New to this forum- asthma issues

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worriedabouthubby
Regular Member


Date Joined Aug 2012
Total Posts : 352
   Posted 11/4/2014 10:37 PM (GMT -6)   
I have been on the prostate cancer forum since my husband was diagnosed just over 2 years ago. Just found this forum! I have had asthma for about 20 years (I'm 57). It started when hurricane Hugo damaged the roof of my classroom and the carpet molded and could not be removed. The past year has been especially difficult... and the past month very hard. Major problem with cough. I've seen my pulmonologist multiple times. I'm now on Singulair, Claritin, mucinex, symbicort, Spiriva, deliresp, tesssalon, Azithromycin three times a week, have a ventolin inhaler and a nebulizer to use when needed, additionally, I have tussinex (codeine cough syrup) to use at night. (and all of that is in addition to meds for high blood pressure, cholesterol, weight control and omeprazole so my stomach won't rebel with all those pills). I've temporarily stopped the Spiriva because it gave me such a dry mouth and didn't seem to make any positive difference.

I take care of my mother-in-law (strokes, a-fib, broke hip 3 years ago), help with my mom (knee replacement, other issues), and often have to babysit with 15 month old granddaughter. All in addition to hubby having prostate cancer. I can't afford to be so sick for so long.

One of the pulmonologists want me to have the bronchial thermoplasty and is willing to fight with my insurance company for it. But until we can get me clear for a little while that won't happen. I am getting despite. All I've been able to do for more than a month is rest! I had to stop going to my ceramics class, can't exercise, do little house work, and worry about driving very far- afraid I'll have a major cough incident and have to pull over quickly.
I realize that none of us are doctors, but wondered if anyone had suggestions for me to talk about with my pulmonologists.

Thanks for 'listening' to my frustrations. I appreciate any ideas.


Sally Walker
Regular Member


Date Joined Oct 2014
Total Posts : 29
   Posted 11/5/2014 3:49 AM (GMT -6)   
Hi there!

I feel sad about your situation. You can use natural treatments and medicines to avoid side effects. Hope you can overcome this situation and feel better.

Post Edited (Sally Walker) : 11/6/2014 2:04:21 AM (GMT-7)


worriedabouthubby
Regular Member


Date Joined Aug 2012
Total Posts : 352
   Posted 11/5/2014 10:53 AM (GMT -6)   
EDIT- I forgot to add that I have been on multiple rounds of steroids over the past year. At least 6 rounds in the last 4 months.
Hubby's details- Age 57 at diagnosis
8/27/12 PSA 81 8/30/12 Gleason 5+4=9 8/8 cores+ 9/5/12 bone scan & ct negative; surgery 10/9/12 Final stats- G 4+5=9 T3a N0Mx tumor both lobes, size 3.3x3.2x2.6x , positive margins extensive perineural invasion, extracapsular extension, no lymph node/seminal vessical involvement
11/21/12 1st post-op PSA 3.8 CT -lymph node involvement
Most recent PSA-0

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8353
   Posted 11/5/2014 8:28 PM (GMT -6)   
find some help - I know it's hard for me to give up things I did 10 years ago w/o even thinking about them - now it seems like I have to make unwanted decisions everyday about what I can a can't do -

you and your husband should be your first priority - do you both have siblings that can help with the mom's - or kids, or .......

I know that my health suffers when I'm stressed about things that are somewhat out of my control -

the only other thought is to changed your living place - maybe a healthier climate might help you both -

hope you find some answers -
diagnosed with pancolitis december 21, 2003
in submission - 2 years no meds
current supplements: vit D, cal/mag, Wild Harvest Inflamma Shield -
no gluten, rice, corn, or soy & limited sugar - just good, healthy food, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with -

worriedabouthubby
Regular Member


Date Joined Aug 2012
Total Posts : 352
   Posted 11/5/2014 10:02 PM (GMT -6)   
Thanks for the replies. My sister and her husband do help with my mom- in fact they do most of the work. My husband's brother and his wife are not able to help much with his mom. His brother is a pastor of a church about an hour's drive away. His wife comes to help when she can. What I do for my mother-in-law is not difficult right now, but I have to monitor her closely and do my best to keep her safe. I am also her power of attorney (medical and durable). She lives in the same house (in an accessible studio apartment we devised for her) as my son, his wife and their 15 month old baby. But they are both working and in school. I babysit for the baby once or twice a week when their schedules don't quite mesh with their regular babysitter. On those days I'm able to combine my visit to check on mom-in-law with the babysitting- we all enjoy that. Hubby is stable right now- again- just monitoring and emotional support. Our daughter, her husband and 2 young boys lives about 40 min. away. So I do have some family support around, it just gets tiring for everyone to depend on me sometimes, when I'm not feeling good. Especially since I've had to give up what I considered 'my time'- my ceramics class. It was my escape from the world for a bit twice a week. True art as therapy for me. I loved my instructor and she was really helping me grow as an artist. There was even talk of the college asking me to join the staff of the community college where I take the class (I am a retired assistant principal with double master's degrees).

Saw one of my pulmonologists today. He wanted to put me on lidocaine and morphine - both inhaled via my nebulizer. Unfortunately the pharmacy can't get the meds in that form. He said it was a long shot as they are usually administered in the hospital. I have a call in to let him know they can't get them and expect he will be admitting me to the hospital in the next day or two.

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8353
   Posted 11/6/2014 8:04 AM (GMT -6)   
sounds like you have some good support there - sometimes no matter what we do, life still sucks !

hope things get better soon -
diagnosed with pancolitis december 21, 2003
in submission - 2 years no meds
current supplements: vit D, cal/mag, Wild Harvest Inflamma Shield -
no gluten, rice, corn, or soy & limited sugar - just good, healthy food, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with -
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