difficulties with rescue meds

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comealongway
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 1/9/2015 8:56 AM (GMT -6)   
I was given the perscription for Xopenex because I had such problems with Albuterol causing my heart to race ( nearing 200 when laying down & resting) but now I've been having similar problems with the Xopenex. The doctor says I have to have it...so I assume there is no other alternative. It scares me just as much to take my nebulizer as it does to have a bad attack that requires the neb. treatment in the first place. I can't even take enough for my lungs to calm down before I watch the heart rate jump to 140+ while just sitting. If I stand up, I almost feel like I'll pass out. I end up spending the next couple hours just trying to breathe calmly, hoping it will help my lungs and my heart. Once all is calmed down, I feel absolutely exhausted. Not fun.
Anyone else have this problem? What do you do?
Is there no other alternative med?

Toussa
Regular Member


Date Joined Oct 2014
Total Posts : 44
   Posted 1/9/2015 11:27 AM (GMT -6)   
So sorry to hear about this. My heart rate goes up but no more than 100 at rest so my doc said there is nothing to worry about. Would it be possible for you to get a second opinion from a different doctor? that would probably help you...
Good luck and keep us updated

comealongway
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 1/9/2015 3:06 PM (GMT -6)   
Thanks for your kind reply. I have finally obtained a referal to ai pulmonologist and hope to get some good and knowlegable help there. I have a lot of medballergies which complicate what I use for my daily long I will let you know if I get any answers.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/9/2015 11:45 PM (GMT -6)   
Have you tried long term mainetance medications? Sure hope your doctor can give you a long term/acting medication...keep us posted...
I have bad shaking from albuterol and like the Xopenex better...but you need to talk about medicines with your new lung doctor...many well wishes...
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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comealongway
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 1/12/2015 11:23 AM (GMT -6)   
Chartreux - yes, I do have long term maintance meds, but have been having a hard time finding a good one. The doctor put me on Advair with Ipratropium, and besides the inconvience of taking my nebulizer three times a day plus my inhaler(s), it seemed to be ok...until about two weeks later when I started finding little patches of unexplained hives showing up in various places all over. When I started to have swelling in my fingers, however, I quit the ipratropium. The hives and swelling clear up. Then later on, I started having numbness on my tongue and lips as well as my cheeks/face...I didn't know if that was from the Advair or not, so I went back to my Qvar. My doctor didn't know either and so he seemed pretty happy when I asked for a referal to see a pulmonologist. He thought I should also see an allergy specialist but I'm not too eager to do that. I've been through a lot of allergy testing and it's not something I like. :P I have to call today and see if they got me an appointment yet. The office here is pretty slow.
Thank you for your kindness.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/12/2015 3:04 PM (GMT -6)   
Maybe start a journal on what medications you've tried and your reactions to them. Start with the lung doctor to see how he/she might be able to help...Ask your lung doctor if an allergy doctor is a good next step... I can't tolerate that Advair either I actually had a asthma flair on it... there are other medications and you will find one that'll work for you, keep positive on that.. keep us posted on your doctors visits...
Many well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Fuyuko
New Member


Date Joined Jan 2015
Total Posts : 11
   Posted 1/17/2015 7:00 PM (GMT -6)   
I'm sorry to hear that. I can't use rescue inhalers or other inhaler for asthma because of side effects. With rescue inhaler Ventolin I got tingling fingers which was listed as a serious side effect. I hope you find something that works for you soon.

comealongway
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 1/20/2015 8:32 AM (GMT -6)   
I finally have an appointment with the pulmonologist, but it's at the end of March and that's as soon as I can get in... I requested to also be put on the cancellation list, but was told there are about 10 others ahead of me. I'm not sure what to do. :(

Fuyuko
New Member


Date Joined Jan 2015
Total Posts : 11
   Posted 1/20/2015 9:06 AM (GMT -6)   
Can you see someone who is in another city? Maybe it would be worth the commute. That is what I'm thinking of doing.

I think the journal is a good idea. I'm going to start doing that too, although I keep a daily excel sheet of my health to log what is working and what doesn't, I don't have one specifically for meds.

I am sort of in the same situation. My allergist has been unable to help me with my reactions to the medication, and I think he's frustrated. If he is frustrated, it is more frustrating to me, because I can't seem to tolerate standard treatment.

I hope you find relief soon.
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