Need Help..Bad perfume allergy

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Poppie
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Date Joined Feb 2014
Total Posts : 2120
   Posted 1/15/2015 1:27 PM (GMT -6)   
Hi Folks! Around ten years ago I had to have Immunotherapy (allergy shots) for a severe allergic reaction to perfume. It worked very well for me. Now unfortunately it has come back with a vengeance, and of course I blame my Ulcerative Colitis for that! my immune system is not what it should be.

I am now in the position of not really being able to go out freely as one whiff of anyone's perfume can cause a terrible migraine which only bed rest can help...I am a little worried about repeating the treatment again bearing in mind the Meds I now have to take. I looked online and read something about allergy treatment drops, which enabled you to self medicate by taking the drops under your tongue, and so I am wondering if anyone has any information that could help me...

I am quite miserable as this is stopping me from leaving the house!!! it has just gotten worst and worst lately, so any help would be appreciated. sad
Samantha, 45 yrs
Stopped smoking Jan 2013.
Diagnosed. Left sided UC, 8th Feb 2014
Pentasa..2g daily
2 x Ultimate Flora 50 billion probotics, Vit D, and Multi vitamin tab daily.
Gluten free from Sept 2014

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4984
   Posted 1/15/2015 8:18 PM (GMT -6)   
The drops aren't available from all allergists, and they are probably expensive. I doubt they're in your insurance's drug formulary.

Don't buy anything online yourself. They won't be regulated and there's no telling what's in them!!!

I asked about what's in my allergy shots because I am sensitive to preservatives and gelatin. I was told nothing but the allergen and water. Ask your allergist!

If the shots worked before they should work again.

Do OTC antihistamines help? I don't have perfume "allergy," but I am sensitive to perfumes and lots of chemicals in the air. That's partly why I live in the country now.

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2120
   Posted 1/16/2015 9:17 AM (GMT -6)   
Thanks Alcie,

Antihistamines can help people with immediate problems, but I need something that will work continuously, long term, and the allergy shots would probably work again, and I may ultimately have to go down that route but I don't like the idea of having to drive to the hospital twice a week, and it will probably cost me a fortune no doubt, as I have no medical insurance I have to be careful.

I found this company online yesterday..

http://allergyreliefsolution.com/?cat=11

It looks like a reputable company and the small bottles aren't ridiculously over priced, and it is one company that offers a solution to the perfume allergy (as not all of them do)

I think I am going to give it a go!!..I live in a third world country where I have relied on doctors in the past, and wished I had not! and so I have learned the hard way, which is to try to find solutions for myself. If this proves to be useless I think I will make an appointment and go see the local Homeopathy doctor, as I have had success in the past with homeopathy treatment for other ailments.

I live at the top of a mountain, and so like yourself the air is pure, perfect actually. The problem arises only when I have to go out food shopping, all it takes is for someone to be standing near to me that is wearing perfume, deodorant, hair gel, body lotion, anything slightly perfumed really, and within seconds it can make me very ill.
Samantha, 45 yrs
Stopped smoking Jan 2013.
Diagnosed. Left sided UC, 8th Feb 2014
Pentasa..2g daily
2 x Ultimate Flora 50 billion probotics, Vit D, and Multi vitamin tab daily.
Gluten free from Sept 2014

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4984
   Posted 1/17/2015 7:27 PM (GMT -6)   
The article looks like a possibility! I've been reading about this idea for a while, just haven't heard about them being available. Are there any directions, like how many drops to use, building up tolerance - like the shots? Are you supposed to drink anything after taking drops?

Allergy shots aren't usually given 2x a week. Once is enough. Once you get to your highest tolerable dose you stay there for a while. Then you can drop back to bi-weekly and maybe monthly. In allergy season, if you have a pollen season that bothers you, you should go back up to weekly. It beats being miserable.

Before the government here in the USA got it's fingers in the pie, I gave myself the shots in my thigh when a trained person wasn't available. Now we're supposed to go to the doctor's office. If rules are different where you are, see if you can get the vials, kept in refrigerator, and do it yourself or get spouse or somebody who knows how to inject. The shots are just subcutaneous, under the skin. They don't hurt much. I figure if diabetics can do it, I can too.

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2120
   Posted 1/18/2015 7:05 PM (GMT -6)   
Alcie, I would imagine that there will be instructions with the drops, although I intend to proceed in much the same way as I do with homeopathy drops, which means no eating or drinking ten minutes before and after treatment.

Anyway if they don't work I will definitely have to go for the injections, as quite honestly I cant live like this, its terrible. I gave a lift to a guy I know the other day walking up the mountain and by the time I had dropped him off I felt so ill I had to have a lie down, and its not like he was even wearing a lot of aftershave, I think it was deodorant or something. Its a crippling condition to have, and if these drops work I will post on here and let you know.
Samantha, 45 yrs
Stopped smoking Jan 2013.
Diagnosed. Left sided UC, 8th Feb 2014
Pentasa..2g daily
2 x Ultimate Flora 50 billion probotics, Vit D, and Multi vitamin tab daily.
Gluten free from Sept 2014

Contentprof
Regular Member


Date Joined May 2014
Total Posts : 412
   Posted 2/7/2015 12:29 AM (GMT -6)   
Hi Poppie -
Good luck with that. Interested to hear how it goes!
have allergic asthma (on top of UC). One of my triggers is perfume. My throat closes & I need albuterol inhaler. It's bad. I do allergy shots for dust, molds, certain trees, but chemical irritants like perfume get me every time.
55 yrs old. UC >12 yrs after proctitus. For flares failed prednisone, cortenemas (too little too late), mesalamines (hives, fever), 6mp (fever), Uceris (no effect). 12/13: remicade stopped severe flare! 6/14: i stopped remicade due to debilitating joint pains & weakness. Dx: Anti-TNF Induced Lupus; polyneuropathy; recovered w/prednisone (40mg then very slow taper ~ 4 months). Next UC meds?

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2120
   Posted 5/3/2015 2:25 PM (GMT -6)   
I thought I should give some feedback on how things went.

When I received the bottle from "Allergena" marked "Allergy relief from Fragrances, Smoke and Pollutants" It stated that I needed to put 12-15 drops under my tongue, 4 to 6 times a day. I decided that was too much, as I have a belief, that less is more with homeopathy, well at least that is what I have found to be true for me anyway.

For the first three days I administered it three times a day, then on the fourth day I ventured out to test it, to see what would happen as I walked around the supermarket, and coming into contact with perfume wearing shoppers! As I approached the isles that sell washing powders and cleaners, etc, I was immediately knocked out by the smell of the various products, and as I moved on by, I passed a lady wearing far too much perfume (they really slap on a lot of very cheap and nasty perfume here!) and immediately started to notice my hands beginning to shake very slightly, whilst at the same time also feeling a slight weakness in my knees, along with some perspiring, but no headache, which was an encouraging initial test result!

I made sure I used the homeopathy treatment every day, even if I was not going out, and I started off using it twice a day for about a week, and then once a day.

The next trip to the shops was even more positive, I could smell the detergents (like a bloodhound!) but this time I had no trembling, or sweating, and still no headache, however I didn't feel entirely 100%, however still considered this to be another encouraging result.

All this occurred a while ago, and now I just use the allergy drops when I am heading out to the shops, or if I have not used them for a few days, as I feel I should always have a small amount in my system.

Now I can go out and about with confidence, and not have any problems at all, which is great, and a very positive outcome, as I previously suffered badly with this issue, and would therefore recommend this to anyone that is encountering similar problems, and is feeling down, and is desperate for a solution. As always I would like to make it clear that no guarantees can be made, as we are all different, and what might work for one person, may not work for another. I myself have always had a good reaction when using homeopathic remedies and treatments, however, perhaps some of you reading this might not have had the same positive experience, and therefore it really is 'horses for courses' as the old saying goes.

I hope this is useful, and perhaps helps some other sufferers.

Here is the link to their site...

http://allergena.com/
Samantha, 45 yrs
Stopped smoking Jan 2013.
Diagnosed. Left sided UC, 8th Feb 2014
Pentasa..2g daily
2 x Ultimate Flora 50 billion probotics, Vit D, and Multi vitamin tab daily.
Gluten free from Sept 2014

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4984
   Posted 5/3/2015 6:53 PM (GMT -6)   
Is that the way the drops are supposed to work? From the little I have read it sounded like you took the drops just the same way as the shots, starting with a small amount once a day or a week or something and building up strength, but you don't stop taking them weekly or bi-weekly, just like you don't stop stop the shots. In pollen season I'm supposed to take my shots weekly and in winter I can cut back to bi-weekly.

Poppie
Veteran Member


Date Joined Feb 2014
Total Posts : 2120
   Posted 5/4/2015 4:32 PM (GMT -6)   
Alcie, I started off taking the drops 3 times a day, then I reduced it to twice a day, then every other day, and then every few days or just when I was going out, and so I started off high, and then reduced it over time.

I still can't believe it works, but I have a feeling that if I completely stop taking this it could creep back in, which of course would be awful. Today I had to sit and wait for someone in their reception area and the receptionist had a very strong smelling perfume which made me wonder if I should wait outside as it was very strong, but I decided against it, and I was absolutely fine!!!
Samantha, 45 yrs
Stopped smoking Jan 2013.
Diagnosed. Left sided UC, 8th Feb 2014
Pentasa..2g daily
2 x Ultimate Flora 50 billion probotics, Vit D, and Multi vitamin tab daily.
Gluten free from Sept 2014
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