Anothe Sulfite Thread

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notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/1/2015 5:01 PM (GMT -7)   
Hi all,

This is my first post here. So a little background. Most of my life I haven't felt that well. I've always had a little fatigue, but I've also had a lot of sinus problems, ear aches, headaches... also some psychological issues like amxiety and depression. On three different occasions I've had unexplained anaphylactic (sp?) reactions that involved trips to the ER, but no explaination could ever be found as to what caused them and I was never referred to an allergist.

Seven years ago I started having breathing problems, throat tightness, and heart palpitations. I saw an ENT doctor for a bit and he was able to clear up the sinus issues to a degree. Over the time I saw him the infection kept coming back and the last time he told me that if it came back again I'd be looking at surgery. I didn't want that so even though it came back just 6 weeks later, I didn't go back. I've been keeping it managed with nasal irrigation and a few herbs here and there.

Fast forward to two years ago. I'd finally gotten tired of being tired, anxious and depressed and having doctors basically fob me off over and over again. So I started seeing a naturopathic doctor. He has been amazing. One of the first things he did was to put me on a natural antidepressant with 20,000% the RDA of the methyl B12, plus the P5P form of B6 and methyl folate as well as a few other things. That alone made an improvement.

He also had me do a saliva test and I found that I have stage two adrenal fatigue so I'm taking a supplement for that which has helped with my insomnia. He did have me try to go gluten free for a bit, but I actually felt worse which really frustrated him. I know why now, the soy, corn and potato starches used in so many gluten free foods. Wheat actually doesn't bother me as long as it's sprouted and has no mollasas. Finally, he told me that he suspects delayed food allergies. There is a list of foods that I've avoided for some time and he told me to try and eat a little bit of them so that I'd have some of the proteins floating around for the test to pick up. So all that weekend I'm eating all this stuff that I usually avoid and getting sicker and sicker. I was so glad when that weekend was over. Had the blood taken that Monday. Then I saw my therapist on Tuesday and I still looked like I'd been hit by a truck.

I was so convinced that this test was going to come back with all these allergies, but no! What came back was that I was allergic to most of my safe foods. That was six months ago. In these six months I've tried eating all these other things and not my safe foods and I keep feeling worse and worse. I've heard that if you eat something a lot it can cause a false positive on a blood test and I wonder if that's what happened.

So so I've been avoiding these foods that I'm supposed to be allergic to and eating the ones that I'm not supposed to be, but just like the gluten free experiment, I keep feeling worse and worse and keep having these random allergic reactions. So my ND said he was stumped and I finally got the referral to the allergist after like 20 years of this.

The allergist did the regular skin tests for most common allergens and nothing came up. Then he asked me to list some of the foods that bother me, and I told him that a lot of them make no sense.

So what bothers me?
Almost all condiments, mayo is probably the least offensive.
A lot of breads, but not all.
Dried fruit, but not prunes.
Some fish.
Almost all shellfish.
Almost all cured meat like bacon, ham or sausage.
Beer and wine, but not tequilla.
French fries, but not baked potatoes.
Most corn products, but not corn itself.
Anything pickled.

The pickled stuff bothers me so bad that when I have to cut the pickle spears at work I itch. I wear gloves so I don't touch them and I certainly don't eat them, but just the fumes makes my face itch. I also itch when the fry guy opens the oven to pull out the fries. I had not wanted to tell the allergist about that because it just sounds so absolutely nutty, but as soon as I told him that. That's when he said, "I know what your problem is. You're allergic to sulfites." He then told me that there's no really reliable test for sufite allergies, but from what I told him, he didn't think it was necessary anyway.

So here I am. Congratulations, if you got through all of that.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 3/1/2015 5:40 PM (GMT -7)   
Welcome to the forum, notdebby.

It sounds like you have done quite a bit of research and found some of the things to avoid. It also sounds like you may have the "true allergy" and not just the "sensitivity" to sulfites.

Your allergist is right. Stick with that one because not even all allergists believe in sulfite allergy.

Yep, prunes are OK, also dried cranberries and apple slices that are labeled no preservatives.

Bread isn't the problem, it's the "dough conditioner." If you bake it yourself you can probably eat it. Even bakery bread, unless it comes from one of the few bakeries that doesn't use preservatives, is all sulfited. Just about all chain grocery store bakeries get their dough frozen and I react to all the ones I've eaten. Pizza crust and many types of tortillas, some labeled, some not. Lemon juice in bottles is highly sulfited, but frozen is clean.

I just put up links to informative sites on a previous sulfite post. If you find those and look at Rick's no sulfites book on his website and go to the links page, you will find Housemouse's link with her story about true allergy effects.

There are MANY threads on this forum about sulfites, so read and read.

We're glad to have you here. Let us know how you're doing!

jaminhealth
Regular Member


Date Joined Feb 2015
Total Posts : 250
   Posted 3/1/2015 5:42 PM (GMT -7)   
I take P5P, methyl B12, extra folate daily for now going over a year. I'm 76 and doc has been checking homocysteine levels and they have been elevated so the above help reduce homo.

I've been taking Grape Seed Ex for going on 20 yrs and can eat almost anything, but I don't....I've cut out wheat/grains (read Grain Brain by Dr. Perlmutter) and Wheat Belly by another doc. I have not brought bread into my house for over 3 yrs. Don't need it and don't want it. Fudge now and then with a bagel or personal size pizza but not often. Bagel can last me a couple days.

Anyway, I've worked with alternatives for my health about 25 yrs. J

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/1/2015 6:36 PM (GMT -7)   
Thanks guys. I just saw the allergist on Thursday and I've been doing loads of reading since then.

I don't really eat grains too much, mainly because of the reactions I have, but also because I try to do low carb 6 days a week. My cheat day is Saturday and I might have some sprouted wheat toast and a banana for breakfast or something like that. And I like to have a can of soda on Saturday too. I was having the Mexican Coke since it uses cane sugar and it didn't seem to bother me as long as I limit it to just one. I've recently switched to Coke Life which uses half cane sugar and half stevia and now I can have one with lunch and one with dinner. I try to be good the rest of the week.

One thing that kind of compounds my problem is where I live. I live in Fairbanks, Ak. Fairbanks sits in a windless bowl and there is a coal burning power plant right in the middle of town. On top of that there are the auto and residental heating emissions. In the winter our SO2 ppm can get as high as 965. With the foods, my reactions seem to be delayed. Some are quicker than others. My throat gets tight within half an hour with fries, same with wine., but it could take half a day for bacon to bug me. Soy is another problem food, but it doesn't start until the next day, usually. I know most of this because my ND has had me keep a diary at various times.

The fumes though, that is immediate every time. Whether it's the fumes from the fries or pickles at work or the SO2 outside. As soon as I come into contact with them, I either start itching or my throat closes up and I start having trouble breathing.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 3/2/2015 9:35 AM (GMT -7)   
I can't eat soy either. It's the processing. I'm fine with the fresh soybeans. I don't drink any sodas at all.

How about oatmeal? I'll bet the problem with grains is the processing and additives they don't tell you about.

Sorry about the SO2. about all you can do, besides move, is wear a respirator that has a filter that will remove it, or stay indoors. Maybe there's a filter you can put on your furnace that will catch some of it?

I'm OK with a little bacon, but sausage will trigger my reaction. Pork chops or roast or ribs are out of the question.

With most of us, it's the total sulfite for the day, not just one meal. If you go to Rick's no sulfite site he shows how to calculate how much you tolerate and how much is in products.

Do you have any stomach reaction, or heart or intestine problems? My most dangerous reaction is tachycardia, which has sent me to the hospital several times.

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/2/2015 6:47 PM (GMT -7)   
I'm pretty sure you're right about the processing with the grains since I can have sprouted wheat bread with no problem and whole corn. I like to have oatmeal on the weekends too. I haven't noticed any issues even with the kind that has a small amount of dried apple, but I'm going to watch for it.

I also don't do well with any kind of pork at all. We had ham for New Years and I had a doctor's appointment the next day. My blood pressure had shot up to 134/87. My normal is 110/70, but yeah, cured meat will do that just about every time. Obviously, cured meat is the worst, but just a regular pork chop can do it too. I'm thinking that may be something I can only have when I've been super good the rest of the day, because there have been times when it hasn't bothered me.

I do have stomach reactions. I get the runs really easily if I have something I shouldn't. And of course, cramps and all the other nice stuff that goes with that. I had some kombucha once because I was told all about how healthy it was for you and all these great health benefits. I had a 16 oz bottle. It took 4 days to get over that. NEVER AGAIN.

I also have heart palpitations and my heart rate does go up, but not tachycardia high. I run right around 70 to 75 bpm normally, but eating the wrong thing raises it 10 to 20 bpm depending on how bad it was.

I saw the allergist again today. When I had those skin prick tests done on Thursday, they all came up negative. However, this weekend one of them flared up and it was still there today. I wasn't sure if it was a problem or not so I went ahead and called and he wanted to see it. So I do have a positive for bluegrass. I've already looked to see if there was any food cross reactivity with bluegrass and the most common is apparently sunflower. I already knew that I have an IgG reaction to sunflower from the blood tests I had run before. So that's nothing new really.

I'm currently working on figuring out what my limit is. Honestly, I'm sure I've been going way over it lately because the throat tightness, that's my big gage, is there when I wake up in the morning for going on a few months now. It never goes away. It's not as bad in the morning, but as the day progresses, it gets tighter and tighter. Around the time of the New Year's ham, it got so bad I could hardly breathe and it hurt. It hasn't gotten that bad lately. It just won't go away. Along with the throat tightness, I seem to have a constant earache. It's only on the right side though. Go figure.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 3/3/2015 7:07 AM (GMT -7)   
If you read Rick's book, you'll learn that pork has natural sulfite in it. Beef has some too but not as much.

I just became allergic to grass a couple of years ago when the pollen count was very high, and now I have it added to my allergy shots.

I have a "true" allergy to sunflower seeds, throat closing. The oil doesn't have the protein, so if it's pretty pure it's ok.

I never eat cold cuts anymore. The caramel color in all of the meats is enough to set me off. Before I knew what my problem was I used to love barbecue spare ribs. I always felt awful, couldn't walk back out to the car afterwards. Pork, brown sugar and all the other stuff in the sauce!

When my heart rate goes up it's 130 or more. I do Valsalva maneuver and often I can get it down. If it stays above 145 for at least 2 hours I have to go to the ER. My cardiologist gave me a prescription to take when the rate is high and Valsalva doesn't work.

I avoid all drinks with coloring (especially yellow #5), artificial flavoring, sugar substitutes, including stevia, because they all have dextrose. Even barium for swallow test doesn't come in a clean version anymore.

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/3/2015 6:49 PM (GMT -7)   
I have read Rick's book. It has a lot of great information. He has the pay one too. Have you read it? Should I try to get it?

I'm still kind of trying to wade through exactly what bothers me and what doesn't at this point. The stuff I mentioned above most certainly does, but I'm not 100% sure about the caramel coloring. I haven't ever noticed it anyway. And there are things that are just bizarre, like black tea is a no-no, but I do fine with green.

I really don't do well with most meat. Pretty much any red meat makes me feel bad, pork most certainly being the worst of the worst, and I don't do much better with white meat poultry. I can, however, tolerate dark meat and some fish. I've just recently read that dark meat and fish (as long as it hasn't been treated) are the meats with the least amount of natural sulfite. I was pretty well convinced that I had a meat allergy and told my ND. He said that there was no way since the proteins in beef and pork are different and chicken is even more different and if I can't eat the breast then I shouldn't be able to eat the thigh. I told him I didn't know, but that's just how it is. He's a good guy, but I know I've driven him crazy with all this.

I also wonder if you can react more to one sulfite over another. There are supposed to be 6, right? I mean, the meat thing doesn't seem to have to be much at all, but like I said, I've never noticed caramel coloring bothering me.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 3/4/2015 7:03 AM (GMT -7)   
Sulfites are found in many molecules, but it's probably the sulfite anion that is the problem. The cations are things like sodium or potassium, the first part of the molecule, and these break apart just like they do in table salt NaCl, sodium chloride.

I used to be able to tolerate sulfa drugs, but seem to have lost some of this tolerance. I was OK a couple of days ago taking one for a bad sinus infection, but reacted to it yesterday. It's about the only type of drug that hits sinus infections effectively. I'm hoping to take a half, with food, today because it is working.

I won't tell you to buy anything. I did because I needed information on the drugs he's studied. I read and re-read the free one for a couple of years before doing that though. Most of what you need to know is free. Check out other sites too, because there is a lot more information than there was 10 years ago when I was looking for help. You can put up the name of a drug or a food and the word "sulfites," and find information now. Just don't bother with blogs or forums. Rick does answer questions sometimes, but he's a real person with a real job besides doing this.

Check the labels on your teas. I'm fine with black tea, but there are some brands with sulfite on the label!

Caramel coloring is in way to many products. That's why I avoid colas completely, but I tolerate one can of sodas without added coloring.

A lot of our chickens are coming in from China now. No telling what's in them. Ask your butcher. I only buy American apple juice and fruit in glass jars for the same reason. They probably won't even know in the big chain stores.

Share some websites with your ND. I won't go to them, but then, I have a very experienced allergist, and I've been dealing with this for a long time.

jaminhealth
Regular Member


Date Joined Feb 2015
Total Posts : 250
   Posted 3/4/2015 2:39 PM (GMT -7)   
Sulfites and Sulfa are no no's...

Sulfates and Sulpher are OK. I take MSM daily 1 tsp 3 times per day in clean water for OA and Fibro pain and in the book the Miracle of MSM the author talks about MSM for pain relief and allergies, sinus issues and more....

I know MSM helps so much for my healing. J
OA from age 18 to late 70's....complications from hip replacement in 2010...such a terrible outcome.
Fibro dx in 1999

All all the other "stuff" most deal with....I take 95% supplements for my health care...
Grape Seed Extract and or Pycnogenol have been lifechanging for me, 20 yrs on them soon.

Love the SOM and AA Principles....

Keep it Simple, Progress Not Perfection, One Day at a Time..

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/7/2015 10:13 AM (GMT -7)   
I went ahead and ordered Rick's print book today. My reasoning was because it is my understanding that the book has lists of foods with their sulfite content. In the winter time when the SO2 here is so high and I have to deal with so much environmental sulfite, my tolerance for any kind of food added sulfite seems to drop to pretty much nil. I seem to be able to tolerate a lot more in the summer time.

minisan5
New Member


Date Joined Mar 2015
Total Posts : 7
   Posted 3/7/2015 10:50 AM (GMT -7)   
Could you tell me where you were able to purchase Rick's book?  I've been trying to buy for a while now, but haven't been able to locate.  Thanks!

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/7/2015 11:27 AM (GMT -7)   
http://www.learningtarget.com/nosulfites/store.htm

I got it there. Since I only ordered it today, obviously it hasn't arrived yet, but I did get a confirmation email.

jaminhealth
Regular Member


Date Joined Feb 2015
Total Posts : 250
   Posted 3/7/2015 12:39 PM (GMT -7)   
A good informative site on OPC's and sulfites:

www.azmacare.com/
OPC Antioxidant is derived from grape seed extract and pine bark extract. OPC is ... Many people with asthma are sensitive to food additives known as sulfites.


I'm headed into my 20th year on these OPC's...grape seed ex and pycnogenol.
OA from age 18 to late 70's....complications from hip replacement in 2010...such a terrible outcome.
Fibro dx in 1999

All all the other "stuff" most deal with....I take 95% supplements for my health care...
Grape Seed Extract and or Pycnogenol have been lifechanging for me, 20 yrs on them soon.

Love the SOM and AA Principles....

Keep it Simple, Progress Not Perfection, One Day at a Time..

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/7/2015 1:59 PM (GMT -7)   
I'm definitely going to ask my ND about grape seed extract when I see him next.

minisan5
New Member


Date Joined Mar 2015
Total Posts : 7
   Posted 3/7/2015 3:16 PM (GMT -7)   
Thanks notdebby!  I had looked there previously (a little while ago) and the book wasn't available.  It looks like it is updated with a lot of new information.  Probably something worth having as a reference...

minisan5
New Member


Date Joined Mar 2015
Total Posts : 7
   Posted 3/7/2015 3:33 PM (GMT -7)   
Does anyone know if cornmeal contains sulfites?  I know corn starch is a big no-no, but how about cornmeal.  Supposedly it is non-gmo, organic...  It seems to make me react a little bit, so I am not sure if it is a sulfite thing or possibly an intolerance to corn.  Any feedback would be appreciated!

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/7/2015 8:00 PM (GMT -7)   
I know I react to regular cornmeal like what's in Jiffy mix. I'm don't think the organic stuff bothers me, but I'm kind of new to this and I'm still sorting out what does and doesn't cause issues. I know that all the biggies do. I'm just not sure about the lesser stuff.

I have a question too though. Does anyone get extreme thirst as a reaction? My throat tightness is my biggest symptom and it seems to get tighter and tighter as the day goes on if I'm not careful. It also seems like the tighter my throat gets, the more thirsty I get.

marry the night
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 3/11/2015 12:46 PM (GMT -7)   
Can anybody drink almond milk? If so what brands? Almond Breeze?

minisan5
New Member


Date Joined Mar 2015
Total Posts : 7
   Posted 3/11/2015 3:54 PM (GMT -7)   
I get bad heartburn with almonds, so I wasn't too surprised that almond milk didn't work out for me.  I usually have organic lactose free milk since that has agreed with me best.  However, it isn't a good alternative for those avoiding dairy.  Oat milk is the only other one that seems to be ok for me - although I have never consumed it in large quantities.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4948
   Posted 3/12/2015 5:58 AM (GMT -7)   
From a quick review of lists of sulfited foods on the 'net, it seems that cornmeal is indeed sulfited. I haven't consumed it myself except as a minimal coating on English muffins, so I don't know if I tolerate it.

I'm fine with Almond milk, but I don't like it. Lactose-free works for me.

Watch out for anything made from ground corn, like tortillas. Some have so much sulfite it's on the label.

minisan5
New Member


Date Joined Mar 2015
Total Posts : 7
   Posted 3/27/2015 1:22 PM (GMT -7)   
Hi notdebby,
 
I was wondering if you found Rick's paper copy book helpful and worth the money?  I have been going through a rough patch (mainly with digestive issues) and am considering buying it.  Please let me know!  Thanks!

notdebby
New Member


Date Joined Mar 2015
Total Posts : 11
   Posted 3/29/2015 11:17 AM (GMT -7)   
It seemed to be worth it for me since he lists lots of foods and their sulfite content.
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