I do take my meds. Every single day. I have been since I was pregnant. I decided that I needed to find someone to help me, or tell my that I'm trippin because I can't even play with my kiddo. And I'm so NOT a lazy person! But lately, when I'm at home, I just want to sit and try to breathe on my chair. It just plain stinks! It's a dull constant pain in between my shoulder blades and a little more on my left side, and also on the front of my chest. If I wasn't taking the naprosen, I know it would be unbearable. When I was a kid, I never got sick, ever. Now I feel like I'm sick all the time.
Carla, I do not have a nebulizer. I don't even have a peak flow meter. I am going to seriously have a talk with my doctor. I have actually not even been proactive in doing some research on this disease that I have, and I should have done this long ago. But now that i am researching, I'm finding out so much more. Maybe I should go to a pulmonologist??? I don't see any specialists. I'll talk with the doc. My appointment is tomorrow.
I noticed that you had GERD, Carla. My kiddo has had a rough time with GERD. To the point that she is on a G-tube and had a reflux surgery. She's been hospitalized 8 times for malnutrition, dehydration. It effected her so horribly that she is developmentally delayed, has hypotonia and is in all therapies. Ever since she had that surgery, though, she has been so much better!
I would highly recommend you seeing an allergist. My allergist treats my asthma. I had already been seeing her for a number of years for allergies before I got asthma. I just asked if you were being treated by an allergist or a pulmonologist to try to get a feel for where you were.
You definitely need a nebulizer and you also need a peak flow meter. You can now get the small nebulizers that you can also use in your car, it comes with an adapter. I use the Omron which runs around $100. I bought mine locally, but I found one on-line for another HealingWell member a while back and it was about the same price. It gives you a real feeling of security to know that you can pull over and take a breathing treatment when you need to. You also need a peak flow meter. Most allergists will give you one or they probably cost less than $10. This is a vital tool to let you know when you are in trouble.
I certainly do not think you are a lazy person. I think you are not being treated properly for your asthma. When your breathing isn't right, you have no energy. Ask your doctor to refer you to an allergist and ask the allergist about Xolair. It sounds like you could benefit from it. You have to take care of yourself so you can take care of that sweet little one. Your asthma is too serious to be treated by a GP or a family doctor.
Please keep us posted.
Prayers for you and the little one,
I'm so upset! I just got done typing up a reply and my computer suddenly restarted to update. GGGRRR!!! Lets see if I can cover everything I had before.
I wanted to thank you guys so much. You don't know how much you have helped me! Your responses have given me strength to speak up. I am not very good about describing my symptoms to my doctor because I really don't like to admit that I have a problem. But the fact is that I do. Also, for some strange reason and I don't know how...I just felt that it wasn't that bad? i know I know.... stupid of me, but you guys helped me to realize how much I need some help, so thank you! I was so upset the past few weeks with how hard it was for me to breathe. I finally came clean to the doctor and explained my all symptoms yesterday. She said, "Shame on you. If you don't tell me exactly what is going on, I won't be able to treat you right." Shame on me! She was really shocked with how much I have been coping with such severe asthma. I think she knew it was pretty bad anyways. She told me how close I have been to death (with my discription of my symptoms) and basically told me everything you guys did. That asthma is a very serious disease and can cause death rapidly. Oh man, she scared me, but i guess I needed to know that from someone. I don't want to die. She said that given the severity of my symptoms, I was on her verge of death at any moment. Oh my goodness... I can't believe I let it get this far! She said that all it takes is for me to pass out and not have help around. She's so right!!! I live alone too, well with my 21 month old daughter... so nobody would be here to help me out if I did pass out. my chest was even retracting. At the office visit, my pulse ox was 96, but I felt that I was breathing a little better at the office, so I know it gets way lower!
Here's what she did. She gave me a steroid shot in the butt. OUCH! But it helped... it just made my thoughts go all over the place for a couple of hours. Then she added some new medication. I'm now taking spiriva on top of singulair, symbicort, xopenex and naprosen. She is also putting me on nebulizer treatments. I have a follow up in two weeks. Hopefully soon I will get the nebulizer and medication. I think she added another med into the neb treatments too. I'm not sure, can't remember, but I should remember. I will be sure to call her. she also said that the dull pain in my shoulder area and chest is from my trying to breath. I bring in my shoulders a lot when I am struggling to breath, which is ALL THE TIME! My lungs were "tight" sounding in the office, but clear. I had a chest x-ray a couple of months ago when my pleurissy was diagnosed. It was normal.
So, with all this medication, is it going to jumble my mind? Am I going to be jittery all the time? I guess if I am it would be better for me to breathe right... so i guess I could take the jittery feeling.
Also, when is it the best time for me to take spiriva? I am taking my naprosen and symbicort in the morning when i get up. The xopenex about four times a day, and symbicort, naprosen and singulair at night. I was thinking about taking the spiriva at lunch time? Also, are these drugs ok to take together? I was reading the spiriva information and it didn't say anything about it being dangerous.
Thanks again for all of your words of wisdom and whipping me into shape!
Ive read your post, and i know excatcly how you feel, believe me.
I found a way to control it, I practicaly dont have asthma anymore, and I refused to take any medication, I hate them, I have trying since a kid, today I am 24 years old and I can control it 95%.
I made excersices, I have made tests, I have working on it with control, with meditation (not too much of it, after medications I hate them too).
I hate medications, I hate the spray, I hate all of it, any medicine, I discovered that the solution is inside ourselves, trust me. All started when I saw a friend saying bad thing to another friend, and that person started to cry, with out any violence, without any contact at all, then I just realize that the mind can control your body, that what happens in your head can make a reaction inside you, biologically.
There is a way to make your airways got opened when you need to, there is a way to MAKE your lungs works perfectly.
I Had suffered this for many years when i was a kid, I know the suffering, and I want to share my progress with the everybody, I would love to chat with you, anytime.
edited. 11. No cryptic posts. Using cryptic messages to "skirt" the rules is not permitted.
Post Edited By Moderator (another day) : 10/26/2007 7:32:44 PM (GMT-6)