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dalita
New Member


Date Joined Jan 2015
Total Posts : 5
   Posted 1/1/2015 11:27 PM (GMT -7)   
i have experience chronic urticaria for 4 months now, i've had too many drs appointments, not to mention many different antihestimines and other steroids and over the counter medication. Nothing seems to work for me i am very desperate i feel like my life is completely ruined. i don feel confortable going out any more my whole body is covered in hives and they extremely itch, im starting to have problems with my boyfriend because i dont want do have sex anymore. I feel so uncomfortable with my body, dr has prescribed dapsone, i have only been taking it for 7 days but dont see any improvement. has anyone tried this medication? if so has it worked? please help me if you have any advise to getting rid of chronic urticaria

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4949
   Posted 1/2/2015 8:30 AM (GMT -7)   
Welcome to the forum, dalita.

What kind of doctor are you seeing? Did you have any testing done?

The thing you need is to find out is what's causing the reaction. Just adding medicines and maybe home remedies won't cure anything except some symptoms temporarily.

I don't have your reaction, but my allergist had me keep a journal of the time, everything I ate and drank, medicines, and my reactions, particularly within a couple of hours. Just a starting point for you to try.

Your allergy trigger could be chemicals in foods, or it could be things that contact your skin. You have to consider all your shampoos, soaps, detergents, lotions, toothpaste ..... so much more. Housemouse has a website that might give you some ideas of how to attack your reaction, although I don't want you to think you necessarily have the same allergy. www.housemouse.com/sulfites.htm

Use the search box at the top of the page to look for lots more threads in the archives. It's best not to add on to old threads. Come back to your own for more questions for the readers.

Best wishes!

dalita
New Member


Date Joined Jan 2015
Total Posts : 5
   Posted 1/2/2015 12:12 PM (GMT -7)   
Thank you for your reply alcie, i have been seen an allergist but he just does blood work nothing else. Reactions always occur at night on my sleep normally throught the day i just have what i woke up with . Its really making me depress i dont think its something im eating as i domt get any reactioms right away or within a couple of hrs its mostly at night itchness wakes me up. Im already starting to loose hope, nothing seems to help :/

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4949
   Posted 1/3/2015 9:29 AM (GMT -7)   
Don't give up, dalita!

Didn't the allergist do any skin tests? Blood tests aren't very accurate.

Even if you aren't having reactions within a short time of eating, you have to continue to investigate. People who get migraines from sulfites sometimes react up to 2 days after ingesting them.

Housemouse has a good website where she tells of the reactions she has to detergents, soaps and shampoos, skin products and more. I don't tolerate clothing or sheets unless they are washed in non-fragrance and color detergents and double rinsed. I get horribly itchy on hospital sheets!

You might want to look into your bedding - sheets, blankets, mattress pad, pillow, even the materials in the mattress since you get itchy at night. Do you shower at night or put on any creams or lotions or take any medicines in the evening?

Searching for your reaction trigger will take time, probably months. This is why I recommend keeping a notebook. I keep mine on the kitchen counter and write in it first thing when I wake up and throughout the day, particularly noting connections between different things I've consumed or new reactions. Since you get itchy at night you could pay particular attention to what you do in the evening.

Good luck, hang in there!

1day@aX
New Member


Date Joined Jan 2015
Total Posts : 1
   Posted 1/3/2015 7:52 PM (GMT -7)   
dailita,

I have had urticaria for the past 14+ years. I can completely identify and empathize with you. I cannot describe how distraught it can make you feel when your body is constantly itching and then finding no answers for a cause.

I can only offer my experience. Hopefully, it will be of help to you. My urticaria seems to come in flares. When urticaria is active, it always reappears as a rash in late evening; flat red spots, hives and swelling on the bottom of my feet, ankles, palms of my hands and arms, tops of my legs. I itch uncontrollably. Over the counter medications and creams are a joke! I also have chronic asthma, sinusitis and Sampters. Most of my allergies are to drug related to Aspirin and all inhaled cortisone and steroids.

The first medication that saved me from insanity was Zyflow CR. Almost instantly after taking the first dosage, my rash subsided and was able to stop itching. This was a huge blessing because I had suffered for YEARS of uncontrolled itching and no answers! I know also take Hydroxicine (up to 100 mg. at night) depending on severity of the flare up.

I also receive a monthly injection of Xolair which up until recently was used to treat asthma. However, GREAT BREAKTHROUGH....In 2014, the FDA also approved it from chronic urticaria! There is no cure for urticaria and sometimes you never find the allergic trigger. I don't want to paint a perfect picture with these medications but they have helped me to tolerate things. Learning to live with chronic illness is a journey; having to determine what works for "you" and balancing that with what medications may help to bring best quality of life is most important, in my opinion.

I would recommend you finding an allergist. And if you do not find answers, find another doctor. Keep searching until you find a good doctor who will listen.

You will be in my prayers!

dalita
New Member


Date Joined Jan 2015
Total Posts : 5
   Posted 1/3/2015 9:32 PM (GMT -7)   
Thank you so much for your response, with doing some research i came across xolair I will be calling my dr on monday to see if that is something we can try as i have been trying a lot of medication and nothing seems to work. Xolair seems to have help others I really hope that is something I can try, i have been suffering for 4 months already and I hope and pray it doesnt last for years !!

Toussa
Regular Member


Date Joined Oct 2014
Total Posts : 44
   Posted 1/9/2015 9:49 AM (GMT -7)   
Hi,
I don't want to sound like an alternative medicine person because I am not, however I do believe diet has a lot to do with illnesses that strikes us. Have you ever watched "Fat, sick and almost dead"? If not, you should (it is on Netflix) because the guy in the documentary (other than being over weight) he had terrible chronic hives to the point that he said he can no longer even shake hands because anything can trigger his hives. He went on a one month organic juicing only diet (basically vegan diet) and somehow all his hives cleared out 100%... Give this documentary a try, if it does not help, it will not hurt you... Good luck
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