Thermoplasty for Cough Variant Asthma????

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worriedabouthubby
Regular Member


Date Joined Aug 2012
Total Posts : 345
   Posted 7/29/2015 7:07 PM (GMT -7)   
I have had a severe chronic cough for more than 18 months. They proven with all kinds of tests that it is NOT neurogenic cough, GERD, or other things. It is definitely asthma. My pulmonologist has (finally) decided that my 'regular' asthma has converted to cough variant asthma (I tried to tell him- and others- that was what was going on more than a year ago). I've had every test I know of, tried every drug and drug combination they can think of and they are now sending me BACK to Duke Medical to see their Cough Variant Asthma team (I saw the head of interventional pulmonology already). I think that Bronchial Thermoplasty might give me at least some relief. But the doc that does that at my pulmonology practice has not done it for cough variant asthma and hasn't seen any studies on it, so won't do it unless some one with more experience than she has says it might work. I understand her position, but am not looking forward to another long trip up to Duke and seeing yet another doctor or team of doctors, who will most likely want to do /repeat more tests.
OK I've vented... now my question ....

Has anyone here had or heard about using thermoplasty for cough variant asthma? I know it has been used in Canada and maybe in the UK or other European countries much longer than in the US. If I can find ANY data about it, I might be able to convince my doc to consider it.

If you know or have read about this, please share. I hate coughing up a lung all day for this long -- it is wearing me out, and driving my family crazy listening to me and worrying about me.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4949
   Posted 7/30/2015 3:54 PM (GMT -7)   
I did a very quick look at what Dr Google has to say, and there are lots of forums (not to be trusted) and some actual studies and publications on this treatment for your condition.

I have no knowledge of anything helpful. All I can say is read everything you can and make notes to ask your doctors to explain.

Best wishes.

worriedabouthubby
Regular Member


Date Joined Aug 2012
Total Posts : 345
   Posted 7/30/2015 4:06 PM (GMT -7)   
Thanks for the input. But everything I've seen on Google and that my doc has seen/ read deal with regular asthma and thermoplasty. We can't find anything on using it for cough variant asthma. I've been researching this for more than a year with little to no results. Still hoping someone here will have something to share.
Hubby's details- Age 57 at diagnosis
8/27/12 PSA 81 8/30/12 Gleason 5+4=9 8/8 cores+ 9/5/12 bone scan & ct negative; surgery 10/9/12 Final stats- G 4+5=9 T3a N0Mx tumor both lobes, size 3.3x3.2x2.6x , positive margins extensive perineural invasion, extracapsular extension, no lymph node/seminal vessical involvement
11/21/12 1st post-op PSA 3.8 CT -lymph node involvement
Most recent PSA-0

JaSanne
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Date Joined Oct 2006
Total Posts : 2082
   Posted 8/11/2015 1:15 PM (GMT -7)   
My daughter's asthma went into a chronic coughing stage when she was on Advair, which she eventually had to get off of because of the constant coughing as well as other side effects. In her case, it was the medication causing the coughing, but now she can't seem to find an asthma medication that doesn't trigger the constant coughing again.
55 yr. old--CD over 43 yr. Hemi-colectomy '01; spinal cord injury '01; fistulae since '97; enteropathic arthritis, chronic pain, muscle spasms, scoliosis, rotator cuff injuries

Sometimes I have a wicked sense of humor, other times I have no humor at all, but most of the time I just have no sense.
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