Chartreux, thanks for sharing. I saw a pulmonary doc last summer and all he wanted to do is a sleep apnea test. He felt all my problems are from that. He only did a lung function test after he saying he wanted me to have a sleep test done. I went in because my shortness of breath was getting worse and I have a hoarse voice and feel like I have a sore swollen throat all the time. The ENT looked down and saw there was some inflamation at my voice box and he felt it was from acid reflux. So I went to the gastro doc and he did a barium swollow test, he felt the problem with my throat wasn't from the reflux. So along with the shortness of breath, which I can't exhurt myself because of causing an asthma attack, I also have weak muscles in my torso, legs and arms. I then went to the allergy doc. he did the scratch tests and I am allergic to a few things. Nothing that I didn't know before. He did a series of unusual tests and I had to get two immunizations, one of which was the pneumonia shot and the other a HIBB vaccine. I was low in these antigens he said. I then went to a rheumetologist. Had blood work done and was positive for Lupus. So after the shots took hold I went on plaquenil which they use for lupus. I had diahrrea pretty bad for two months, and in the mean time the family doc asked if I was happy with the rheumy, I said no. he doesn't talk to me about what is going on and what he is doing, so I changed to another one in the practice. She isn't doing anything and I have been seeing her since April. the shortness of breath is gradually getting worse and the throat is bad too. I have no clue who to go to for all this and the family doctor doesn't seem to want to walk through this with me meaning watching over my care. He gives meds when I call and need them. But I am finding out that doctors don't seem to want to manage someone's care anymore and direct them to who you should go to for a particular thing. I am angry today only because I loose work because of this and don't know what to do about my medical condition. I have cramping in my back and chest in the chest most all the time. I was searching hershey medical for a doctor who may work with the lungs and the immune part. Trouble is ya have to wait so long to get in with the doctors. But I am so very tired of wasting time and money with the doctors around here who uneducated in the mor difficult cases.
I have had pain in the left side of my chest for years now. I was told it's muscluar, then why so short of breath. My family doc said with my family history of heart problems he isn't ruling out that, but he never set up an appt. to get things checked out. I had two stress tests done in the last three years and he said if I come in one more time with chest pain he is sending me for a cath. Well I did and he passed it off as muscular, but then in the next sentence he said that he doesn't trust the cardio doc who reads the stress tests. he had a patient who went for one and the heart doc said it was fine and the guy died that night from a heart attack. He had another lady who went for one and it was supposed to be fine and two weeks later she had a heart attack, but lived. Why do we have to pay these freakin doctors if they dont' want to manage our care. I am sorry, it's that kind of day where I am short of breath, hurt and feel like someone punched my in the throat.
Strange though, the muscle weakness and throat and shortness of breath all came about since I had my gallbladder out three years ago.
Thank you again for sharing. I am just venting.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.