What are the odds?

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dannyfred33
New Member


Date Joined Dec 2015
Total Posts : 2
   Posted 12/30/2015 6:47 AM (GMT -6)   
I'm 33 year old male with a 3 year old child who does not have CF. My sons mother was screened and son I believe, not 100% we live in California.

I have tremendous anxiety and take xanax for my health concerns. I am here because of an article I read.

I get bronchitis maybe every 1-2 years, only for 1-2 weeks, not chronic, when I was 15 I had pneumonia and diagnosed with mild ashtma, but never any ashtma attacks or coughs, let alone phlegm, til this day my peak score is not great. I also get a sinus infection every year, sinititis, that last a few weeks. I do however smoke marijuana when infected, possibly prolonging. My chest x-ray when I had bronchitis showed mucus, but in 2015 it was clear.

However . I have no coughing or breathing issues. I fear this since I am not prepared for diagnosis. I did ask doctor if I could get referred for atypical cf but she refused. I had this worry when I was 27 after reading blog post and went to urgent care and doc smirked.

The fact that with CF are diagnosed at early age, including me having son -- does that make it less likely to have CF?

I come here since my doctors will not give me referral so I have pay out of poccket for CF center.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4979
   Posted 1/2/2016 3:32 PM (GMT -6)   
I couldn't understand your message. You said your son does not have cf. Was that not right?
I don't understand why you think you have cf.
This sounds like something we can't help with in a forum. I hope you can talk to a real doctor and get some answers.

dannyfred33
New Member


Date Joined Dec 2015
Total Posts : 2
   Posted 1/2/2016 9:31 PM (GMT -6)   
I forgot to mention that for some odd reasons I have high lipase numbers, found incidentally. Never had pancreatic attack nor evidence of pancreatic insuffiency, other than having IBS on occasion and being lactose intolerance. Loose stools I always had since early 20's but it's because i have a bad diet. If it's controlled, no issue. My appetite and weight are perfect. However the high lipase numbers (even with symptoms) warranted an EUS, which showed I had minor findings of chronic pancreatitis but without clinical sysmptoms, the gastro team does tell me I do not have chronic pancreatitis, because i dont have major findings and the minor findings can be found on lots of people with pancreas issues.

I just wanted to add that in. I made an appointment to CFF adult center but they want array of test before consultation.

My anxiety is getting the worst of me, but the more I read in google, the more I believe I have atypical CF, even with having a kid and all without. I made an appoinment next week and hopefully I can get a swet test. I'm so nervous and unable to enjoy the holidays. All this from stumbling on an article that freaked me out.

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 1/4/2016 11:12 AM (GMT -6)   
You might find that moving over to a healthy diet will help your anxiety a lot. There is more and more evidence that our gut health not only affects our immune system but our psychological health as well.
Allergies and Asthma Forum Moderator
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