Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Hereditary Angeoedema!

Support Forums
>
Allergies
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Zots
Veteran Member
Joined : Jun 2005
Posts : 1635
Posted Yesterday 8:40 AM (GMT -7)
My endo feels that I may have hereditary angioedema and wants me to bring it up at my mayo clinic appt on feb 10th. Have any of you been diagnosed with this and if so, how have you been since treatment??????

zots
profile picture
Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23581
Posted Yesterday 10:54 AM (GMT -7)
Hi zots, thanks for visiting the allergy forum smile I can't answer that question but hopefully you will get a response soon. Where do you get your swelling? Not in your throat I hope! Do they have a special test to see if this is the case?
profile picture
Zots
Veteran Member
Joined : Jun 2005
Posts : 1635
Posted Yesterday 1:38 PM (GMT -7)

Hi Sherry

I get the swelling mostly in my hands, feet, and gums.  on occassion i have had rapid, severe swelling of my soft pallet.  its like someone took a balloon and blew it up.  it happens in a split second.  its pretty weird, painful and scarey.  i guess there are specific tests although, i have no idea what they are.  i havent really even had a chance to look up the illness.  i just know it sounds very frightening.  :(

profile picture
Zots
Veteran Member
Joined : Jun 2005
Posts : 1635
Posted 3/2/2006 12:08 PM (GMT -7)
Ok, went to Mayo Clinic and got the skinny on what the problem is.
i am NOT allergic to the meds, I'm ODing on them.
in my liver, kidneys and large intestines, the genomes that are responsible for medication absorption have mutated and no longer work. so basically, i OD. this is how it was explained:
a normal person will take 500mg or an antibiotic. the liver filters out about 400mg of that medication and your body only receives about 100mg of it. my liver, on the other hand, filters out about 50mg of the medication and body recieves about 450mg of that medication. so depending upon the meds, anywhere between the 1st and 4th day, i am ODing. theres no cure but with research coming out of france there may be something to go on in about 2-5 years.
at least we have a starting point smile
✚ New Topic ✚ Reply




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.