Posted 11/17/2010 2:16 PM (GMT -6)
My husband was recently diagnosed with this horrible disease. He has lost ove 35 lbs in the last year, with increasing weakness, fatigue, night sweats, fever, and abdominal pain. We both thought he was dying, without know from what. Finally after several weeks of testing the doctors went looking for cancer via CT scan. Found nodules on adrenals, biopsied and cultured and found histoplasmosis. He is fortunate as it has not settled into his lungs as far as the docs can tell. A little scarring.... we pray that's all. He started the amphotericin B. We have been told by several docs that it will knock out the histo, but will take time. We are expecting two months on the amphotericin B (a total of 10,000 ML of the stuff) and then he will be put on the sporanex (sp?) for likely months to years (per the ID doc).
Gratefully, now that he has gone from everyday to every other day of the amphotericin treatment, he seems to be feeling a little better. The ampho seems to leave him with severe headaches after treatment, but he is starting to feel human again. He has experienced none of the severe ampho side effects we have read about, but it is still early. After reading of the tremendous suffering of the previous posters, we feel very fortunate that he was diagnosed relatively quickly, and have doctors already seemingly familiar with the treatment of this disease.
My heart goes out to you that are in this battle without health insurance, knowledgable doctors, or understanding family. My prayers are with you for strength to endure this with so little support. God bless you through your battle.