Many symptoms, looking for answers

straydog

Forum Moderator

Joined : Feb 2003

Posts : 16858

Posted 5/24/2007 6:16 PM (GMT -6)

Hi Everyone,

My name is Susie and I post on some ofthe other boards, crohns, chronic pain, UC, depression and now here. Not new to allergies at all or asthma. I always spell it wrong. I also have COPD from smoking and years of bronchitis. Recently while in the hospital the end of January my sats were dropping so low I had to be put on oxygen. I have been on oxygen since. It has really made me feel so much better. Prior to being put in the hospital let me list a few things that were going on. My drs were trying to find out why I was doing some of this stuff never thought it was due to oxygen deprivation. I was falling alot, falling asleep even while standing, sometimes words came out that made no sense and saying I was fatigued is an understatement.

After being on oxygen this all went away. I take Advair, Albuterol Inhaler, Spireva, nebulizer meds and one other med at bedtime. I am coming off of a bout with bronchitis, 2nd time since Jan. Its so hard to get over this mess. I also take meds for the CD that can lower the immune system.

We recently lost a very good friend to asthma, he was only 41 with a baby under 2, just heart breaking. Recently, anothe family lost their 11 yr old daughter to it and hers had been under control. Its a disease that is very serious no matter.

Just wanted to hi & introduce myself. Susie

Red_34

Elite Member

Joined : Apr 2004

Posts : 23551

Posted 5/24/2007 6:29 PM (GMT -6)

Hi Susie, welcome to the Allergies/Asthma forum :) Sounds like you have your hands full with your health. I'm recouping from my own bout of bronchitis. It sure can wipe you out!

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Chartreux

Veteran Member

Joined : Aug 2006

Posts : 9664

Posted 5/24/2007 9:14 PM (GMT -6)

Well Susie welcome, so sorry you have asthma though. I hope your feeling much more better soon. Are you able to take Singulair? It helps me. So Sorry about your friend that must be real hard, you have my sympathies in that. Sometimes it can be just as hard to loose a friend as it is a family member. Many many prayers too you. www.yourlunghealth.org is a good web site for info on lung conditions it might help, I'll let you decide. Keep us posted as to how your doing and I hope you continue to improve some each day. Lots of soft (((HUGZ))) and well wishes to you.

Another Day

Veteran Member

Joined : Mar 2007

Posts : 1055

Posted 5/24/2007 10:52 PM (GMT -6)

Susie,

Welcome to our forum. I have severe asthma. I was also diagnosed with epilepsy last summer which I am still trying to get under control.

I am glad to hear that you are beginning to feel better. I am so sorry to hear about the loss of your two friends. They are both heartbreaking stories; the guy with the young child and the child. I have always said if I could take a child's asthma for them, I would in a heart beat. I can't imagine what it must be like for a parent watching their child struggling to breathe and not being able to help them.

My prayers are with you and your friends.

Carla

pixie16

Regular Member

Joined : May 2007

Posts : 39

Posted 5/26/2007 7:16 AM (GMT -6)

Susie,

I just want to let you know that my mom knows what its like.She had bad asthma from age 7-18.She missed a lot of school because she was sick.Her parents were smokers.She told me a story about being in a hodpital with a tent over her head for her asthma.She's 51 now and has "Fibromyalgia."TC Susie.I hope you feel better.

Ray-Ray

mb,az

New Member

Joined : Mar 2007

Posts : 4

Posted 5/26/2007 8:45 PM (GMT -6)

Hi, I typically read and post on the fibro site as my asthma ususally stays pretty well under control with singulair, advair and occasional albuterol. However like everyone else it seems I am still trying to get over a bout of brochitis. Asthma can be a very scary thing. I have had it since birth (39 yrs old) and the treatments have come a long way. I too spent weeks in hospital as a child living in an oxygen tent and have also lost a family member (44 year old sister in law) to asthma. It can kind of sneak up on you. I know I have started feeling bad in the am and been in intensive care by that night. The main thing is too not wait too long to get help (easier said than done in my case). I was wondering if anyone else gets alot of chest pain for a while after bronchitis and asthma attack. Not sure if this is due to my fibro or what is called chostrochondritis (spelling?). Just wondered if anyone else gets this terrible chest ache. Take care.

Lucky mb in Sunny AZ

Another Day

Veteran Member

Joined : Mar 2007

Posts : 1055

Posted 5/28/2007 3:18 AM (GMT -6)

mb, I almost can't believe this, but I haven't had bronchitis since February. I haven't had a full-blown asthma attack either. Back to your question, are you still coughing from the bronchitis? Is there any chance that could be the cause of your pain? I don't usually feel pain after an asthma attack. As far as the fibro that you mentioned, I don't know any thing about that. I do know when you have several different things going on, it makes it hard determine what is really going on. I was diagnosed with epilepsy last summer, which I am still trying to get under control. But, when it first started happening, I just thought it was some weired side effect of Prednisone. I don't know that I have really helped you.

Carla

mb,az

New Member

Joined : Mar 2007

Posts : 4

Posted 5/28/2007 10:32 AM (GMT -6)

Your comment about thinking it was a "side effect of Prednisone" is scary as I was wondering if that is what is going on. It seems like every time I take Prednisone, I wind up with a lot of chest pain, skin is sore, esophagus feels raw inside. Afraid to tell Dr's as I know I need to be able to take the Prednisone as it is about the only thing that really helps when my asthma really kicks in. Maybe I will discuss on my next regular appt with Dr. Thanks for the input.

Lucky mb in sunny AZ

Another Day

Veteran Member

Joined : Mar 2007

Posts : 1055

Posted 5/29/2007 12:32 AM (GMT -6)

Lucky mb, Does being in AZ really help with asthma and allergies? Back to the Prednisone, while I have not experienced the side effects you seem to be having, I have had all kinds of dreadful side effects from Pednisone. But, like you, I enjoy breathing. I think your plan to let your doctor know what you are experiencing is a good one. I think those of us who suffer from chronic illnesses tend to be a little tougher than others and we let some things slide that we probably shouldn't. Last summer when I ended up in the ER, after trying to convince my daughters through my slurred and stuttering speech that it was just the Prednisone and if I just went home and went to bed I would be fine, they were sure I was having a stroke. That was what they thought when I got to the ER also. That was the beginning to finding the diagnosis of epilepsy. I wouldn't rule out that the Prednisone is the culprit, but take it from me and don't always think that whatever is going wrong with your body is because of Prednisone.

Carla from Kentucky

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