Sudden and Sever Allergic Reaction

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Motorvating
New Member


Date Joined Apr 2016
Total Posts : 3
   Posted 4/30/2016 11:07 AM (GMT -7)   
Having been on this planet for 53 years without any serious illness I was shocked at a recent debilitating allergic reaction.

For several weeks I generally felt unwell, I felt fatigued, repeated swollen throat and pain in my chest. I came home from work one day and realised the muscle above my right knee has swelled, which was painful due to the tightness of my skin. The swelling went down after 24 hrs. about five days later I really started to feel unwell. My throat has swelled making it difficult to swallow but it wasn't painful. I also had chest pains and problems swallowing food, and felt as I had the flue like conditions. After a very uncomfortable night in bed I awoke to find I was covered in a rash (measles like) which itched. Over the day I steadily got worse, the rash turned in to angry hives which were very raised. My hands and feet developed an unbearable itching, if I scratched them, the area scratched swelled up. Also, my nerves in the scratched area became hyper sensitive, I can only describe it as a painful flaring of the local nerves. My blood felt like it was way to hot, it wasn't painful, just worrying. Over the next 24 hrs my lips and face swelled, the hives became huge and painful, throat swelled so I had difficulty sleeping at night, had terrible night sweats, indeed I thought I had wet the bed the first episode. I became incredibly fatigued, went off food and craved water. I was unable to walk because the soles of my feet had swelled and was painful to walk on. Over the next 48 hrs I had all these symptoms progressively getting worse, so went to the doctor (I know typical bloke). After an ECG, chest xray, opticians, blood tests, urine and stool samples given, then sent to a heart unit for half a day for tests my doctor called me in to say blood tests showed a severe allergic reaction, so have to see a consultant in allergies. I'm now taking antihistamine which seems to help, but have now set into a pattern of weekly flare ups that are much less severe then the first flare up. Once or twice a week I feel as I'm developing flue, lose ability to control body temperature and then feel a chronic fatigue. a few hours later I develop a rash on my hands, lower arms, feet and neck which lasts for around 24 hrs. I'm unable to do any kind of heavy work because if I do I suffer from chronic fatigue for a couple of days. Needless to say I'm feeling sorry for myself and feel helpless because I don't know what it is.

Post Edited (Motorvating) : 4/30/2016 12:10:57 PM (GMT-6)


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4931
   Posted 4/30/2016 6:14 PM (GMT -7)   
Sure sounds like a mystery. Can you try keeping a journal of everything you eat, drink, chemicals you might be exposed to, something in the air .....?

Sorry there's no medical help on forums. Best wishes!

iWantToLive
Regular Member


Date Joined Jun 2013
Total Posts : 21
   Posted 5/1/2016 12:27 AM (GMT -7)   
Sounds like mast cell disease! I know...i have it. Nonclonal mast cell activation syndrome. Its in the mastocytosis family. Discuss testing witb ur dr. Or better yet...go to a masto dr.

Motorvating
New Member


Date Joined Apr 2016
Total Posts : 3
   Posted 5/1/2016 3:24 AM (GMT -7)   
Thanks I'll have a look at the condition.

iWantToLive
Regular Member


Date Joined Jun 2013
Total Posts : 21
   Posted 5/1/2016 12:37 PM (GMT -7)   
no problem. Look it up online. In essence its the same thing as mastocytosis except theres no correlation between it and leukemia and your reactions are much more intense and frequent. I had different odd things happen throughout my life but it never really raised its ugly little head until i was 30 years old and it took 20 years from then until someone finally figured out the problem.

Motorvating
New Member


Date Joined Apr 2016
Total Posts : 3
   Posted 5/2/2016 1:33 AM (GMT -7)   
Had a look at the condition. I'm not a medical specialist, however it really does look a likely candidate. How do you manage the condition?

iWantToLive
Regular Member


Date Joined Jun 2013
Total Posts : 21
   Posted 5/2/2016 2:01 PM (GMT -7)   
the masto specialist has me on ketotifen 1 mg 3x a day, montelukast 10mg 1x a day, cromolyn sodium 3x a day. they are all mast cell stabilizers. i am in the beginning stages of my treatment. i also have a genome deficiency that makes it hard for my body to metabolize meds so it has taken 2 years to get me onto those meds. the docs say it is not uncommon for a masto patient to be on anywhere from 4-10 meds to control the condition. my triggers are medication, stress, exercise, heat, foods, sun, and well water. its been pretty difficult but at least i have the hope of living to 55yrs old now. :)
Nonclonal Mast Cell Activation Syndrome, CYP Genome Defficiency, Kounis Syndrome

JOIN ME IN RAISING AWARENESS OF MAST CELL DISEASE!!!

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 2045
   Posted 5/29/2016 12:07 PM (GMT -7)   
Well as usual I have a strange problem which nobody seems to care about. I have a squamos cancerous growth on the top of my foot. It was coming along until I tried to do some on land exercise and then it went bananas. HAD TO WEAR POOL SHOES to go to the doctor's office. May have had an allergic reaction to the band aid and to the triple antibiotic creme. Looks very ugly now and hurts to the touch but I can go swimming because it is closed. Sorry to bother my allergic friends with MORE PROBLEMS.

Take care of yourselves, all my allergic buddies.
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