Anyone else with a sulfite intolerance? I would love to hear from you!

New Topic Locked Topic Printable Version
224 posts in this thread.
Viewing Page :
 1  2  3  4  5  6  7  8  9 
[ << Previous Thread | Next Thread >> ]

jnascime
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/3/2011 12:25 PM (GMT -6)   
Hey Alcie,
I posted this on another topic, but I just found this one and I think it might be more appropriate/beneficial for people dealing with this:
I've seen some of your other posts and just wanted to ask you some questions if you don't mind. It seems like you have a wealth of knowledge on sulfite allergies. I have not confirmed a sulfite intolerance, however I used to be on Bactrim for about 2 years, and then all of a sudden I had a terrible hives breakout. Ever since then I have been free of hives, but have had an all over body itch for the past 7 months. Antihistamines don't help, even prednisone didn't really help. Thankfully I don't have the hives that often accompany the itch, but still, being constantly itchy is brutal. In any case, I haven't taken Bactrim since that hives breakout 7 months ago as I read that after taking sulfa based drugs for some time you can develop an allergy to it. Well now I'm considering the possibility of a sulfite sensitivity. I have had worse headaches over the past 7 months, however they aren't frequent enough for me to make any connection to the food I'm eating. I know that what I eat nothing by rice and chicken, I itch significantly less than when I eat without paying attention. I haven't eaten sulfite free long enough to know if my itch will go completely away. I was wondering if with your expertise on the subject, do you think I could have this allergy based on my symptom (mostly itching). Additionally, i know the only way to know for sure is to avoid sulfites for a while, and I want to do this, but everytime I try, i fail because I"m at a loss for what to eat.

If you could provide the names of the products you buy that you know don't have sulfites and where you got them that would be great. I'm a big sweets eater, and a big soda drinker... if there are sweets or sodas without sulfites I"d love to hear about it. Additionally, bread, and I know cheese has a lot, but if there is any cheese that you can tolerate please let me know. Thank you for your guidance, I look forward to hearing back from you! I hope i can find the cause of this relentless itch. I have tried gluten free to no avail. I have also been tested for most foods and outside allergies, and I have none. I have even attempted the candida diet, and that didn't help at all either. As a result of this itch without a cause I have had severe anxiety (which i know can be caused by a sulfite allergy too) and have since been on prozac. It doesn't cure the issue, but it certainly helps make life more livable. It seems so silly to be this down about an itch. I have no rash, or markings on my body... i just simply have an irritating, daily prickly itch that I didn't have prior to my hives breakout 7 months ago. Thanks again!

-Jennifer

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 5/3/2011 6:01 PM (GMT -6)   
Hi Jennifer -
 
I know a bit about sulfite "sensitivity/intolerance" but not as much as some others about sulfite "allergy."  You can get a lot of information by reading the old threads, which you can access by typing in your keywords in the search box just under the "join healingwell" box at the top, right of the page.
 
Allergy to Bactrim does not necessarily mean you are allergic or sensitive to sulfites, but if you have sulfite allergy or sensitivity symptoms, it might be useful to do a bunch of research on yourself to find out.  IF YOU HAVE LIFE-THREATENING REACTIONS PLEASE CONSULT YOUR ALERGIST BEFORE DOING ANY SELF TESTING!
 
Migraines, stomach refluxing and rapid heartbeat are symptoms I know a little about.  I get the last two, which for me come on within a half hour to two hours of eating over a total for the day of 2000 to 3000 micrograms of sulfite.  That's not horribly sensitive, but I used to be worse.  Migraine sufferers can react up to two days after consuming their trigger dosage.  There's a whole book on this, with how to calculate, free at http://www.learningtarget.com/nosulfites/index.htm
The lists of sulfite-containing foods on most websites is not too helpful because you have to know which foods have a LOT of sulfite, not the ones that just have a little.
 
Eating rice and chicken may not help if you are flavoring them with onions or pepper.  Sodas are out permanently and didn't give you any nutrition anyway.  If you need fizz try mineral water.  Sugar is OK if it's cane, bread is out if it came from a store, although some independent bakeries bake clean - no dough "conditioners" or corn syrup.  Check out my posts about keeping a "food log" aka "food journal" higher in this thread or in others in the search box.  It takes a couple of months to figure out a list of food intolerances!
 
You really ought to see an allergist and get skin testing done to see if you have allergies that can be detected by the normal methods.  Blood testing isn't very reliable.
 
 
 

gapey
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/6/2011 10:12 PM (GMT -6)   
Hello just came across this thread in a Google search for "sulfite allergy Seattle" I was hoping to find a doc that specialized in that or knew more about it than my current allergist.

I just recently discovered I am allergic to sulfites at least that is my assumption both red and more so white wine cause me to get bad eczema on my right cheek which started over a year and a half ago when I came into contact with epoxy resin on that side of my face. Crazy how something like that could turn into what it has become now. I never thought sulfites could be in other non-food items. Thanks to Alcie for mentioning that. I looked at my products and a few of them have sulfates in them, specifically the SPF30 lotion I have which I used over the weekend. That explains the recurrence of my eczema today since I have cut wine out of my diet for the past couple of weeks. I have heard a lot of people recommend Vitamin B complex and am considering giving that a try.

My eczema has been going on for over a year and a half and no dermatologist or allergist has been able to figure out what is causing it. I only recently discovered myself that wine seemed to be instigating it. When I brought ti up to my allergist, the only recommendation for me was to just not drink wine. Just getting so fed up with this and wish it would disappear.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 6/8/2011 7:52 PM (GMT -6)   
SulfAtes are not a problem, They are different from sulfItes. But there are lotions and potions that have sulfites in them, and sensitivity is often acquired from exposure. (I'm going to post about my new grass allergy in a minute.)

Do go back in this thread and read about keeping a food journal. It's the best way to figure out food sensitivities. It really helps your allergist too, when you come in with a list of foods that set you off with a reaction.

There are lots of other ingredients that can cause eczema, probably more commonly that sulfite, but the link to wine is how I first noticed that I had a sensitivity problem too. Now, if you get it with beer or gelatin, that would create a good probability.
Alcie
 
 

gapey
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/8/2011 8:18 PM (GMT -6)   
Yup I've been keeping a food journal for the past couple of weeks. I'm on an elimination diet right now for corn, rice, soy, dairy, egg, tomato, potato and yeast since I showed some sensitivity to those in a skin test and I decided to cut out coffee from my daily routine recently too. I also showed sensitivity to almost every mold and mite test too. It was surprising to them that I didn't react to hardly any pollen and trees and the only food test I didn't test positive on was wheat so at least I can eat that. Something definitely not right with my body. After my elimination diet I will probably do a good kidney/liver cleanse. It's been a few years since I've done that.

Grootje
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 6/11/2011 11:13 PM (GMT -6)   
thank you. I am a new member who just finished reading every entry. I joined because of the mystery of sulfites. I ha e had several serious episodes that I now believe were anaphylaxis, including losing consciousness and vomiting in public restaurants. At first I eliminated certain wines, garlic and felt ok but the last episode was the worst because I had nothing to drink. My husband caught me as I was sinking down. the manager treated us as drunk until the bartender told him I had nothing to drink. It was probably potatoes that had been frozen and treated with sulfites. a new allergist has prescribed an epi pen which I take everywhere with me, but she does not think my problem is sulfites because I test negative for asthma. It seems everyone who has sulfite sensitivity also has asthma. Is this your experience?
I am doing well on a restricted regimen of no wine, cow cheese, potatoes, olives, or dried fruit. I would like to hear from others about organic wines or scotch thAt you can tolerate or multivitamins. I am intrigued with the mention of Cleveland Clinic and the idea of B12 shots. Grootje

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 6/12/2011 4:07 PM (GMT -6)   
Not nearly all people with sulfite intolerance have asthma. I dont. It's an unproven myth because there's no accepted test for sulfite intolerance. Asthma may be common, probably more common with people who have sulfite allergy.

Even your epi pen has sulfite, but hopefully not in a dose that would give you a big problem. With sulfites, it's how much you tolerate, not whether it's there. This is not like a peanut allergy! Even so, there's enough sulfite in all grape wines to bother me. It's in the grapes.

I get quite ill if I eat pork or gelatin. Brown sugar is a bad one for me too. I love sweet rolls, but the carmel topping is one of my triggers. Maple syrup and a lot of breads made with "dough conditioners" and preservatives, which are becomming all to common are on my strictly avoid list.

I get B-12 shots, but they don't seem to make any difference at all.

If you keep a food journal and avoid foods you know have a lot of sulfite you may keep your episodes to a minimum. One person on the forum figured out her problem wasn't sulfite but histamine releasers. So read about that and see if all your trigger foods fall into one category. MSG is in nearly all the sulfite-containing foods too. I just had a problem with a histamine-releasing anesthetic, but it was a sulfonate, so I don't know for sure what the problem was. It's going on my very long list of meds to avoid!
Alcie
 
 

Grootje
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 6/12/2011 9:54 PM (GMT -6)   
thank you Alcie for the reply. I have put more energy into my food diary. I had a false sense of control as I kind of slithered Into this strange world of watching every thing that I eat. The false Impression I had that wine or aged cheese was always involved and I could solve this by avoiding them was naive. Now I am remembering other occasions with slight reactions, almost just discomforts that I thought was moodiness or exhaustion. clearly I have work to do.

kitkataz
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/14/2011 12:10 AM (GMT -6)   
Hi everyone. I have only discovered my sulfite sensitivity in the last 6 months. My reaction was a racing heart for several days with high amounts of sulfites (sulfured molasses in homemade bread) and extreme itching and itchy rashes with low amounts (almost all food, but the apple cider vinegar I was eating on salad daily is what finally clued me into the sulfite connection).

Jennifer, I just wanted to tell you that I get the brutality of the itch. It was a total nightmare. Mine started after a h1n1 vaccination and lasted over a year. Dreadful.... I also had itchy red, weepy rashes that were biopsied and diagnosed as psoriasis, but they cleared right up (along with the itch) when I limited the sulfites.

And I feel for you with the soda and sweets thing. I have found a soda that I can tolerate, although I agree with Alcie they provide no nutritional value, I just really want a cola sometimes... and the Whole Foods 365 brand uses cane sugar and cane for their coloring as well (stay away from most caramel coloring!!) I would consider myself a medium tolerance level. So the soda might not work for everyone....

I have found a wealth of info and super helpful sulfite sensitive people - its a yahoo group, easy enough to find, I just stumbled upon it in my google searches. The members have been there and are super helpful, along with lots of archives of old posts.

Kat

gapey
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/14/2011 12:21 AM (GMT -6)   
Cane Sugar? I didn't realize there were sulfites in that too. I usually use it in my coffee and other things. I guess I need to start watching for that too. I am pretty new to this whole sulfite sensitivity thing. I'm not liking it one bit. :( I just started today on some sublingual B12 prescribed by my environmental illness doctor I've been seeing recently. Hope that helps.

kitkataz
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/14/2011 1:12 AM (GMT -6)   
Gapey,

If you were replying to me, the cane sugar is okay. The 365 brand soda is the one that I can tolerate because they do use cane. Most soda's use caramel coloring (derived from corn), or corn syrup - both highly sulfited, but the whole foods brand does not. Sorry, if I did not write that clearly.

I use C&H cane sugar in organic coffee and in fresh homemade lemonade. Thats all I drink (except the occasional 365 soda) besides water. And watch out for water, they add sulfites to it too. Argggg.

Good luck with the B12, and look into Molybdemum supplements. It helps your body process the sulfites and may be able to increase your tolerance level. I'm trying it, but it is too soon to tell for if it will help me.

Kat

PS If anyone wants more info, Rick Williams has most of his book available to read online. It has helped me a lot. http://www.readingtarget.com/nosulfites/

gapey
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/14/2011 10:20 AM (GMT -6)   
Oh whew I use cane sugar all the time so that's a relief. I guess I misread that. There are still a few more food allergy tests I want to have done and cane sugar is one of them. I've also recently taken a break from coffee as well though I haven't been tested for that yet but am going to request that I do as I've been drinking it every day for a while. I've shown sensitivity to almost everything I've tested so far so I'm a little scared to do more cuz I'll probably be sensitive to those too.

I also got a blood test for serum copper the other day which is related to Molybdemum. If it's high they they will probably put me on molybdenum too. Waiting for results from that.

Thanks for the link to that I will check it out.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 6/14/2011 5:09 PM (GMT -6)   
Welcome newbies to sulfite intolerance.
 
Cane sugar should be no problem, but avoid bottled lemon juice, including lemonaid at restaurants.  That stuff's got over 100ppm sulfite.  Clean lemon juice is in the frozen juice section.  Brown sugar is way worse than white, and beet sugar should be avoided if you use a lot.  Artificial sweeteners  are as bad or worse because they all have fillers, usually dextrose, which is sulfited.
 
Kat, I'm using the "post reply" instead of the quick reply to make the link clickable.
I like this book because you can learn to calculate how much sulfite is in your food.  You don't have to avoid everything, just the stuff that has toxic amounts.  I especially like the information on medications.  Some sites list tons of meds to avoid, but some of those meds are fine because they have low amounts of sulfite.
 
If you react to flu shots, don't get others unless you check them out.  Most have gelatin, and will have sulfite preservative if they are in multiple dose vials.  I've reacted to some.  I have to avoid everything with any significant amount of gelatin, including liqui-gel capsules of OTC meds.
 
If you get itching, you may be allergic as well as sensitive, so keep the food journal to help figure it out.
Rice vinegar is fine.  I use apple cider vinegar strictly for cleaning windows.
 

Phlox
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 8/4/2011 8:11 AM (GMT -6)   
Hi, I am new to this site and a blogging virgin so please forgive any mistakes.

I wanted to share with everyone who has a sulphite allergy my experience and hopefully share yours too, including any help and advise we can swap.

Up until 6 months ago I had been severely ill for nearly 8 years. It was so bad that I went from being a highly paid Director of a company to not being unable to work at all. I felt like the whole of my 40's was just wasted.

Over the time I had numerous tests which in the main were negative or not thought to be clinically significant.

I was therefore diagnosed with anxiety and depression and put on the too difficult pile. I felt this was wrong and whilst I accepted my mental health was not what it should be I felt strongly it was physiologically based so went on the search for a solution myself.

Well, it turned out to be an allergy to sulphites and since removing them from my diet as much as possible I have been pretty much symptom free for the past 6 months. Yippee!!! I feel SO much better. The turn around took about a week.

reading the websites etc lots of people associate sulphite allergy with asthma but I don't and never have had asthma with my allergy. Am I the only one?

If I have sulphites I do get breathless but this seems to be caused by a build up of gas in my stomach which seems to prevent my diaphragm from working properly. Any ideas? definately not wheezy though.

My symptoms are as follows if I eat/drink sulphites

Mental confusion or aggression
Joint mobility issues - like a temporary Rheumatoid arthritis. I can barely walk and am in pain.
Heart palpitations
nausea
stuffed up nose
hot flush
IBS and stomach pains
skin rash which was diagnosed as Jessners lymphocitic infiltrate but has now gone since stopping sulphites.

Also I can't digest carbs well, so have had cut these down considerably.

liver pain (which I still get regularly)

Have other people had similar non asthmatic symptoms? I am particularly interested in views on carb digestion and liver symptoms. I know you can suffer a B1 thiamine deficiency and this can be linked to digestion of carbs. I therefore take a supplement, but it doesn't seem to have helped with the carb digestion.

Two years ago I had an abnormal liver ultrasound, I had highly echogenic marks all over it. I was told it's not cancer. I had a follow up ultrasound and was told this was normal - except I have just found out it wasn't!!!

They couldn't identify it so I think they decided to ignore it.

However, they are now doing, at my request, an additional investigation as I am still getting regular discomfort and would like to know what it is. Does this mean anything to any other sulphite allergy sufferers?

Does the sulphite allergy effect your liver short term or damage it in the long term - anyone any ideas?

Initially i concentrated on what I was eating and drinking (in terms of tea) but I improved a lot when I realised that the bottled water I was drinking was very high as was my tap water. I therefore changed to a low sulphate water and my health improved even more.

When we went on holiday I found I couldn't drink the bottled water (italian) and so picked a bottle of water which didn't have any declared sulphite thinking it would be low. It wasn't and I was very sick ( literally vomiting as well) and had to come home from hols 10 days early!

I have found a site called waters of the world which has helped me in identifying sulphite levels in water.

I have stopped drinking alcohol entirely (I was only a wine drinker) but do drink a Shweppes slimline tonic a night. I went on holiday and I thought I was OK if i stuck to same brand etc-the can was identical. After I became ill I looked at the ingredients and it contained a sulphite based preservative. Schweppes have since told me they vary the recipe from country to country, so be careful.

I know do a lot more research before I go on hols and contact the hotel. When I went in June I sent my own water by Courier.

Like everyone I find my diet really restrictive and boring. has anyone come into contact with a nutritionist or medical professional who has been really helpful?

Hope you can help and I will keep in touch if I find anything that I think is useful.

Thanks for your time.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 8/4/2011 8:55 AM (GMT -6)   
Welcome, Phlox.  Glad you've found us.  Just remember that we are not doctors, just patients, and have all had different experiences.
There are duifferent degrees of sulfite (USA spelling) intolerance.  There is also sulfite allergy - poor people!  Also, sulfite is very different from sulfate.  Good explanation at http://www.learningtarget.com/nosulfites/index.htm.
Some people have intolerance to sulfites in lotions and beauty products (again - NOT the same as sulfate).  This can come out as a rash.  Beware of sulfites in medicines also.
 
First thing you need to do is figure out your tolerance - as long as you don't have an actual allergy.  The website above gives you directions on how to calculate how much sulfite is in a portion of food or drink.  I have figured I tolerate about 2000 micrograms a day.  When you know how much is in different foods, you can tell how much you can eat.  This goes a long way to lifting the limits on your diet!  I can have an occasional soda or a slice of pizza (depending on the toppings).
 
Digesting carbs is probably not related, although I don't digest them well either.  I take a cheap generic pancrelipase capsule with each meal that has fat or white carbs - especially bread.  Speaking of bread: you could also have an intolerance to wheat.  I have figured out it bothers me.  There's nothing preventing us from having more than one condition!  I do fine with rice, oatmeal, fresh potatoes, other starches.  French fries are sulfited to keep them white here.
 
I don't have asthma, but a lot of sulfite intolerant people do.  I do get heart arrhythmia and tachycardia from consuming sulfite beyond my tolerance.  Look up cardioesophageal reflex.  Heart and stomach, esophagus are connected by vagus nerve.  It explains a lot about IBS.  I was in the ER once when I had an abscess in my colon which caused a bad tachycardia.  I had the heart converted with adenosine, but I ended up in hospital 10 days on antibiotics for the infection.
 
Water: It shouldn't be a problem if it has sulfate, but some water could indeed have sulfite if it has a little sulfur dioxide from a coal seam or sulfur spring.
 
Best wishes!
 

Phlox
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 8/4/2011 2:00 PM (GMT -6)   
Thank you for your reply - I really appreciate it. i think you are spot on about the cardioesophageal reflux. I have no arrymthia as long as I am avoiding sulfites but if I eat something with it in I have to take Propranol to steady my heart. I also get terrible acid reflux and wind etc.

I also take a thing a carb digestive enzyme which helps but I have found that in my case I feel best if I keep to a low carb diet.

I'll let you know what the liver consultant suggests and also I am hoping to see Professor Brostoff who is an eminent Allergy guy in London.

I will let you know what they have to say/think.

Best wishes!

supermum
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/11/2011 7:08 AM (GMT -6)   
Hi
 
I am very new to all this and until yesterday thought I was going round the twist we discovered that I have a very severe allergy to Sulphites(sulphur) and just dont know where to start I see that many others are on here with the same problems.  I sincerely need your help can you help me please. Where do I start and how.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 8/11/2011 10:27 AM (GMT -6)   
Welcome supermum.   I presume you are from UK, by your name and writing.
 
A place to start is the search box at the top of the forum page.  If you spell "sulfite" you may find more of our posts, as most of us use USA spelling.  Another great site is http://www.learningtarget.com/nosulfites/index.htm.
 
Do you have an actual allergy - throat closing, skin reactions, etc?  Or do you have what they now term a "sensitivity" or an "intolerance?"  Most of us are just sensitive, have reactions lik stomach refluxing or tachycardia.
 
I found my intolerance problem when an allergist had me keep a food diary/journal.  I knew I reacted to some specific foods.  Since then I have found how much sulfite I can tolerate - using the info on the website I listed.  I can have an occasional slice of pizza instead of running in fear, as long as I severely limit any other source of sulfite for the week.
 
Nice to meet you, and happy reading!

supermum
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/11/2011 8:13 PM (GMT -6)   
thank you so much for your reply, my name is Mel and I come from Western Australia, although born in England. I first of all have diabetes II,but have found that I suffered first from stomach refluxing and then thought it were the diabetic tablets, the doctor gave me bactrin as he thought I have some sort of bug in the throat, that made the reflux far worse than I could even imagine. Then it was a daily thing of this burning sensation in the throat and the reflux wow never in my life had I had something like this. Then after eating the stomach pains and the rushing to the loo, unbelieveable. I then started to write down what I ate and how I felt and now I have taken away things like I found potatoes, mushrooms, tomato bases products, or ready made sauces with tomato or pasta sauce, as next day could hardly walk and feeling ill. I noticed that I could hardly sit and talk to my husband the next day if he ate garlic bread etc the day before and then I started to ask the doctor he said there are no tests for sulphites. So I just need some support at the moment, now know I am not being stupid, this is for real. I throat yesterday almost closed and I panicked but realised that the fruit I had from a can must have had something in it(apple) and stopped. But what do you have if an allergy occurs, as ventolin as sulphite in it, and antihistamines have sulphite in it.
How do you stop the allergy it scares me. So far its back to basics I believe.
regards
Mel

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 8/12/2011 1:16 PM (GMT -6)   
Hi Mel -

It's possible you have a true allergic reaction to something, not just an intolerance, or it could be a severe sensitivity, as that happens too.

Bactrim bothers lots of people especially if it's given in a high dose. It may be the sulfite in the drug, but it gives people without the sensitivity stomach problems too. I can take it in smaller doses.

Plain, fresh potatoes do not have sulfite. Frozen potatoes, at least in the USA, always have sulfite to keep them white. So do canned and dried potatoes. I can't figure out if there could be any sulfite getting to you from your husband's breath, although it could indeed knock you over from the smell. Canned fruit could have sulfite to keep the color, or it could be in sugars added, especially corn syrup or dextrose. I always have a problem with a whole serving of tomato sauces, but a taste is OK unless you have an anaphalactic reaction - true allergy.

Keep on writing down your foods, also drinks and medicines. Use a small notebook with dates, times, reactions especially immediate and an hour or two. Migraine sufferers can react a day after eating sulfites.

Look up the link I posted for an entire book on sulfites. It has how to calculate how much sulfite you are eating in your meals.

It will take a couple of months to get a good list of your food intolerances. After a meal in which you react you should break down the ingredients and - CAREFULLY - preferably with the direction of an allergist - eat a small portion of one ingredient at a time. Look up on the search box at the top of the page "Challenge Testing."
I can eat the meat in a hamburger, also the lettuce and tomato, but not the ketchup, onion, pickle, or mustard. Some bread gives me a reaction also, unless it is home-made. Commercial bread often contains "dough conditioners" which contain sulfite.

When you get your list together, check it against all food intolerances and allergies. You could have more than one! Sulfite is not the only allergen. MSG, saccharin, many other things can be a separate problem.
Alcie
 
 

Grootje
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 8/24/2011 12:07 PM (GMT -6)   
although I have been watching my food intake I tool a break from new research. the latest postings have been very helpful. about liver or abdominal pain, I have had episodes that were tested for a hernia near the navel that forms at birth. the test was negative, but I never connected it to my sulfite problems. something to think about!

I too have bread and wheat issues, especially on the second day. Successful solutions for me include spelt products make by Eziekel bread company and rice pasta products from Joy. they taste good too. I can tolerate restaurant bread for one day only when eaten with other foods, not I isolation. I am not tempted by pizza but save up my limited carbs for pie or an occasional cracker. Lundberg rice cakes are also good, but bland.

thanks for the tip about Schweppes. since eliminating wine from my diet I rely on good scotch and gin and tonics so I will be more careful a out the tonic. Strangely enough, I have never been able to tolerate beer or olives, so maybe my system has a small amount of I tuition.

the strange thing about reviewing these events over decades is that one begins to see that they are not emotional or work avoidance episodes but genuine physiological cause and effects. I guess I am trying to say the self diagnosis becomes a very positive realization.

ATXfred
New Member


Date Joined Sep 2011
Total Posts : 2
   Posted 9/24/2011 4:09 AM (GMT -6)   
Hello all! Glad to find this forum! I deduced sulfite intolerance after a sip of wine last year that made the inside of my mouth break out in hives. I took benadyl right away and told my husband to tell EMS that's what it was if I collapsed. I started research and discovered many correlation with things that already cause me hives, including shrimp and more recently fries from some restaurants.

I've had GERD issues, too, especially after drinking Perrier, and discovered it's high in sulphites.

I'm currently traveling in India, Nepal and Bhutan and just hope to make it home to untreated water. I've been down with a head/chest cold for several days so my guide persuaded me to see a doc. My BP was 180/110 and pulse over 100. My BP is normally controlled with 20-40 mg of ace inhibitor but he added niphedipine. Afterwards it dawned on me that HBP and tachycardia are symptoms of allergic reaction and when I checked the bottled water I've been living on it's labeled to contain "sulphates". I'm now desperately trying to find more highly purified water and not sure what to do whe I reach Nepal for two days. They are notorious for bad water so the bottled water will be my only choice. Soft drinks are not an option--nor are wine/beer. I've launched an online search for info on borttled water hoping to find something that has been filtered many times/ and with reverse osmosis so I don't die before I get home!

Cheers!

Post Edited (ATXfred) : 9/24/2011 3:13:39 AM (GMT-6)


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5022
   Posted 9/24/2011 10:01 AM (GMT -6)   
It sounds like you may have a true allergy to sulfites, not just the sensitivity/intolerance most of us have.  I was was unaware that some brands of bottled water have sulfite.  Thanks for posting because that explains why I have a reaction to mineral water, although not as bad as yours!
 
There is a website that has a page listing sulfite concentration in bottled water by brand: http://www.allergysulfiteinwater.com/index.html.  I don't know how accurate it is.  I don't have a problem with Perrier, but I only sip a little and don't have the true allergy.  Meantime, you might try distilled water if you can find it where you are.
 
Some people have posted success taking Zyrtec or Allavert daily to prevent reactions to sulfite in water.  At least those won't put you to sleep like Benadryl, although I keep that in my pocket (pill form, not liquid which is sulfited) to chew up in emergencies.
 
You might want to send your information to Rich to add a chapter to his book.  His info and free book are at http://www.learningtarget.com/nosulfites/index.htm

 

ATXfred
New Member


Date Joined Sep 2011
Total Posts : 2
   Posted 10/22/2011 3:19 PM (GMT -6)   
Thanks, Alcie. Actually, I keep a screen print of that bottled water chart on my phone so I have it with me all the time.

I'm home now and feeling MUCH better. My BP and pulse are getting back to normal. It was a little scary the last couple of days, but I found a couple of kinds of water that seemed to work. I found a website that "rates" bottled water worldwide and it had some useful information (not sure how accurate or updated but something to work with) http://www.mineralwaters.org/

As you say, distilled was what I was looking for--or reverse osmosis. I found enough to squeak by till I got home. Whew. I do take loratadine (claritin) daily, though I was not taking it over there, as I didn't think I'd have pollen problems. I'll re-think that tactic! I guess I'll also be re-thinking any world travel.

I really wish a local allergist had some experience with this, but I called around a couple of months ago and none of them do. The allergist I was seeing just gave me a link to http://www.aaaai.org/home.aspx and said good luck with that--just avoid them. I'm looking for a new allergist. With 1% of the population having problems, you'd think there'd be more than one or two places in the entire country that have a grasp on this issue. I guess it doesn't pay enough.

Thanks again, I'll be back with updates as I find more and experience (!?!) more.

flowerpetal
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 10/22/2011 7:13 PM (GMT -6)   
Hi Everyone

Another newbie here! Just wanted to pass on my story - Today I woke up with hugely puffy eyes and headache (again!) and wanted to find out why this is happening to me so frequently. I thought about what I had for dinner last night and the last time it happened and boiled it down to a large amount of garlic being in the food. So I googled these symptoms and came across sulphite sensitivity. Reading further I couldn't believe my eyes - so many symptoms were relevant to me and things started to whirr in my head.

about 8 years ago I had a reaction to Bactrim and came out in a rash all over my body
I have never been able to eat dried fruit esp dried apricots without my stomach gurgling and inevitable diarrhea
Terrible headaches/Migraines
Itchy eyes and mild rash on eyelids when visting a local area which is very sulphuric - boiling hot sulfur water pools, steam and mud
Depression - Currently taking high dose of antidepressant - with lethargy and very tearful times
Indigestion with just about every type of vitamin supplement
Waking up with extremely puffed out eyes - looks like they are injected with some kind of liquid!

As I sit typing this in bed I am crying and excited at the same time. Happy to may have found an answer to get my life back on track I am anxious to get on and find out if this really is the cause of my problems.

Compared to others in this forum I realise that my symptoms are milder than others but I really am relieved and anxious to explore this condition more.

I welcome any feedback and support direct to my email! ( i am particularly interested in any info/success with vitamin b supplements)

Also would like to hear from anyone in New Zealand who has visited a practitioner who has helped them
New Topic Locked Topic Printable Version
224 posts in this thread.
Viewing Page :
 1  2  3  4  5  6  7  8  9 
Forum Information
Currently it is Tuesday, August 14, 2018 5:31 AM (GMT -6)
There are a total of 2,992,450 posts in 327,956 threads.
View Active Threads


Who's Online
This forum has 161194 registered members. Please welcome our newest member, Nani170581.
228 Guest(s), 5 Registered Member(s) are currently online.  Details
Jazzy23, Darla, Tudpock18, FSLondon, Nani170581