Respiratory Patients - Take Precautions

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Another Day
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Date Joined Mar 2007
Total Posts : 1055
 		   Posted 8/25/2007 8:59 PM (GMT -6)   
This is just a reminder to respiratory patients to take precautions during this wicked heat and humidity.  I let it get me tonight even though I waited until about 7:00 p.m. to get out.  I went to Wal-Mart, which I detest any way, but they have a good selection of those Kashi meals that I like.  I don't think their air conditioning was working, it was so hot and humid in there.  I did have an asthma attack.
 
I was able to make it to the car to use my portable nebulizer and called for a friend to come and get me.  I don't leave home without my nebulizer, my bottle of water and my cell phone.  I shouldn't have even been out.
 
Everyone please be careful.
 
 
 
 
 Epilepsy, asthma, GERD, depression, hypothyroidism

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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
 		   Posted 8/26/2007 1:48 AM (GMT -6)   
I also went to Walmart tonight about 7pm. The AC there is set by corporate the sales people said. I don't think they even have any AC on as the doors are open. I have an asthma attack every time I go there...I think Walmart gave you the attack not being outside. My portable machine stopped working and the salesman is no use to get it fixed or replaced. What is the name of your portable and is it trustworthy? I need a new one soon.
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Another Day
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Date Joined Mar 2007
Total Posts : 1055
 		   Posted 8/26/2007 10:53 PM (GMT -6)   
I use the OMRON that you will see in the link. This is the second one of these I have had.  I had the first one for a couple of years and broke a piece off of it.  I got ripped off and paid around $300 for the first one.  I bought the one I am using now from my local pharmacy and paid around $90 for it.  I have found a link for you that is even cheaper.  They also sell parts, so it was good for me to try to find it for you because I could use a new container for the medicine for mine.
 
This machine takes less time than my older one did and it is quieter.  I highly recommend it and it is also very light weight.  It is very efficient and dependable.
 
 
 
Good luck!
 
Carla
 Epilepsy, asthma, GERD, depression, hypothyroidism

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Chartreux
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Date Joined Aug 2006
Total Posts : 9664
 		   Posted 8/27/2007 9:52 AM (GMT -6)   
Good advice, hot and cold air can trigger asthma and everyone needs to be careful when its too hot and too cold outside. Sorry you had an asthma attack though, HUGZ to you..........
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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
 		   Posted 8/27/2007 11:26 PM (GMT -6)   
Thanks another day:) I also got ripped of on my last one(not this same machine though). The doctor had a salesman come to the house and it cost $350. It quit working in a month and he replaced the malfunctioning part. It worked for 8 months and now I am getting the run around from him and the sales office. What pharmacy carried the machine? I want to try the one you use. Is this site a good one to use? Do you use the rechargeable battery? Thanks for the help.
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Another Day
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Date Joined Mar 2007
Total Posts : 1055
 		   Posted 8/28/2007 9:17 PM (GMT -6)   
ceebee,
 
It was a local pharmacy that I got my last one from for about $90.00.  They just have stores in KY.  I don't know about this site, but I found it on a couple of sites when I was looking for it for you and this was the cheapest.  If you would like, I can check with my pharmacy and see what their price is on them now.  It was two years ago when I got mine.  You could always call and order it over the phone from them and have it shipped.  It's so light weight, it shouldn't cost much to ship it.  Just let me know if you would like me to check on it for you.
 
It has the adapter for the car and it also came with the battery pack which I've never used and I don't even know what I did with it.
 
Carla
 Epilepsy, asthma, GERD, depression, hypothyroidism

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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
 		   Posted 9/4/2007 7:23 PM (GMT -6)   
Thanks for your help another day:) I ordered the omron and it should be here in about 4 days. I lost my lost my oldest and last sister to breast cancer that spread to the bones a week and a half ago so it took me longer to get back. I will let you know how omron works for me.
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Another Day
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Date Joined Mar 2007
Total Posts : 1055
 		   Posted 9/4/2007 10:14 PM (GMT -6)   
Ceebee,
 
I am so sorry to hear about your sister.  You mentioned your last sister, does cancer run in your family?
 
Again, I am sorry for your loss.
 
Take care!
 
Carla
 Epilepsy, asthma, GERD, depression, hypothyroidism

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Red_34
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Date Joined Apr 2004
Total Posts : 23551
 		   Posted 9/5/2007 5:52 AM (GMT -6)   
I can't chime in the conversation here but I just wanted to send you my condolances on the loss of your sister Ceebee.
 @--->--SHERRY--<---@
Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)
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Severe seasonal allergies - meds - Allegra 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
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Chartreux
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Date Joined Aug 2006
Total Posts : 9664
 		   Posted 9/5/2007 8:35 PM (GMT -6)   
Awe CeeBee my sympathies to you hun.......
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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
 		   Posted 9/6/2007 1:49 AM (GMT -6)   
Thanks for caring:) Yes, lots of cancer and fast growing at that. Ovarian, breast and every female cancer there is. Mom had 7 girls in her family and all had cancer. Both sisters of mine also. Dad also passed from stomach cancer. I have nobody left from my birth family. I get blood test for ovarian cancer and mammograms. So far, so good. Now, my new daughter-in-law's mother just passed with cancer in liver, pancreas, gallbladder and last the lungs. Just planning her funeral now. My d-i-l also lost her father from a rare cancer at just 48. Cancer is so devastating. Hope this is it for a while as we are all getting exhausted. Need some happy times now. The stress is sure bothering my asthma and I can only get into lung doc every 2 months. My family doctor won't help at all. Doesn't believe in prednisone even if you can't breath at all. I need to find a new doc to help control the asthma. Haven't has much luck since my doctor changed to emergency medicine. How do you weed out the good doctors from the uncaring?
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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
 		   Posted 9/11/2007 12:03 AM (GMT -6)   
Hi another day:)

I received my omron today. I won't have time to check it out until later in the week. My new daughter-in-law's mother passed and her funeral is tomorrow. She also had wide spread cancer. I wanted you to know that the web site is okay and sends products when they say. I opened the package and all is there and in excellent condition. If yu need parts this seems a good place to order from, They said four to five days and it arrived 5 days(four working days). Thanks for the help:)
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Another Day
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Date Joined Mar 2007
Total Posts : 1055
 		   Posted 9/11/2007 4:48 PM (GMT -6)   

Ceebee,

First of all, I am so sorry about all the recent losses in your family, too many for one family at one time.

I'm glad you got your nebulizer.  It definitely sounds like you need a new doctor to treat your asthma.  When an asthma patient is bad enough to need a nebulizer, they are going to need Prednisone from time to time, just my personal opinion.  I am treated by my allergist who was already treating me for allergies before the asthma came on.  I see her once a month for my Xolair injection.  When I saw her this past Thursday for my Xolair injection, I had gotten really sick during the night.  She treats it aggressively and I can't believe how good I felt by yesterday. Ketek is an antibiotic that works great for my lung infections. I'm tapering off Prednisone now. She also knows that I know when I have bronchitis or when I have an infection and is willing to order what I need over the phone without me having to come in.  She knows that by this time, I know when it's time for me to come in and let her to listen to my chest.

I feel very fortunate to have a great doctor who will treat my asthma attacks that get out of my control in her office.  She will work with me for three or four hours or whatever it takes to save me from having to go to the ER. I don't know of another doctor in this city who will do that. My worst attacks have always been in the day time, which is unusual.  I haven't had an attack that bad since I stopped working last August.  Not only was I working in an "environmentally sick" building, but people just aren't nice when you have to miss work because you're sick.  We all know what stress does to asthma.

From everything I read, asthma patients treated by allergists seem to do better.  Do you have an allergist in your area?  If not, at best you need a new primary care physician.

Sorry to ramble.

You and your family are in my prayers,

Carla

 Epilepsy, asthma, GERD, depression, hypothyroidism

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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
 		   Posted 9/11/2007 9:56 PM (GMT -6)   
Hi another day,

I am in the process of looking for a new internist or family doctor who knows asthma. The one I have won't help at all, just wants me in the hospital all the time. I have been on prednisone 16 days of every month for a year. I am ready to give up, I am so tired. I just got off prednisone last week. I am losing weight on prednisone and it is making me tired and weak. Reverse effects, hey? I lost 18 pounds on this course of prednisone. I had signs of diabetes while on prednisone but they are going away now I am off. This happened to me before when I was in the hospital and I needed insulin. That also went away after I stopped prednisone. I can only see the lung doctor every 2 or 3 months and have no one else to help in between. He has me on $1300 of meds a month. I feel over treated sometimes. We live close to a teaching hospital that is good. I was thinking of going there. Asthma would be bad enough but with trying to find a doctor who will work with you to control it, it makes it twice as bad. I have not heard of ketek but am on z-pak or levaquin every month. They change it to one then the other. Thanks for all your concern and help:) It sure helps.
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Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
 		   Posted 9/12/2007 9:43 PM (GMT -6)   
Ceebee,
 
As severe as my asthma is, which it has to be for me to be on Xolair, I have never spent a day in the hospital for asthma.  The one ER visit I had, they did try to keep me, but after they had me under control, I begged and convinced them that I would be o.k. at home. 
 
You definitely need a new doctor to treat your asthma.  If you are spending time in the hospital for asthma, I would suggest that you talk to your doctor about Xolair injections.  It does cost about $10,000.00 per year, but insurance companies are learning that it is cheaper to pay than several hospital stays for severe asthma patients.
 
I hope you like your new nebulizer and that you can find the right care.  If you have a teaching hospital near you, that would be a good start.
 
Take care!
 
Carla
 Epilepsy, asthma, GERD, depression, hypothyroidism

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