hi I am new here. I have been sick for years, but mainly the last 4 years 2 of me being bedridden practically.
I was told I had fibromyalgia in the nineties, later EBV, CFS, bipolar, anxiety disorder, etc....... I over the last 2 months have stopped lamictal and ativan. and I am doing fine, so I am not mentally ill. but everybody has tried to convince I am.
I ended up with a lyme diagnosis cause I has a weird rash on my arm I got antibiotics, other meds, supplements, IV peroxide and IV ozone. I am still sick. I have spent thousands of dollars. I am tired of being sick.
the following results got me thinking: low natural killer cells, high C4a, High ammonia, low female hormones, low vitamin D, hashimonto thyroiditis, inconclusive lyme testing, lesion in my pelvic spine, elevated IGG for ebv, cmv, hhv 6. Igg positive mycoplasma pneumonia.
my symptoms: shortness of breath, chest pain over my heart, sore throat, lots of allergies, eyelid swelling, chronic ringing in my ears, Positive culture apsergellsis in my ears, chronic cough, fatigue, can't tolerate exercise, nausea, head pressure, headaches, freq urinary tract infections, granulomas in my spleen, past 2008 histoplasmosis and blood clot in my lungs, insomnia. all over a 4 year period.
I keep fighting for my life. I feel it is very possible I have an immune deficiency disorder with killer cells low, and I may have some kind of virus or fungal infection that has not been diagnosed.
I have been sick my whole life on and off, and an allergist told me 20 years, I may end up with allergic asthma. I hear a slight wheeze and my recent chest X-ray showed peribronchial thickening. I get so short of breath when I do anything. I would feel so much better if I could breathe.
I am so allergic to mold, it is like I can't get around it period. I wondered if it is also possible I have recurrent histoplasmosis or maybe I have aspergelosis. sorry spelling. has anyone had anything similar to this happen? I have about given up and said I was just going to die.