Vitamin B12 and molybdenum supplement

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Quimby's Mom
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Date Joined Jun 2014
Total Posts : 6
   Posted 6/28/2014 5:10 PM (GMT -6)   
I recently discovered I have a sulfite sensitivity. I picked up Vitamin B12 and molybdenum today because they were recommended on the No Sulfites page. I took them with food but I feel really weird - lightheaded, just goofy. Is this normal? Is it something that will go away?

Thanks!
Debbie aka Quimby's Mom

Alcie
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Date Joined Oct 2009
Total Posts : 4984
   Posted 6/29/2014 7:15 PM (GMT -6)   
Welcome to the forum, Mom.

I haven't tried this remedy and don't take much in the way of supplements, so I can't say if they work or not. At least you found a website that gives you some of the science behind sulfite sensitivity.

You might find an allergist who is knowledgeable about this condition who could guide you as to the amount to try. I would suggest trying only 1 thing at a time. I have other conditions, so I do take B-12, on a doctor's recommendation.

What sort of reaction do you get to sulfites? I don't get Rick's headache, but I do get gastrointestinal and cardiac symptoms.

Quimby's Mom
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Date Joined Jun 2014
Total Posts : 6
   Posted 6/29/2014 7:34 PM (GMT -6)   
Thanks for the welcome!

I'm unable to take antibiotics containing sulfa; extreme gastrointestinal problems, diarrhea, etc. I think I inherited this problem, along with an intolerance for wheat from my Mom who had the same stomach problems.

When I was young, my mouth would break out if I drank too much tea or orange juice. My Mom told me it was most likely the citric acid.

Fast forward to three weeks ago whe a small glass of wine sent me to the ER with a tongue that had swollen so large, I was afraid it would cut off my airway. The wine was one I'd drunk many times, but I've been under a lot of stress at work, and I think that set off the episode. The next weekend I woke up and my face along the right jaw line was swollen and I felt tingly and numb like you do whe you've gotten a shot st the dentist office. My mouth then burnt like I'd licked the inside of a Vicks bottle for the next few weeks. I also realized that the night sweats I was having might be related to the sulfite and not menopause. The next weekend I forgot that shrimp were on the no-no list, and I ate three shrimp on the Chinese buffet. That evening I slowed the reaction down with Benedryl. I then started reading everything I could find about sulfite sensitivities.

I'm now working to be very careful to avoid sulfites but you know how difficult that can be! Right now, I'm trying to isolate the suspects. I discovered that a stomach enzyme I was taking contains sulfites; once I stopped taking them, the burning lessened. Yesterday, I put on lip gloss I've worn for years and my lips burned terribly - guess what? The ingredient list contained citric acid :)

I'm thankful that my throat has never closed up but one of the ways I know it's coming on is that odd feeling in my throat like I have a pill stuck there. I don't want it to escalate to that. The good news is that I already ate a very clean diet because of my problem with wheat. We eat very few processed foods in my food and I finally kicked my Diet Coke habit.

I really appreciate this forum.

Debbie (Quimby's Mom)

Alcie
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Date Joined Oct 2009
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   Posted 7/3/2014 7:22 AM (GMT -6)   
Wow, QM! Sounds like you may have the "true allergy" to sulfites. Unlucky. I have the intolerance. This can be inherited, so watch Q.

Do you have an allergist? Your reaction is life-threatening, so you ask a doctor about carrying an epi-pen. Yes, it probably still has sulfite preservative, but it might get you to a hospital. Usually 2 doses are needed, so consider getting 2 to carry around. Also, since Benadryl helps you, carry that too. But use the tablets only. Th liquid has sulfite. You might want to carry Alavert also, the dissolve-in-the-mouth kind. It works differently, so you can take both, according to my doctor.

Shrimp is OK if it's washed properly. It's sulfited on the boats to prevent black spot.

Citric acid is made by growing a common mold on corn sugar solution. You may be allergic to the corn or mold.

After the gastro and esophageal problems start do you also get heart palpitations? That's where I get into big trouble.

Quimby's Mom
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Date Joined Jun 2014
Total Posts : 6
   Posted 7/3/2014 4:39 PM (GMT -6)   
Alcie,

Thanks for the info. Something amazing happened this week: I got Vitamin B12 and molybdenum and was taking the one pill a day BUT I said to myself, "This 5,000 mcg of Vitamin B12 should be making me jittery. It's not, maybe I need more. So, since it's water soluble and doesn't build up in our systems, I took one at breakfast, another at lunch, and a third at supper. Still not jittery, but guess what? My mouth was barely burning! I couldn't believe it.

I got up this morning and decided to do the same thing today but I decided to have egg yolks for breakfast and put on the lipgloss that burnt my lips like fire last wee (it contains citric acid) and no burning! Amazing. I have the tiniest bit of burning - just like if Id had a drink that was too hot. I can't believe it. I was just despairing on Tuesday because this had been going on for a month and I couldn't imagine living the rest of my life like this.

I'm going to keep up the vitamin and the mineral three times a day for about a week and see if I can lower the dosage and have the same results.

I did get epi pens. My chiropractor told me to lay off the Benadryl because you can have troubles if you take medicines regularly. Thanks for suggesting those things.

Oh and Q or Quimby is my parrot! But I have warned my daughters to watch their ingredients.

Thanks!
Debbie

Post Edited (Quimby's Mom) : 7/3/2014 4:42:59 PM (GMT-6)


Alcie
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Date Joined Oct 2009
Total Posts : 4984
   Posted 7/5/2014 5:44 PM (GMT -6)   
Ha-ha! Polly want a sulfite?

Why should you be getting jittery? I'm not aware of that as a normal effect. I take a sub lingual pill daily and get monthly shots and have never had any side effect. It would be a good idea to see a gastroenterologist and ask for a blood test for B-12 to check your level.

I would throw out the lip gloss.

Chartreux
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Date Joined Aug 2006
Total Posts : 9661
   Posted 7/9/2014 7:51 AM (GMT -6)   
I agree with Alcie, in that B-12's should not make you jittery. Caffine will make you jittery, If you kicked the diet coke completely without reducing it that could possibly make you jittery.
I take 1,000mgs of B-12's daily as I'm so very low and I take the sublingual. But it's not for anything allergy related. It does sound like a high amount of b-12's your on.
Do you have an allergy doctor?
Sounds like the b-12's are helping, I hope this continues for you.
Keep us posted on your progress.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Quimby's Mom
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 7/13/2014 8:18 AM (GMT -6)   
I should have used the word, energetic, instead of jittery. Everything was going pretty well until last night. Picnic at my Mother in law's. I brought my own vegetable side dish and had a small amount of her pork roast. 3:30 a.m. I woke up with the burning in my mouth and the left side of my tongue swelling and my throat felt like a knife was in it when I swallowed. So, I guess pork is out? I've eaten the 365 bacon from Whole Foods successfully so maybe that roast was injected with natural flavorings.

Earlier in the week, I cut way back on the B12. One in the morning and another in the evening if my mouth was burning.

Alice - do you have problems with pork?

Thanks!
Debbie

Alcie
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Date Joined Oct 2009
Total Posts : 4984
   Posted 7/13/2014 4:11 PM (GMT -6)   
Yes, pork is naturally loaded with sulfite, therefore OUT. I can eat a couple strips of thin bacon but no sausage or ham or any other pork. With your level of allergy I wouldn't get near it. It's even worse if it's got barbecue sauce - brown sugar and vinegar are loaded with sulfites enough to send me to the ER.

I don't tolerate much beef either, also some natural sulfite, but not like pork.

No cold cuts or deli meats! Additives.

Read Rick's free online book http://www.learningtarget.com/nosulfites/index.htm I got the data book referenced on the second last page and find it useful.

Quimby's Mom
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 7/13/2014 5:00 PM (GMT -6)   
Alcie,

Thanks for the quick reply. I forgot that pork was on the naturally occurring list on Ricks site. But I've been able to tolerate a few pieces of bacon with no nitrates/nitrites so I thought pork was going to be a problem for me. I was wrong.

Thankfully, I've had both hamburg and steaks and neither bothered me at all.

Thanks again,
Debbie

ughsulfites
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Date Joined Jul 2014
Total Posts : 3
   Posted 7/17/2014 4:07 PM (GMT -6)   
Alcie,

My step-daughter was just diagnosed with sulfite sensitivity/allergy after a trip to the ER with a closing throat. You mentioned that we should wash fish - is canned tuna ok if we are avoiding sulfites?

Thank you.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4984
   Posted 7/17/2014 5:51 PM (GMT -6)   
Welcome to the forum, ugsulfites. You will get more answers if you post your own page (post new topic). There are other people here with true allergy who can tell you more about that aspect of sulfites.

According to Rick's tables (see link 3 posts above), if I'm reading them right, 2 oz Chicken of the Sea tuna has about 20 micrograms of sulfite. That's not a lot. The sulfite is sprayed on the outside of seafood, especially shrimp.

Since she has a life-threatening true allergy to sulfites I would suggest reading the online book and getting more information from the links and other pages. Even though she is allergic to sulfites in Epi-Pens she should carry one, maybe two. A second injection is often needed if it's far to medical help. Definitely get a medical bracelet. But I'm not a doctor. You need to take her to a good allergist who knows about this problem.

ughsulfites
New Member


Date Joined Jul 2014
Total Posts : 3
   Posted 7/17/2014 8:40 PM (GMT -6)   
Thank you for your response, Alcie.

Yes, she is carrying an Epi-Pen and recognizes when a reaction is beginning and can treat with Benadryl. We will get her a bracelet.

She's been to an allergist and is working her way through an elimination diet. We are reading Rick's book - just trying to understand it all.

She is making her own bread and sticking with clean fruits & veggies for now, including beans for protein. Trying to find clean options for her without going through trial & error.

Thanks for sharing your experiences - it is a good resource.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 7/18/2014 8:55 AM (GMT -6)   
to ughsulfites: depending on the age of your step child you'll need to let the school nurse know of these allergies. You'll need to do this each year, plus possibly getting a doctor's note and getting medications that you can give to the school or school nurse. Everyone will need to be informed, even for sleep overs. Do not be afraid to speak up.
*Also maybe look into getting a medic alert bracelet she can wear, and if you can't afford it then ask them as they do provide free children's bracelets...My daughter has a heart condition and we could not afford a medic alert so they sent her a free one, when we told them we couldn't afford one.

Hope this info helps.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

ughsulfites
New Member


Date Joined Jul 2014
Total Posts : 3
   Posted 7/18/2014 11:57 AM (GMT -6)   
Thank you Chartreux.

My step-daughter is an adult, but you are right. She needs to inform everyone. A medic alert bracelet has been ordered. Thanks again!
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