Daughter is allergic or intolerant to everything

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MsHippo
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Date Joined Aug 2015
Total Posts : 127
   Posted 9/16/2015 10:31 AM (GMT -7)   
Is anyone else allergic to or intolerant of almost all food? My daughter is allergic to: dairy, tree nuts, sesame and avocados. She has oral allergy syndrome to a bunch of different fruits. I just received her Cyrex Array results (Arrays 3, 4 & 10) and she is intolerant of 95% of the foods on those tests.

I started noticing that she had food intolerance symptoms in the last year... mostly bloating and incredibly foul smelling gas. I know she has leaky gut, but I don't know the trigger.

Gluten is one of her intolerances... could there have been a build up of gluten that ultimately lead to the bloating and gas this year (she's 10 years old)?

I have Lyme disease and now I'm afraid that she does too, and that lyme triggered all of these food intolerances.

For those of you who are intolerant of almost all foods, what do you eat? How do you pick and choose? I know she'll have to eat some foods she's intolerant of, but I'm trying to figure out the lesser of all the evils.

eat2bwell
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Date Joined Sep 2014
Total Posts : 534
   Posted 9/16/2015 2:04 PM (GMT -7)   
You need to repair the gut. I make my own sauerkraut and Kombuchi tea which have the probiotics the gut needs. Have you looked at probiotics? You can buy the probiotics in the store. Best to stay away from sugar since it feeds the bad bacteria. You have to repair the gut to get the health back. We are all different so you will have to figure out the best diet for your daughter by trial and error. Google information for "repairing a leaky gut" and try different things until you find what works.

http://blog.paleohacks.com/the-best-way-to-restore-your-gut-flora/

MsHippo
Regular Member


Date Joined Aug 2015
Total Posts : 127
   Posted 9/16/2015 2:32 PM (GMT -7)   
That's what I figured. I started her on the Autoimmune Protocol (AIP) diet last week because that's what I've been on for Hashi's and lyme. I just got the Array 10 results today and she's already so restricted, I can't possibly cut out anymore. I think I'll have her start a food diary. Thank you for the link... I'll check it out!

Forgot to mention I found some allergen free probiotics and orderd those. So many of them have corn in them, but I found one that seems to be ok.

Alcie
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Date Joined Oct 2009
Total Posts : 4948
   Posted 9/17/2015 5:49 PM (GMT -7)   
What sort of doctor ordered this test? What I can find online looks like it's one of those where you send some blood or a swab and may not be licensed in some states. My allergist doesn't send samples to these kinds of labs.

Are you being seen by a real allergist?

Even reliable, certified, blood tests are only 80% or so accurate. I tested allergic to peanuts, but I eat peanut butter all the time with no problem.

The real test is do you get a reaction to the food. That's where the food journal comes in. For foods that can't be tested by the skin prick test, there is, besides the diary, "challenge testing" which must be done in the allergist's office for safety.

I couldn't possibly eat the paleo diet or any of the other newer diets that have popped up. I react badly to fermented foods or drinks. People ask me what do I eat when I list my allergen-containing foods. But there's plenty of food! My trigger is mainly the preservative and bleaching agent that contaminates perfectly good food that is processed. Mine may not be the same as yours, so I'll let you figure out your own. There's no one-size-fits-all in allergies.

I can't eat anything made from corn, but I am not allergic/sensitive to corn itself. Does your daughter actually have a reaction to plain corn? My reaction starts out as gastric reflux, but can go on to tachycardia if I've eaten enough to trigger it. Quantity is important unless one has a severe allergy like peanuts.

I don't go with the many lists of foods that contain my allergen. Many foods on published lists only contain a trace of it. It works in medicines too. Not an allergy, but morphine to me is like water, but the morphones work well. I have to read the lists of "excipients" too. That's why I can't have flu shots.

What kinds of fruits, and were they found from eating them or from testing? How are they related?

MsHippo
Regular Member


Date Joined Aug 2015
Total Posts : 127
   Posted 9/17/2015 6:33 PM (GMT -7)   
Alcie, thank you for your reply. My daughter has a pediatric allergist (MD). When she was 3 years old she had a RAST test and every year since then she gets a blood test. She has a true allergy to dairy, tree nuts, sesame and avocado. She used to have a peanut allergy but she outgrew that when she was 5 or 6 (we did a peanut butter challenge in her allergist's office).

Her allergist now wants her to have a GI scope because my daughter is showing signs of food intolerances - bloating, foul smelling gas, headaches, eczema, etc. I don't want to put my daughter through that procedure, so I chose to check for food intolerances and try an elimination diet with a food diary first.

Some of the main foods that I suspect are causing issues (based on GI reactions this year and oral allergy syndrome) are:
Corn - bloating, gas, stomach ache
Gluten (wheat, rye, barley, spelt) - same as corn
Other grains - same as corn
Nightshades - eczema
Bananas - oral allergy syndrome
Melons - oral allergy syndrome
Stone fruits - oral allergy syndrome

I suspect she's had an underlying gluten and/or corn intolerance and over time this has triggered other intolerances and oral allergy syndrome. She's not allergic to or sensitive to latex, so I know she doesn't have latex fruit syndrome.

My husband and I decided to follow the autoimmune protocol elimination and will test foods after a certain period of time.

I, just this year, became allergic to dairy - my throat starts to close up. I also started experiencing oral allergy syndrome. I have lyme, which triggered two thyroid disorders, and I suspect also triggered my new allergy and intolerances. I was previously "only" allergic to shellfish and 7 medicines.

Corn is a tough one! I had to do a lot of searching to find my daughter a corn free probiotic.

For now we're going to go the elimination/food diary and gut healing route. I just pray she doesn't have lyme too, but we were at the same place when I was bitten.

Alcie
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Date Joined Oct 2009
Total Posts : 4948
   Posted 9/18/2015 6:38 AM (GMT -7)   
I'm pleased to hear that you really do know what you're talking about and have researched and are seeing the doctor. So many people jump to the forums first or go to alternative medicine instead of the educated professionals who have high level training and experience.

It's entirely possible to develop new allergies, and get rid of old ones at any age. I recently started having trouble with grass. Thank goodness my milk problem is only lactose.

Getting a biopsy for celiac is not really a big deal, even for a child. I would recommend getting that done. It might not show the problem though if she's been off gluten for a long time, so the sooner the better. The blood test could be done first if you are fearful of her sleeping for a few minutes. Getting a look at the inside of her GI system might show if there is or is not a visible physical problem.

"Testing foods" can be hazardous outside the allergist's office if there is a severe reaction. That's why doctors are now required to do challenge testing in the office. I did my own challenges at home originally, but the one I had last year I had to do in the office. Do you have a couple of Epi-Pens in case of emergency? One is not enough because they don't work long enough to get to help. I posted how to do challenge testing, according to what my allergist told me, a few years ago. You can probably find it if you put the words in the search box at the top of the page.

A lot of people are now doing the food diary. It was a big deal way back when my allergist first had me do it. It takes a while to figure out which ingredients of a meal caused a reaction, but it's easy and free. It's good you are doing it!

Thinking of you and the daughter.

MsHippo
Regular Member


Date Joined Aug 2015
Total Posts : 127
   Posted 9/18/2015 7:09 AM (GMT -7)   
She's had allergies since birth. I went on the Dr. Sears elimination diet when I was nursing her because I knew there was something I was eating that was making her colicky. I nursed her for 2 years, then when she was old enough we had the RAST test done. She's had epi-pens since then... in her backpack, at the school, in my purse and 2 more at home.

She did have the celiac blood test. First they ran the IGA and it was normal 130 (range 51-253). Then they ran 2 more IGA tests for what look like antibodies and her results were: <0.5 (range <15 is negative) and the other one was just marked as "negative". I know blood tests aren't 100% accurate, but I'm comfortable with those results. She hadn't stopped eating gluten at the time that blood draw was done.

I do think she has some level of intestinal permeability, but not to the point of celiac. I'm hoping that by eliminating common triggers we can help her body heal.

I'll search for your challenge testing post. Thanks so much!!
Unknowingly bitten in northern WI October 2014
Neuro symptoms began January 2015
DXd with Hashi's & hypothyroidism February 2015
Band 41 reactive on WB April 2015
Lyme, Babesia and Bart +++ via bioresonance testing August 2015
DXd by LLMD with Lyme, Babesia & Bart September 2015
IgeneX positive September 2015

Poppie
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Date Joined Feb 2014
Total Posts : 2080
   Posted 9/20/2015 12:33 PM (GMT -7)   
I have a problem with food, or lack of it lol!!

I have Multiple Chemical Sensitivity and I am Gluten, Dairy and Sulfite intolerant and I have recently discovered some new food allergies after my recent skin prick test, whilst visiting my allergist..but really, the best way and most accurate way for me is to carefully keep and monitor a food diary, as skin prick tests aren't always correct, for example I think I have a problem with Walnuts, which came up fine on the recent skin prick test!! and so it just goes to show you cannot count on these tests totally. Through carefully writing down everything in my food diary (which is kept open on the kitchen table) I have recently discovered I cannot take extra virgin olive oil, which I was using two or three times a day, and just that simple discovery has meant I am now sleeping much better. This is something that the allergist couldnt possibly have picked up, and thats why a food diary is really the only way to know for sure what your daughter can safely eat.

Food is a challenge, more so at the moment, and I am eating carefully, as I usually get a reaction within an hour, and I then know to avoid that particular food in future, I wonder how quickly your daughter knows when something does not work for her...

At the moment my staple foods are Rice (the allergist initially told me I had a problem with this and I asked to be retested and it came up fine) Sweet Potatoes, Potatoes (all organic) and Quinoa. I then stick with chicken, salmon, mince, beef, all organic, and I eat a lot of organic fruit and vegetables.. Drinks are a problem at the moment and so I tend to stick with boring old water for now, but that is hardly going to be exciting for your daughter, so maybe you can make some healthy drinks for her. I think most over the counter drinks are probably going to be bad for her.

If you look on Amazon, under the brand name "Enjoy Life" you will find that they have some really good snacks which are handy to have in the house as special "treats" for your daughter.

MsHippo
Regular Member


Date Joined Aug 2015
Total Posts : 127
   Posted 9/21/2015 6:33 AM (GMT -7)   
Thanks so much, Poppie! She started keeping a food diet a few days ago. She can still eat the Enjoy Life vegan choc chips... I give her 1 serving size as a treat every few days.

The more I think about it and read everyone's responses, I know she can't possibly be intolerant to everything. I do know there's some food that was causing her gas, bloating and headaches though because ever since she's been on the AIP diet (just over 1 week), all that has gone away.
Unknowingly bitten in northern WI October 2014
Neuro symptoms began January 2015
DXd with Hashi's & hypothyroidism February 2015
Band 41 reactive on WB April 2015
Lyme, Babesia and Bart +++ via bioresonance testing August 2015
DXd by LLMD with Lyme, Babesia & Bart September 2015
IgeneX positive September 2015

cyclinglady
Regular Member


Date Joined Aug 2015
Total Posts : 174
   Posted 9/21/2015 8:20 AM (GMT -7)   
When was the last time she was tested for celiac disease? You said that she was not IGA deficient, but it sounded like she did not receive the full celiac panel. Young kids often test negative to the TTG Tests and need the DGP tests.

I wish you and your daughter well!

MsHippo
Regular Member


Date Joined Aug 2015
Total Posts : 127
   Posted 9/21/2015 10:27 AM (GMT -7)   
cyclinglady, thank you! Her celiac test was done in August. What kind of doctor would do the full test? She's seeing her pediatrician in October. Is that something he could do/interpret, or is there a specialist I should take her to?

I looked up celiac symptoms in kids, and she's doesn't have those symptoms, but I also know with autoimmune diseases they don't always follow a perfect checklist.
Unknowingly bitten in northern WI October 2014
Neuro symptoms began January 2015
DXd with Hashi's & hypothyroidism February 2015
Band 41 reactive on WB April 2015
Lyme, Babesia and Bart +++ via bioresonance testing August 2015
DXd by LLMD with Lyme, Babesia & Bart September 2015
IgeneX positive September 2015

cyclinglady
Regular Member


Date Joined Aug 2015
Total Posts : 174
   Posted 9/21/2015 9:25 PM (GMT -7)   
I know my insurance will only allow a GI to run a full celiac panel. A PCP or internist is not even authorized to run a full panel. I found this out when I went to my new provider (changed insurance after my CD diagnosis). I had to get a referral to a GI which I needed anyway. I need the full panel because I test negative on the TTG tests and positive on only only the DGP iga. If you google this it usually studies indicate this kind of result is for kids (and I'm in my 50's!). )

Here's the the full panel:

Tissue Transglutaminase (tTG) IgA and (tTG) IgG
Deamidated Gliadin Peptide (DGP) IgA and (DGP) (IgG
EMA IGA
Total Serum IgA and IgG (control test)
AGA IgG and IgA is an older test and is replaced by the new DGP which are just as good as the TTG.

Finally endoscopy with six biopsy samples

Doctors often run just the TTG and the IGA (control test and checks for IGA defciency) because 1) it is a screening test and 2) it is cheaper. It does catch about 95% of celiacs in adults. Kids are a bit tricker!

Her ped can try to order them or a Ped GI. Celiac disease should at least be completely ruled out. You can be symptom free. Because it is genetic with enviormental triggers, first-degree relatives should be tested. My kids is and will always be tested every two years or sooner if she develops symptoms. My only symptom was anemia.

She must be eating gluten 8 to 12 weeks prior to the blood test. Four weeks prior to the endoscopy. Going off gluten as a test and then going back on is awful. The reaction or flare-up is awful! I had my first glutening this summer. Two months and I am still not back to normal. I was normal after being gluten free for two years. Good news is that kids heal much faster!

Check out the University of Chicago's celiac website. They are one of the leading researchers in the country and the website is very informative. There are over 300 known symptoms of CD. Oh....same genes for Hashi's......do the research!

MsHippo
Regular Member


Date Joined Aug 2015
Total Posts : 127
   Posted 9/22/2015 5:14 AM (GMT -7)   
Thank you so much for all the information! I'll look at UIC's web site. We live in the Chicago area so that will be a great resource for us.
Unknowingly bitten in northern WI October 2014
Neuro symptoms began January 2015
DXd with Hashi's & hypothyroidism February 2015
Band 41 reactive on WB April 2015
Lyme, Babesia and Bart +++ via bioresonance testing August 2015
DXd by LLMD with Lyme, Babesia & Bart September 2015
IgeneX positive September 2015

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4402
   Posted 9/23/2015 4:03 AM (GMT -7)   
Autoimmune Thyroid disorders are often connected to Celiac. See theglutenfile.com for more info.

Those with Lyme should ideally avoid pro-inflammatory proteins found in gluten and dairy. Nightshades may also need to be avoided.

Consider also the possibility of parasites (the most common co-infection with Lyme, but can occur in the absence of Lyme as well), and Candida overgrowth.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Flagyl, Cefazolin, Essential Oils, Homeopathy, etc.
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