Allergy testing negative - help!

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Aaaaammmmmyyyyyy
New Member


Date Joined Mar 2015
Total Posts : 3
   Posted 3/10/2015 4:46 PM (GMT -6)   
So I've been dealing with what I thought was chronic allergies for years. Constantly stuffed up, very congested, post-nasal drip, etc etc. I've been on constant anti-histamines for years, with which I've had varying success. The allergies are year-round and I also frequently get colds. My nasal passages are apparently super, super swollen. I had a CT scan of my head to check for polyps and sinus inflammation, which was normal. I recently also reacted to a vaccine. I got a flu and pneomonia shot and, below where I got the shots, my arm got VERY red and swollen. I ended up at urgent care on prednisone and antibiotics. I showed both doctors a picture of that reaction and I had to email it to them. They're going to give me a patch to wear with different ingredients in the vaccines to see if I react.

I also developed a chronic cough early last fall. At first, allergy medicine helped, but then nothing helped. After a great deal of testing I got two inhalers (flovent and albuterol) which both seemed to help. The chronic cough basically went away. I also take Singulair now, and I have a nasal spray. I've had a spirometry twice, which was normal.

Today I finally went to an allergist for testing. I've been under the impression that I have severe allergies which have caused these problems. They did a spirometry again (normal) and did a full allergy test for some molds, dust, a couple animals, and then all pollens. It was ALL normal. I did notice some very small marks next to some of the dots, but the doctor said they were small enough to be considered negative. They were shocked. They also did intravenous testing where they injected me with the testing, which was also normal.

So I'm at a loss. I have always been very reactive when exposed to pollens. I react to dust and react very strongly to grass that is being cut. If not allergies, what could be causing my problems? I'm also supposed to go to a pulmonologist, but the allergist also deals with asthma and she said that's unnecessary.

Could anything else cause these symptoms? I'm supposed to start reflux medication to see if that helps with the chronic throat clearing, and she showed me how to use the nasal spray correctly. I kind of want a second opinion but overall I'm really at a loss. Could the tests really be wrong? Any tips on where to go from here?

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4978
   Posted 3/10/2015 6:18 PM (GMT -6)   
Welcome to the forum, Amy.

I don't get flu shots, or any other immunization, because they are loaded with gelatin and a sulfite perservatives, which cause me to react. I've gotten rid of the reaction by taking Benadryl for 3 days.

There is no standardized test for sulfites. Gelatin contains sulfite. It's made from pig skin boiled in a sulfite/water bath.

Did they test you for grass? I told my allergist about my new reactions to grass a couple of years ago when the pollen count was high. She didn't even need to test me, just added it to my injections.

I'm no doctor, but I would find a different allergist if I knew I reacted to something and the doc's test said I didn't. In fact I did leave one who said I had no food allergies although I knew I reacted every time I ate certain things. My next, more experienced, allergist found my allergens and food triggers.

Which reflux med are they putting you on? There's no need to start at the top with PPIs if lower types, like Zantac (ranitidine), will work.

Just my experiences over many years. No doctors on the website, so take our experience and suggestions the way you should anything you read on any forum.

Best wishes.

Aaaaammmmmyyyyyy
New Member


Date Joined Mar 2015
Total Posts : 3
   Posted 3/10/2015 6:40 PM (GMT -6)   
Thanks for replying.

I don't think the problem with gelatin. I definitely eat foods with gelatin in them and have never reacted. The form says they tested me for Johnson grass and a grass mix, so yes, I think? It also says they tested me for dust mites, which was negative.

I mean, my gut reaction was to go somewhere else, but from what I understand these tests are pretty standardized, yes? So my assumption would be that going somewhere else, IF the testing is going to be exactly the same, wouldn't change much. But then again, I do kind of want a second opinion. I'm just torn on where to go next. There's a part of me that thinks there must have been a mistake. How could nothing react? Did they use the wrong vials or something? I mean my god. Also: I was absolutely exhausted after the tests, and I'm very congested.

The medicine I'm starting is Prilosec, I believe.

jaminhealth
Regular Member


Date Joined Feb 2015
Total Posts : 250
   Posted 3/10/2015 9:55 PM (GMT -6)   
First 50 some years of my life I dealt with allergies and sinus stuff and all the otc drugs and allergist and his testings, even took the shots myself at home...NOTHING was helping me, more drugs, more money and more feeling unwell.

In 1995 and I was 57 I attended a lecture on pycnogenol which was arriving in the U.S. from France....and when the words "may prevent cancer" came out of the lecturers mouths, I jumped on "P"....first thing to GO were the lifelong allergy and sinus issues. I was in shock but happy shock. "P" reduces histimines and sulfites...after a year on "P", I found out about grape seed extract and now take it mostly but still use "P" now and then, keep it on hand as I use the powder from the capsules in my moisturizer I make up. Anti aging moisturizer....

Anyway, I'm no doc and these are my personal experiences so I share with most people I can and especially those who suffer with allergies and sinus issues.

grapeseedextract.com is a link with a very thorough overview and I'm not endorsing the company who has this site, although the product looks good.

I could write my own book on "P" and grape seed and I own about 5 little books on these antioxidants.....jam in health!!!
OA from age 18 to late 70's....complications from hip replacement in 2010...such a terrible outcome.
Fibro dx in 1999

All all the other "stuff" most deal with....I take 95% supplements for my health care...
Grape Seed Extract and or Pycnogenol have been lifechanging for me, 20 yrs on them soon.

Love the SOM and AA Principles....

Keep it Simple, Progress Not Perfection, One Day at a Time..

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4978
   Posted 3/11/2015 6:19 AM (GMT -6)   
Before jumping on "natural" "cures" ask your allergist. They are drugs. Not saying they won't work, just be careful and don't believe blogs or forums. There are actually some positive results noted on scientific sites, but talk to your doctor FIRST!

The first thing I do is find out WHAT is CAUSING my problem. Disguising or reducing symptoms with any drug, including over-the-counter is not a cure - although trying a few things with known actions may help find your causes and triggers.

Keep a notebook, like my food journal, to help you and your doctors. Even a daily page calendar works well. Write down the time of day, everything you eat and drink, medicines, things like grass being cut, working in a dusty place..... Then any reactions you have, positive or negative. That's how I found my food triggers, my reactions to medicines positive and negative, what works and what doesn't.

When you have a good list of your thought-to-be allergens, talk again to your allergist or find a new one. You may have a "sensitivity" that doesn't give a "true allergy" response. That's particularly found with food sensitivities like I have.

My allergist gave me a bunch of inhalers and nose sprays to try out. I'm supposed to be finding what helps for some asthma-like symptoms. I don't think I have much of a problem, but I do get a congested feeling some days. I'll have to go over my food journal to see what I took. It's not always obvious right away, but I have written-down notes I can search through. Just taking something once isn't a good enough test. I've already eliminated some steroids as treatment, and I got a reaction to albuterol that sent me to the ER 8 hours after trying one puff.

I keep a long list of meds that that I react to badly, and also a list of meds that I can take.

Aaaaammmmmyyyyyy
New Member


Date Joined Mar 2015
Total Posts : 3
   Posted 3/12/2015 8:34 PM (GMT -6)   
Thanks for replying.

It's hard for me to gauge what could be causing my problem because it's always bad all the time. It doesn't change much at all. I've kept a food diary before so I suppose I could try it again, but ugh. It's just frustrating when it's always there.

I am interested in ~alternative~ type cures, but I always research it and try to find clinically-backed research showing that, at the least, what I am doing is not harmful. I am all for trying new things but I want to keep pursuing a more traditional approach for now.

I see my doc tomorrow so I'll see what she says.
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