Sulphur/Sulfite Sensitivity - Much Worse Now and Very Desperate!!

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taroki
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Date Joined Oct 2013
Total Posts : 60
   Posted 3/23/2014 8:52 AM (GMT -7)   
My sulphur/sulfite allergy has gotten much worse over the past few weeks!!! It started with the liver flush a couple weeks back, then the colonics (after the second one I had a huge candida intestinal yeast flare up). And then stupidly I took NutriCology liquid molybdenum (ammonium molybdate) which caused ammonia sleep issue.

Now and lately I notice even drinking Brita filtered tap water I am sometimes reacting to! Why is this? (could it be that it is stiring up the sulfites in the body?) Is there a type of water I should drink with no sulfites? What about bottled spring water which has sulfates?

I am already on a low sulfur diet but it kept getting worse lately. I am also wondering if I can safely drink water Kefir (I didn't feel bad after taking it last week but I don't know about now?) Would like to fix my candida issue so at least I can eat some sugar.

I have Lyme, mercury, MTHFR, etc.

Alcie
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Date Joined Oct 2009
Total Posts : 4931
   Posted 3/23/2014 10:22 AM (GMT -7)   
Oh boy! Don't get into popular, unproven treatments unless your doctor specifically prescribes them.

Is there a reason you think your water contains sulfite? Get it tested. It should be clean. A lot of bottled water brands do contain sulfite. There was a thread some time ago. Perhaps you can find it by looking it up in the search box at the top of the page. Sulfates are not the same as sulfites.

Kefir is fermented. Fermenting does cause lots of things to change so that they are sulfite-containing. Kefir cheese is supposed to be OK. However, fermenting also causes foods like kefir to become rich in histamine, which causes allergic reactions.

I would talk with an experienced allergist. It may be that some, but not necessarily all, of your allergy problems are from causes other than sulfites.

taroki
Regular Member


Date Joined Oct 2013
Total Posts : 60
   Posted 3/23/2014 10:45 AM (GMT -7)   
Thanks for your reply Alcie.

We don't have any doctors here that treat Lyme patients here in Canada unfortunately, let alone ones that understand sulfur sensitivity due to Mercury and Methylation issues.

I am worried I am going to die ... there was another curezone forum member a while back named Chris. He was allergic to everything and couldn't detox as a result. He still had a lot of mercury in his mouth, lots of parasites, Lyme, very weak and underweight, etc. I don't think he made it.

I'm not as bad I guess since I got most of the parasites out, no mercury in mouth, and just recently tested positive for Lyme and possibly co-infections. But there's no one out there to help people like me other than on the internet .... :-(

There is also a friend of a friend, who also became allergic to everything after detoxing. I guess we all have sulphur issues.

Would you know if those sulphite test strips are helpful by the way? Can you recommend the best one to purchase? It would be great if I can test everyday to see if I have less sulphite. Those I see when I google tend to focus on CBS issues and I don't know if I have that since I haven't done the Yasko test yet. I do have methylation issues though including ...

+/+ for VDR Taq, ACAT1-02, BHMT-08
+/- for MTHFR A1298C, COMT P199P, MAO-A R297R, MTRR A66G, BHMT-02, BHMT-04, AHCY-01, AHCY-02, AHCY-19, CBS A360A

Alcie
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Date Joined Oct 2009
Total Posts : 4931
   Posted 3/24/2014 8:50 AM (GMT -7)   
Taroki,

Don't "detox" unless a medical doctor prescribes it, and I don't think one will. If you have some old fillings see a dentist. Just an untrained opinion, but I don't believe all the hype about mercury.

How do you know you even had parasites?

Just about any general practice medical doctor can give you some doxycycline when you get a Lyme flare. Dr. Yasko is not a medical doctor.

Sulfite sensitivity is rare. What are your reactions? Skin? Migraines? How did you find out you are sensitive? I got a lot of help from my allergist. She had me keeping a good food journal and doing challenge testing. You can look up those terms in the search box at the top of the page.

It's a lot easier to know the foods that contain sulfites and just avoid the ones that are loaded and not eat over your sensitivity level the ones that just contain some. Basically, avoiding junk food and prepared food not made from scratch is easy. In other words, do your own cooking. There are lists of foods all over the 'net. I use Rick William's formulae for calculating sulfite and tolerance levels. http://www.learningtarget.com/nosulfites/index.htm I think he may have a source in his book for the strips. If you learn your foods you don't need them though. It's not about avoiding all sulfites, just keeping under your tolerance level.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 4/1/2014 7:46 PM (GMT -7)   
Taroki,

Few doctors really understand Lyme or methylation issues, and even fewer "get" sulfite problems.

Lyme throws a monkey wrench in this stuff.

You have a hetero mutation of CBS, which can cause sulfite problems.

I have Lyme & sulfite intolerance (homozygous CBS mutation) also.

Brita filters use carbon, which is derived from coconut hulls. They are sprayed with sulfites. I cannot drink water that has been treated with carbon filtration without getting a sulfite reaction.

What helps:

Yucca Root helps mop up the excess ammonia from Lyme. Doesn't take much...I only need 1/4-1/8 tsp. daily. But take a few weeks break from it from time to time.

Molybdenum, Zinc, Magnesium, Vitamin B12 (hydroxycobolamin or methylcobolamin are best forms to use) - supports sulfite conversion to sulfate, and may help improve sulfite tolerance.

Email me if you want to chat more about this...
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Flagyl, Zofran, Acupuncture, etc.

12Linus17
New Member


Date Joined Feb 2014
Total Posts : 13
   Posted 4/28/2015 5:49 PM (GMT -7)   
Razzle

You need to watch and learn as much as you can on sulphites, suphates sulphur as they are in the same family. Most bottled water does contain suphites so you may just need to boil your water and put it in the fridge and refill your bottles that way. Many allergist don't know enough yet about sulphites (in Canada) and there is not a test they can do, just you yourself can test by ingesting sulphited products but not wise to do so. Most medicine contains sulphites, (cellulose) made from wood fiber but broken down by use of sulphur. Many symptoms happen to people with this allergy and (in North America) 1 in 10 people have some form of a reaction to sulphites. Heartburn, diarrhea, flushing of the face, swelling, hives and more so just be careful and read labels. Red #40 is not good either.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 4/29/2015 8:42 AM (GMT -7)   
Linus, Razzle is one of the best experts there is on sulfite allergy and sensitivity in this forum.

But, thanks for pointing out that cellulose is processed with a sulfite. Do you have a link for it's process from raw cellulose to methylcellulose? Methocel is used commonly as a gel and is sometimes used in medicine production. Since I don't react to meds that I know contain this, I suspect there is only a small amount, if any, sulfite left in the product.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/5/2015 9:51 AM (GMT -7)   
Actually, boiling the water won't get rid of the sulfites.

What has worked for me is to spray some Vitamin B12 into the water and let it sit overnight. Then I can drink it, because the Vitamin B12 binds directly to the sulfites and inactivates them so they don't cause a reaction.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Flagyl, Essential Oils, Homeopathy, Herbs, etc.

marry the night
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 9/2/2016 11:25 AM (GMT -7)   
I am probably having sulfite reactions to water (I am pretty sure of it.) I am having a really hard time. Is there a brand of bottled water without any listed or unlisted sulfites? I need specific brands of bottled water with absolutely no sulfites, hidden or not. How about distilled water? They sell it in gallon jugs at the grocery store or drug store. Is there a specific brand of distilled water without any sulfites? Is it safe to drink distilled water? Due to other reasons I quit drinking tap a long time ago (I had other types of bad reactions to it).

Smart Water is an actual bottled water that claims to be distilled, that is kind of interesting, though it does have some minerals added back into it. Is this water sulfite free?

I am extremely sensitive. I think I am reacting to low amounts below the detection limit. I am reacting to Ozarka, which I have seen people say is safe for them. Also, I reacted to Aquafina, which many people say is safe. I will not try the waters I see a lot of people complain about.

Post Edited (marry the night) : 9/2/2016 12:39:11 PM (GMT-6)


marry the night
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 9/2/2016 11:30 AM (GMT -7)   
Please as much help as possible. If you don't have any advice, please see if anyone else might. if you think someone else does, please ask them for me. It is just getting really difficult with these cumulative reactions. I am having too much trouble tolerating food, water, pills. Cumulative reactions.

If I can try water that I KNOW FOR SURE does not have sulfites, then I can compare and see if I have a reaction to it. I need to narrow this down to be sure. I am desperate. I am extremely sensitive. It's ridiculous. Tolerance is extremely low.

Post Edited (marry the night) : 9/2/2016 12:34:02 PM (GMT-6)


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 9/3/2016 6:47 AM (GMT -7)   
Somebody, maybe Razzle, posted a list of water in the forum. You may be able to find it with a search in the archives (search box at the top of the page).

I wouldn't try anything with minerals added. No telling what they added. Distilled should be clean, but it's not really healthy. Make sure you get enough vitamins and minerals, NOT BIOTIN.

I'd suggest looking more at your food and what else you are drinking. Keep the famous Food Journal! (See archives) You may find it's not the water, unless you are only drinking water and nothing else for several hours.

Health Nerd
New Member


Date Joined Dec 2016
Total Posts : 1
   Posted 12/19/2016 2:12 PM (GMT -7)   
hi everyone, I'm new to the forum and desperate. I have had no luck or help by going to the doctors back and forth. I hope maybe I can find some advise, help, wisdom here!

about six months ago my allergies and asthma flared up after 2 years of having great health. I stared to use my Qvair inhale again but found that it caused trush and it was just too disgusting to handle waking up in the mornings to that, I also started to have an adverse reaction to this and would feel neck pain that I believe was from lymph nodes swollen and hard as rocks. So Qvair provided more side effects than it did any relief. I discontinued use of it but struggled with asthma still, recently I experienced allergic reaction to my albuterol inhaler as well. I experienced fatigue and mind fog beyond what I could tolerate I felt I was going mad! So along with asthma, allergies I have had night sweats for about 2 years and thought nothing of them, I thought it was related to hormones but it wasn't until I started to have this skin rash all over my body with no specific trigger I started to worry and put all these symptoms together.

My fear would be the worst of the worst and that is Lymphoma, since I have al the symptoms except weight loss. My blood test only show SED rate and Eosinophils to be high but nothing else showed on the blood work. I have an appointment with my doctor this week but have little hope as I usually experience the "its all in your head" treatment. I am also waiting for ct scan to rule out lymph node issues.

Being puzzled by my terrible reaction to the medications I so desperately needed I came across info about possible allergic reaction to certain medications, than it led me to certain food and now I found my self here at this thread...

I use essential oils almost daily, I did a detox in may 2016, I eat a lot of fruits, the air quality where I live is not good due to a fire back in july and high winds don't help....I am so confused to what is wrong with my health!!!

summary of symptoms:
-asthma flare up
-allergy flare up
-diarrhea with dairy (which I try to avoid as much as possible)
-night sweats
-low grade fever through out the day, 99.3
-itchy skin, hives that swell
-fatigue

all this started 6 month ago with the itchy skin starting about 2 months ago

please any info would be greatly appreciated

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 12/22/2016 4:49 PM (GMT -7)   
It would be a good idea to write your own thread - hit the new topic button. This is an old one and not related to your problems.

I just take lactase tablets if I have to eat dairy that is not lactose free. It won't work if you are truly allergic to the milk protein, but it's great if you don't tolerate milk sugar - lactose.

I can't help with your allergies, so please see your allergist.

I get a bad reaction to albuterol, and this is not unusual. I get tachycardia - rapid heart beat.

I suggest that you get off all the stuff you have added - oils, etc., as they might be worsening your allergies. Get your conditions under control by eliminating your triggers, not adding a bunch of stuff that is made who-knows-where and from-what.

Detoxes aren't proven and don't really work. Just eliminate additives and things you know you don't tolerate, and your body will detox itself.

Don't diagnose yourself. Google is great for helping us understand conditions, but it's not a very good doctor/diagnostician. Go back to your allergist.

Keep a journal/diary. There are lots of posts about keeping a food journal - see the search box at the top of the page.

If you post your own story as a New Topic lots more people will read it.

marry the night
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 1/3/2017 8:00 PM (GMT -7)   
Does anyone react to lettuce like romaine? If so, do you only react to the outer leaves?

marry the night
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 1/8/2017 3:28 PM (GMT -7)   
I read that plain corn chips are safe. What about plain tortilla chips? Tortilla chips often have Lime (aka calcium hydroxide) listed in the ingredients. Is this okay?

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 1/8/2017 4:30 PM (GMT -7)   
Lettuce shouldn't have sulfites added anymore.

For tortilla chips you'll have to ask the manufacturer about their lime. Fresh or frozen lime is safe. Bottled lime or the stuff in the little plastic containers is labeled as having more than 100 ppm, a large amount. Jam and jelly has the same problem with the lemon juice used.


Please, both of you, start your own topics. You'll get lots more readers. I wrote this in the post just above where you tacked on. We love having new people and reading new topics.

marry the night
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 1/8/2017 4:48 PM (GMT -7)   
Thanks I will keep that in mind about new posts. By lime I meant calcium hydroxide. Lime is another word for calcium hydroxide. I thought that the lime on the chip bag was the fruit lime also at first. I later found out that the lime was calcium hydroxide.

popper
New Member


Date Joined Dec 2017
Total Posts : 1
   Posted 12/9/2017 3:34 PM (GMT -7)   
idea

Am I interpreting correctly that sulfite is part of the sulphur
family???? I had NO idea.

Now, I'm wondering how much of my challenges is due to
my sulphur allergy, since I was in the dark all along.

I appreciate all the info offered by much more enlightened
folks than I. Thank you so much. And, I will surely get
hold of the ebook/sulfites....

Again, many thanks.

popper

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 12/10/2017 6:06 PM (GMT -7)   
Yes. There are SO2, -SO3, and so forth. And they are different from -SO4, sulfates, which we need!

The free e-book explains the chemistry.

When reading lists of foods with sulfites you will find many are just copies of other lists. The thing to understand is that most people with sulfite intolerance or even sulfite allergy can tolerate some. It's not usually like a peanut allergy. The book explains how to calculate your level of tolerance.

My tolerance is about 2000 micrograms. That's not especially low as others have much lower tolerances. I can have a glass of my homemade wine, but not the commercial stuff with sulfite added to stop the yeast and sterilize against bacteria. It's not hard to make wine! I just get a 6 gallon bucket of grape juice and put a plastic tube from the pressure stopper into a bottle of water for a few weeks to let out the CO2 qnd not allow oxygen to get in! (Actually, first I open the bucket and add 2 1/2 lbs sugar (cane only!) because I like sweet wine.) Then, after it's done working, I siphon it into any screw-top glass bottle or even plastic bottle. Even a milk bottle will do in a pinch.

I can have 1 beer but not 2. I can have a can of soda, but not 2. I can't eat beef or pork at all. I can have chicken or fish, most vegetables, even onions, but not onion soup.

The things to mainly avoid are the processed foods, deli meats, and my much-loved spare ribs. sad Oh, well. Keep a food journal and figure out what YOU tolerate, even if you find it's not really sulfites. It's possible to be intolerant to other things and more than 1 thing at a time. I don't tolerate a few other things not related.

Best wishes!
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