Hi i went on holiday around june 2014 last year and caught the sun as normal was absolutely fine untill i came home and 2 weeks later started developing a slight rash, didnt think much of it untill it started to get worse and itchier as the weeks went on, i saw my doctor and got reffered to a dermatoligist who done several blood tests and food allergy tests as they thought i may have been allergic to some foods, i was patiently waiting for the results, within 2 weeks i got the results back and everything came back fine and i was not allergic to any foods and my bloods were fine!!
Then made an appointment with the doctors again and was just given different types of anti histamines which did not really do anything, as the weeks were going on and on my rashes were getting worse and bigger to the point where i was completely covered from head to do and have had 3 cases of angiodema which caused my lips and eyes to swell up, i was given an epi pen by the doctors and had to use it within a week of getting it as my lips got big again, i have suffered from depression since i was 15 i am now 22 and have had this rash for a year, my dad put me on private insurance and have been reffered by my doctors to see a specialist in london and have been very lucky to have been given 3 treatments of xolair they work for few weeks but for me not completely gone and am still itchy, i have one more due but dont think i will be able to have as i have just found out that i am 3 weeks pregnant, i am currently on 3 tablets 180mg per tablet of fexofenadine which helps take the itchiness away but doesnt completely but have just been told by my doctor to stop taking these because i am pregnant, if i stop taking these my urticaria is going to be still so bad, i have been diagnosed with idiopathic chronic urticaria and each dcotor keeps telling me theres no cure it will go away in its own time, i cant cope anymore and now that i am pregnant i am trying to stay as calm as possible as i want the best for me and my baby but with this urticaria it is ruining my life!!!!!!
I have now been given 5 epi pens to carry around as i could have angiodema at any point as thats how bad my rashes are!!
If xolair injection was put on nhs i think it would help everyone suffering from urticaria massively as it does take most of the itchiness away which is such a relief but me doing several of these through private insurance has cost £1,200 per injection so i am only entitiled to 4 but only last for few weeks up to month, with the way my urticaria is i am going to need one every month but now that i am pregnant i really dont no what to do!!!
someone please help me!!