Sulfite Sensitive

What is your biggest challenge, being sulfite sensitive?
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Portion Size? - 0.0%
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Eating the right foods? - 0.0%
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Not knowing what to eat? - 100.0%
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Handleing reactions? - 0.0%

 
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kdavinci60
New Member


Date Joined Mar 2014
Total Posts : 3
   Posted 3/8/2014 9:37 AM (GMT -6)   
I have been sulfite sensitive for 3.5 years, I lost 90 pounds, the first year. It actually saved my life. However, I have good days and bad day. I have to watch portion size very closely, because I still have a reaction...at least 3 times a week. I take sub-lingual B-12, with B-6, and folate, Molybdenum, and Vitamin C, especially when I have a reaction. These items ease a reaction for me in no time. I found helpful information at www.facebook.com/rsensitivelife, and www.pinterest.com/rsensitivelife. We all need all the help and experiences we can get from other perspectives, hope this helps even just a little.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 3/8/2014 12:29 PM (GMT -6)   
Welcome kdavinci60.

You've been reading! There are tons of good threads on the HW website also. Put some keywords in the search box at the top of the page.

Portion size makes little difference if it is foods that contain sulfite. If you are over your tolerance level, which could be one can of soda, you will react. The website I used to find out how to calculate how much is in certain foods is http://www.learningtarget.com/nosulfites/index.htm

What is your reaction? If you have a "true" allergic reaction you have to be especially careful. I have a "sensitivity" but still have to be careful because my reaction is tachycardia which has sent me to the ER all too many tmes. Some people have migraines.

If you have a severe reaction you shouldn't experiment to see what your tolerance levels is, but you can keep a good food journal and make a pretty good guess - using the calculations in the No Sulfites website. (click on the url I posted above.)

The main thing is to avoid processed foods, including things like commercial bread, even at the local bakery, unless you have a bakery that uses no preservatives. No sodas, no wine or beer, very little Italian food unless you make your own sauces without onions and garlic. I don't tolerate pork at all, but can have a little beef. If I avoid foods with high sulfite, I tolerate a bit of milk chocolate. (Forget the nice dark chocolate though.) But keep reading. You're doing well!

A good, experienced allergist can help. If s/he says there's no such allergy find another one! My 3rd one has been a big help.

Watch your vitamins too. Biotin has a lot of sulfite. I don't take anything extra for lowering sensitivity, not sure if it does much.

kdavinci60
New Member


Date Joined Mar 2014
Total Posts : 3
   Posted 3/8/2014 6:39 PM (GMT -6)   
Thank you for the tips. I have not found a doctor who understands. My allergist said watch what you eat and look everything up on the internet. What I have done for myself was not with the assistance of any doctor. I dont eat any processed foods, nor soda, nor alcohol. I have not eaten in a restaurant for the entire time I have had this. When I go to a friends I bring my own food. Im very sensitive to meats. I can tolerate and ounce of beef or chicken at a time and only 1 1/2 pieces of bacon, only 2 eggs at a time, a 1/2 cups of homemade hummus at a time. Im very sensitive and very careful. I have found very conflicting information the internet. I think we are all different in this sensitivity and our tolerance levels are way different from one another. Love hashing around ideas with everyone, its a continuous learning experience. No chocolate for me, I'd be at the hospital.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 3/9/2014 2:41 PM (GMT -6)   
At least your allergist is honest.

Beef has some sulfite, but chicken should be OK. Fish can be all right if you wash it thoroughly yourself. It's often sprayed down with sulfite to keep it from spoiling. Eggs have sulfite, but you seem to know your tolerance there. Pork is the worst.

What's in your hummus?

Seriously, read the link. It's a whole book, free online with amounts of sulfite and how to calculate.

Avoid bread unless you make it from scratch yourself. Alcohol is fine by itself. Wine is made from grapes which have a little sulfite, but commercial wine usually has added sulfite. I make my own and can have just a little.

Do you use spices? Read how pepper is made. Avoid mixed spices, but many single spices are OK. All sugars have sulfite - read the section on things made from corn.

Milk should be fine if you are not lactose intolerant. Yogurt has sulfite. Soy products have sulfite. I only mention the things that give me problems and I'm not extremely sensitive, just enough to have been to the ER a few times.

kdavinci60
New Member


Date Joined Mar 2014
Total Posts : 3
   Posted 3/9/2014 10:06 PM (GMT -6)   
I make my hummus from scratch..I boil the dry chick peas til tender, then put them in a food processor, with seasame tahini, lemon, greek seasoning, salt and cayenne to taste. (cant use garlic in it which I love) I only eat Miller Special Bread, made with minimal ingredients by a local bakery, and unleavened homemade pita, from another local bakery. I mainly use salt, pepper cayenne, celery seed, homegrown basil and mint as spices. Lots of Lemon and Lime, fresh only. I use in my water also. I only use pure stevia, as a sweetner and occasional sugar. I make homemade sorbet in the summer with fresh fruit and simple sugar. I can only drink 2% milk, the others bother me , an especially not cream. I can have 2 tablespoons of greek yogurt with a little honey for something sweet.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 3/10/2014 12:33 PM (GMT -6)   
What's in the sesame tahini? What's in the Greek seasoning? Lots of different recipes for both.
What's in the Miller bread? Is it labeled no preservatives?
Even pita can have ingredients with sulfite in it. Any corn starch? That's one of my worst.
Stevia is mostly dextrose unless you are using the actual fresh leaf. (I can't stand the bitter taste.)
Sorbet - what's the source of the sugar? If it doesn't say, it's sugar beets which are higher in sulfite than cane.
Yogurt has sulfite. I only tolerate one brand and only a little of that.
Not sure about the cayenne pepper.

Some of these things also have salicylates to which many people are sensitive. Have you been tested for that? It's not unusual to have more than one allergy.

onelile
New Member


Date Joined Mar 2014
Total Posts : 3
   Posted 3/15/2014 8:45 AM (GMT -6)   
Hi all! New to the board, but have had this awful sensitivity since last fall when a course of sulfa drugs ruined my body's ability to tolerate sulfites. (I have read if you have an autoimmune disorder, which I do, sulfa drugs can destroy you sulfite oxidase enzyme.) Have been to the ER and Urgent Care clinic. I get an anaphylactoid reaction which is very scary. Hair color, champagne, lime juice concentrate, and shrimp are just a few of the things I've reacted to.

My doc thinks I now have hyperthyroidism, because my resting heart rate is very high (120+), and I'm now in the double digits as far as weight is concerned. (Currently waiting on a bunch of different test results and terrified of any meds I might have to take, e.g., beta blockers, anti-thyroid meds.)

This board has been a fantastic resource these past few months--especially all of your knowledge, Alcie.

Now, a question! :) I emailed Rick from the No Sulfites website and he said if plain yogurt doesn't have gelatin it's probably safe? But here I'm reading it's not? Just wondering because I need to find more foods I can eat. Thanks for any info you can provide. (My allergist was no help--he told me to just look up foods on the internet.)

Post Edited (onelile) : 3/16/2014 1:53:34 PM (GMT-6)


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 3/17/2014 5:30 PM (GMT -6)   
Onelile,

Rick is a dear. He's undoubtedly right about PLAIN yogurt. Most of the yogurts though, have sweeteners and flavors which have sulfite.

Get a different allergist. And read a bunch of the HW threads - see the search box at the top of the page.
Look on Rick's site in the website section for Housemouse's pages for sulfite on skin problems and solutions.

Frozen lemon juice is clean. Don't touch the bottled stuff or commercial products with it - including jams and jellies.

I can't advertize any products for sale, but I did buy Rick's huge paper book for the information on medicines for myself. For free you can look up meds before you take them online and look at the ingredients and excipients for sulfur with a couple of oxygens that could possibly break off during digestion. I've saved myself a couple of times by knowing to refuse some. I had a tachycardia reaction so bad I couldn't get it stopped myself and had to have my heart re-synchronized in the ER. I keep a couple of different beta blockers on hand now that usually gets those events stopped.

So don't worry about the meds. Some of them are very helpful.

And I recommend you start your own topic. Maybe Razzle will chime in - the real expert on anaphylaxsis from sulfites.

onelile
New Member


Date Joined Mar 2014
Total Posts : 3
   Posted 3/20/2014 7:44 AM (GMT -6)   
Thanks for the reply.

Rick's book is fantastic. I bought the paper version with all the charts and it is filled with valuable information on the sulfite content of different foods. Well worth the money!

If you don't mind my asking, what beta blockers can you take? I have a feeling my doc is going to put me on one soon.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 3/20/2014 8:16 AM (GMT -6)   
I have two problems requiring heart meds. First is tachycardia, which I get when I consume over my daily tolerance for sulfite. Second is life-threatening increase in blood pressure from autonomic dysreflexia caused by breaking my neck.

For tachycardia I can take Inderal (propranolol) which acts quickly but doesn't last long at all. I can also take Tenormin (atenolol) which takes a half hour or so to act but lasts several hours.

For the rise in BP I have an alpha blocker, Norvasc (amlodipine). That's to keep from stroking out when my BP goes above 150 and stays there. I get this from any sort of irritation like constipation or even a seam in my jeans rubbing. Weird.

I don't tolerate any heart meds on a regular basis. I see my cardiologist twice a year to keep up with these problems. When I had my heart attack I was supposed to take meds regularly. That's when I found the intolerances. I tried just about everything. I'm fine on an as needed basis.

My apologies to kdavinci for letting this thread get hijacked. I tried to contact the mods to get the new part separated.
Onelife, it would still be good if you had your own thread. Just click on the "post New Topic" box at the top or bottom of the page. I hope others who happen upon the sulfite stuff will post their own threads also.
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