Sulfite allergies

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look1433
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Date Joined Apr 2011
Total Posts : 12
   Posted 12/2/2014 10:28 AM (GMT -7)   
Looking for someone to share recipes and information on sulfites, & milk allergies maybe some recipes also.

Razzle
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Date Joined Aug 2007
Total Posts : 4401
   Posted 12/3/2014 6:37 AM (GMT -7)   
Email me (click the envelop icon under my name at the left). I might be able to help. I have sulfite allergies too, and my DH is allergic to milk, so I have a few recipes.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Zofran, Domperidone, Hydrocortisone, Essential Oils, Homeopathy, Herbs, etc.

Alcie
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Date Joined Oct 2009
Total Posts : 4946
   Posted 12/3/2014 11:10 AM (GMT -7)   
Welcome to the forum, look.

Razzle is the resident expert on sulfite allergy. I only have the "sensitivity."

Do you have an allergy to milk protein or is it lactose intolerance? I have the latter, and a couple of grandsons have the milk allergy.

look1433
New Member


Date Joined Apr 2011
Total Posts : 12
   Posted 12/3/2014 12:03 PM (GMT -7)   
Alcie said...
Welcome to the forum, look.

Razzle is the resident expert on sulfite allergy. I only have the "sensitivity."

Do you have an allergy to milk protein or is it lactose intolerance? I have the latter, and a couple of grandsons have the milk allergy.
.

i have milk allergy started in my fifths when I reallised I had something going on

look1433
New Member


Date Joined Apr 2011
Total Posts : 12
   Posted 12/4/2014 7:07 PM (GMT -7)   
Not sure if you have recived any of my replys

Alcie
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Date Joined Oct 2009
Total Posts : 4946
   Posted 12/5/2014 9:28 AM (GMT -7)   
I don't read the forums every day. This time of year is so busy, and I'm no professional or anything, just a grandma looking for things that will help me too.

So, how bad is the milk allergy? Is it like peanut, where the slightest trace sets you off? Or is it a matter of amount, like sulfite is for most of us? It makes a huge difference. A lot of medicines have lactose or other milk-related ingredients in small amounts.

A good reference for figuring out your sulfite tolerance is www.learningtarget.com/nosulfites/index.htm

I've done tolerance testing for wheat and my allergist has her patients do it for milk also. If you want to figure out your level of tolerance:
Start with 1 tsp milk. Wait 20 or 30 minutes. If no reaction, take 2 tsp and wait again. If no reaction take 4 tsp and wait. Then 8, and finally 16. Then stop.
This should really be done in the allergist's office for safety reasons. They have epi-pens and Benadryl on hand. Since you have a true allergy, you should be carrying those things all the time too.

I get to have about a slice of bread a week, but I'm fine with oatmeal. I tolerate about 2000mcg sulfite a day, more if I've been avoiding it religiously. For my tachycardia reaction I carry a couple of heart meds to take if Valsalva maneuver doesn't work.

Look up a lot of your questions in the search box at the top of the page - very helpful!

Best wishes.

look1433
New Member


Date Joined Apr 2011
Total Posts : 12
   Posted 12/5/2014 10:53 AM (GMT -7)   
I Truly understand I'm a grandmother also, I don't need anything right away when you have time, as for my milk allergies i'ts not and tolerance and I can have some cream in my coffee and real butter but I drink almond silk milk and as for sulfite I do cheat but not a lot it, im looking for new way to cook some dishes.
I hope have a nice holiday and send me something then, thank you.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4946
   Posted 12/6/2014 10:09 AM (GMT -7)   
Hi there, look.

I don't really have specific recipes. I just leave out the ingredients I know I don't tolerate and cook just like I always have. There's no way to cook out sulfite. The only remedy is avoidance.

If you read the link I posted you'll find a whole, free book about sulfites. Rick tells how things are processed that contaminates foods for us. There are many lists of foods containing sulfite online, just don't get hysterical and completely eliminate things that only have a tiny bit - if your tolerance isn't zero and you don't have the allergy like Razzle does.

I know I can't have corn starch, so substitute flour. Corn is fine, but processing to corn starch or syrup sulfites it. I avoid black pepper, garlic, vinegar, brown sugar, maple syrup - and other stuff you'll find in the lists. I CAN have rice vinegar! Most individual spices are clean, but avoid mixed spices. It's easy to use less sugar, and I'm OK with a small amount of CANE sugar. Brown sugar has a lot of sulfite. Avoid mustard and ketchup. I react strongly to gelatin. Keep a food diary!!!!! Lots of posts on that too.

Thanksgiving I just had to try a tiny sliver of pumpkin pie, and of course, I had tachycardia 20 minutes later, bad enough to grab my heart med and do Valsalva maneuver. At least I avoided the ER that time. I think it's the ginger, or maybe there's something in evaporated milk or the canned pumpkin that's not on the label. Ginger for sure has sulfite.

I can try eating just a tiny pinch of the mixed pumpkin pie spice or the milk or the canned pumpkin, but I need someone with me just in case. I really should try it in my allergist's office, where I've done several rounds of "challenge testing." My reaction can be life threatening, even though it's dismissed as an intolerance. I've had cardioversion a couple of times now.

A lot of doctors don't believe in sulfite intolerance - my cardiologist and my former gastroenterologist. But my allergist says she sees it often. One allergist I went to said I had no food allergies after merely doing a little skin testing. Quack!

Hang in there!

look1433
New Member


Date Joined Apr 2011
Total Posts : 12
   Posted 12/6/2014 10:33 AM (GMT -7)   
Thank you for your reply I've been doing that also eat some stuff sometimes, I don't go overboard and I don't haven,t hand any life-threatening problems yet but it can happen anytime I do have asthma.but I do have one question I use brown sugar in oatmeal raisin cookie I make but I do the organic cane Browns sugar is there sulfites in that but I didn't think it would have ?
And thank you for the help.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4946
   Posted 12/7/2014 7:33 AM (GMT -7)   
Yes, there is sulfite in all brown sugar, also in raisins. There's sulfite in all sugar, less in cane sugar, worse in brown, so it's wise to keep it under control.

If you can eat one cookie, your toxic level isn't horribly low. Read the Rick's online book to calculate how much you tolerate. It's important!

The book has information about how much is in lots of foods, so you can figure out how much of something you can eat.

Sulfite intolerance can be dangerous. Before I knew about it, I had a heart attack after eating a small bowl of cereal with dried fruit. The esophagus and stomach, and the intestines too, react to sulfite in us sensitives. This can trigger a reaction elsewhere via the vagus nerve, which connects GI system, heart, lungs, and lots more. My reaction is called cardioesophageal reflex, or linked angina. My coronary arteries spasmed, pinching an artery 95%, possibly causing a bit of plaque to rupture. I did have high cholesterol at the time, which I've now fixed.

Another reaction in other people is headaches, sometimes as long as 2 days after consuming sulfite.

look1433
New Member


Date Joined Apr 2011
Total Posts : 12
   Posted 12/7/2014 12:24 PM (GMT -7)   
Thanks I didn't know that I'm going to have to buy some books to keep on hand, have a nice holiday and hope to talk soon.
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