself to. Can anyone please help me? This is going to be the fourth day without food. Am I just insane? I feel so alone with this...

stkitt
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Date Joined Apr 2007
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   Posted 10/21/2013 3:50 PM (GMT -7)   
 
I am sorry to read of your reaction and I do hope your Dr. has you set up with the EpiPen® (epinephrine) Auto-Injector and has taught you how to use one.
 
The way I understand your post  you have had 3 occasions now and enough is enough.  It feels to me like you need to see a Allergist right away to determine what it is your allergic to ?  Are you on an antibiotics, or other medications ?  Treating each episode without looking for the reason is not going to prevent the problem.
 
You can not starve yourself but I can understand why you are afraid to eat. I see allergy testing in your near future and once the allergen is discovered you should also wear a allergy bracelet at all times.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/21/2013 3:53 PM (GMT -7)   
The E.R. doctor said chances are we will never find out what I'm allergic to and to tough it out. He also said it would be a year before I could see an allergist and to not even try.

He gave me steroids but I'm still petrified to eat. Every time I eat something my body has a bad reaction. I just don't know what to do. How am I supposed to eat anything if I react to it every time?

Chartreux
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Date Joined Aug 2006
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   Posted 10/21/2013 4:04 PM (GMT -7)   
Go find an allergist immediately. I agree with what stkitt/kitt said, an allergist can help and you can get scheduled for allergy testing....try to remember as best as possible what food in specific was eaten at each incident to set you off....maybe try going to a whole foods market and getting recommendations of food which for you to eat, the people at whole foods might be able to help.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/21/2013 4:23 PM (GMT -7)   
I just don't know. It's not just one food doing it all of a sudden. It's every food I've tried eating since that monday. It's like my body is rejecting everything I put in it. I made an appointment with my doctor tomorrow and I'll ask her for a referral to an allergist. But I'm not getting my hopes up... :|

Ugh, my whole body is itching/stinging like crazy right now too! I just don't understand what's going on.

Chartreux
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Date Joined Aug 2006
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   Posted 10/21/2013 4:48 PM (GMT -7)   
Nothing you remember eating was in common at each of these? Try to see if you can find a link, even a small link...did you eat chicken or dairy at all three? could be maybe a delayed reaction...But it will help your doctor tomorrow if you can narrow it down. It's good you have the appointment. Many Prayers and well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/21/2013 4:59 PM (GMT -7)   
The first two things that set me off majorly had a couple things in common. But things you'd never would think could make you go into that bad of an allergy attack. Like cheese, or tortilla. And then the mcnuggets, they're completely unrelated. I also tried eating an apple chunk and it too made my mouth very sore and my throat hurt.

Thanks for the best wishes. I'm thinking I'm going to need all the prayers I can get....

Chartreux
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Date Joined Aug 2006
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   Posted 10/21/2013 5:13 PM (GMT -7)   
Well the apple could've made your mouth sore for 2 reasons, one it's the first food you've eaten and it's a very acidic food meaning it probably burned, so kinda stay away from apples and acidic food until your back up and eating more. try a baked potatoe it's plain and bland and should be fine...what you had with the apple probably wasn't an allergic response...but burn from it being acidity. Try some bland foods.
However the cheese and tortilla link is good and you should maybe bring that up with your doctor along with the chicken.
again many prayers and well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Chartreux
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Date Joined Aug 2006
Total Posts : 9657
   Posted 10/21/2013 5:14 PM (GMT -7)   
and do not put butter or cheese on the baked potato..
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/21/2013 6:50 PM (GMT -7)   
Okay, I will try a potato maybe...I'm just having a really hard time eating or drinking anything at all...
But I suppose it's logical that the apple hurt my mouth because it's acidic. It did just have sores and welts all over it. I just wish I wasn't so scared....

Chartreux
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Date Joined Aug 2006
Total Posts : 9657
   Posted 10/21/2013 9:23 PM (GMT -7)   
Hope your doing good and post again about what your doctors thinks...

Bluejay1117
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Date Joined Sep 2013
Total Posts : 39
   Posted 10/22/2013 10:24 AM (GMT -7)   
I'm going to the doctor around four today. I'll see what she says and post back here after I have the details. Thanks for all the support!

Tirzah
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Date Joined Jul 2008
Total Posts : 2315
   Posted 10/22/2013 2:50 PM (GMT -7)   
Couple of ideas from my own similar experience:

1) Allergy testing does help. Even if you have to wait a year, get that scheduled asap.
2) My allergist put me on a restricted diet for 2 weeks & then had me introduce one new food per week for each week after that. Takes a long time, but it got me good info about my allergies. The 4 foods he always starts people on spell out B-R-A-T:
Bananas
Rice (white is best, but can be anything as long as it's unseasoned)
Applesauce (100% Natural, or make it yourself -- No Corn Syrup, sugar, cinnamon, flavorings...)
Tea (must be herbal since caffeine is a major allergen) -- no sugar, creamer, honey, etc.

Also, make sure you are not drinking your allergen. Besides tea & water, my doctor let me do 100% Apple Juice, not from concentrate. I don't like apple juice, so I would cut it with 1/2 water.
For the Tea, I recommend Hibiscus Tea (Panera makes a yummy Hibiscus Tea). It's naturally a little sweet so you don't need sweetener. Also, probably not good to pick Licorice Tea for first 2 weeks since people are often allergic to licorice. It is good, though & doesn't need sweetener either.

The best way to prevent allergic reactions is to cook for yourself. As much as I love Chicken McNuggets, too, there are just way too many potential allergens in there: batter, preservatives, natural/artificial colors or flavors, oil(s) in which they're fried, whatever's in the sauce, not to mention the potential for cross-contamination at any point in manufacturing, transportation, storage or cooking process, plus the fact that Purdue admittedly uses antibiotics and steroids on their live chickens (Purdue supplies the meat for the McNuggets), so there are just a whole lot of possible causes of your allergic reaction.

In order to best rule out allergens, you want to limit ingredients as much as possible. Choose whole, organically-grown fruits and vegetables, and fresh, organic beef/chicken/pork/fish (and if you can tolerate it down the road, seafood). Wait 1 month before introducing anything with wheat since besides the fact that wheat can be an allergen, gluten intolerance can make you more prone to react when you come into contact with other foods to which you are allergic.

Once you've been at it for a good 4-6 weeks, you can try some kind of simple bread with limited ingredients. Because preservatives are difficult to control for, fresh bread from the bakery is your best bet. You can always freeze half of it so it doesn't go bad. You can look up "Allergy Elimination Diet" for better lists of what to include or avoid in those initial weeks, but basically, just stay out of the middle of the grocery store and don't eat at restaurants. Also, you probably want to try avoiding iodized salt (regular table salt) for a bit. There's plenty of it in Chicken McNuggets, incidentally, and it can sometimes cause allergic reactions up to & including anaphylactic shock. My brother has that problem. Instead, we use Sea Salt or, sometimes, Kosher Salt. Be careful because the last time I was at the grocer, I saw there was one type of Sea Salt where they actually added iodine.

Hope that helps. I feel for you. It's not fun to go through the Elimination Diet, but at least you usually just have to do it once like every 20 years or so. :) And it's worth it not to keep landing in the ER.

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/22/2013 2:58 PM (GMT -7)   
Thank you so much for your suggestions! Bananas are actually something im highly allergic to. Same with a lot of fruit. But rice sounds reasonably safe....

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/22/2013 7:12 PM (GMT -7)   
Just got back from the doctor, she referred me to an allergist but I'm not sure how long it will be until I get in. She also gave me some hydroxyzine for anxiety and allergies. She has me continuing the steroids for four more days and told me to try rice and oats for food....

Right now I just ate a bit of something, and I'm completely freaking out, but I'm trying to stay come...):

Chartreux
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Date Joined Aug 2006
Total Posts : 9657
   Posted 10/22/2013 9:40 PM (GMT -7)   
Hopefully things will get better for you. Make sure to locate some natural rice without additives. Will keep my fingers crossed for you and will hope you can get into a allergy clinic soon....glad you got the referral...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/22/2013 9:58 PM (GMT -7)   
Thank you! I have successfully eaten a tiny bit of potato while on 25 mg on Benadryl. So I'm hopeful.(:

Chartreux
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Date Joined Aug 2006
Total Posts : 9657
   Posted 10/23/2013 6:25 AM (GMT -7)   
Glad to hear your eating...take it slowly and many more well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 10/23/2013 4:26 PM (GMT -7)   
Google something called "Alpha Gal allergy" it's a newer allergy and could be what your going through.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/23/2013 4:53 PM (GMT -7)   
I don't think that's it. I don't eat meat usually. The first time I ate it in months was the nuggets.

Alcie
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Date Joined Oct 2009
Total Posts : 4946
   Posted 10/26/2013 5:06 PM (GMT -7)   
If you don't like the first allergist, try another. Other specialists - GI, cardio, pain - tried to tell me I had no food allergies/intolerances, but the 3rd allergist was the key.

Meanwhile I'd avoid anything processed. Don't sweat natural, organic, gluten-free, bland and other popular tags for now. Try to stick to foods where you can identify the ingredients.

My allergist had me keep a VERY good food journal - date, time, all foods, drinks, medicines, vitamins. After I got my list together she had me doing challenge testing. Don't try that unless your allergist OKs it! Your reactions could be life threatening! Search those key words in the search box at the top of the page. There are many threads, lots of information.

My reaction was tachycardia triggered by GI upset, triggered by sulfites. I only have the "intolerance" but some people have "true allergy" to this. Sulfite is in those processed nuggets and most everything else that's processed, also naturally in pork and grapes and a lot more. I'm not saying you have the same allergy! There are plenty more triggers. I did a search for a bunch of my foods when I had the ingredients sorted out along with "food allergy" and found my trigger easily. I have a few things like sunflower seeds not on my sulfite list. There's nothing to say you can't have more than one food trigger. That could help with the banana problem.

Ignore the doc who said wait a year. Get started with your journal today. It's free.

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/28/2013 12:27 PM (GMT -7)   
I'm going to see an allergist on the fifth. I've barely eaten since the first attack. Maybe a couple bites of something a day since friday. Everything I eat sends me into a panic attack (or maybe it truly is an allergy) and I have to take 50 mg of benadryl. I'm not sure if the journal would help, but I will do it.

My main problem now is that I can't take any benadryl for 5 days before I see the allergist. To me, that means no eating for five days and with eating less than a days worth of food over the course of two weeks, that probably isn't possible. UGH.

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/28/2013 12:27 PM (GMT -7)   
I'm going to see an allergist on the fifth. I've barely eaten since the first attack. Maybe a couple bites of something a day since friday. Everything I eat sends me into a panic attack (or maybe it truly is an allergy) and I have to take 50 mg of benadryl. I'm not sure if the journal would help, but I will do it.

My main problem now is that I can't take any benadryl for 5 days before I see the allergist. To me, that means no eating for five days and with eating less than a days worth of food over the course of two weeks, that probably isn't possible. UGH.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/29/2013 10:34 AM (GMT -7)   
 
May I kindly suggest you post in the Anxiety/Panic Forum as this is where you will find many memories with Health Anxieties and they may be able to advice you on how to deal with your anxiety.  Feeling anxious all the time is truly awful. 
 
I hope you consider talking to other members who have anxiety on a daily basis.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

Bluejay1117
Regular Member


Date Joined Sep 2013
Total Posts : 39
   Posted 10/29/2013 1:14 PM (GMT -7)   
I debated on where to post this but settled on allergies to see if anyone else with a life threatening allergy could relate to me. However, I have recently found out that the 'reactions' that I'm seeming to have to every single food I eat now is irritation from a case of Thrush I got that spread from my mouth down my throat. Apparently it's why my throat and mouth start to swell and get sores when I eat.

I'm feeling better knowing that it's not a true reaction to food, just irritation due to thrush!
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