Anyone else with a sulfite intolerance? I would love to hear from you!

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Alcie
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Date Joined Oct 2009
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   Posted 10/23/2011 7:01 PM (GMT -6)   
Welcome to the forum, flowerpetal.  If you put a few words into the searchbox at the top of the page, where it says "google custom search," right under "join healing well," you will come up with loads of older threads to read.  they are pretty much as current as ever and there are a lot of links to check out.  You'll be busy!
 
The best way to find out if you really are sensitive to sulfite (sulphite in UK) is to keep a good food log.  I like to use a calendar with a page for each day.  Write down everything you eat and drink, all medicines, the time you consumed them, and your reactions, with times.  People who get migraines can get reactions up to 2 days after eating their toxic dose.  For me, with mainly a gastric reaction that can trigger tachycardia, the reaction is usually about a half hour to 2 hours after I make my mistake.
 
There are sensitivities to other things, like MSG, where a lot of the foods are the same.  So don't jump to conclusions too quickly.  Working with an experienced allergist helps too.  Mine was the person who set me on the food journal.  She also had me do "challenge testing" after I had a list of foods.  I had to eat increasing portions of the ingredients in a suspect food.  That's in the threads in the search box too.
 
Some people have a true allergy, not just a sensitivity, to sulfites.  That will give you true allergy symptoms, hives, closing throat and such.
 
You can get a skin reaction to sulfite preservatives in lotions, things used to clean skin for surgery,  immunizations, etc.
 
You probably have a level of sulfite that triggers your reactions.  It's not usually like a peanut allergy, where the tiniest bit causes symptoms.  So don't get hysterical and avoid everything!  Some of the links will lead you to finding out how much is in certain foods.  I can tolerate about 2000 mcg (micrograms) a day, and even get a slice of pizza now and then.  I particularly like the http://www.learningtarget.com/nosulfites/index.htm. link to find out how much is in processed foods.  Example: Once you figure out that processed corn products have a certain amount in ppm (parts per million) you can calculate from labels if you have to avoid the food.
 
Best wishes.

pandoras_muse
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Date Joined Nov 2011
Total Posts : 1
   Posted 11/3/2011 11:36 AM (GMT -6)   
Hi,
I've just been reading through the posts on sulphites. I was mildly sensitive to them but recently went into anaphylactic shock after using a Neutrogena product called "T-Gel". I've written to Neutrogena, called but no response. I have continued discomfort in the six weeks since that reaction. I was wondering if that caused a chain reaction to all sulphites? Is that possible? For instance, I take Trazadone for depression, and codeine contin for fibromyalgia, does anyone know if these drugs have sulfites in them? Can the dose I received from the shampoo still be affecting me? And I am hypersensitive normally, from PTSD. But lately I can't tolerate the TV, light, noise or going outside at all. Has anyone had this symptom from sulfites? Thanks.

Alcie
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Date Joined Oct 2009
Total Posts : 5004
   Posted 11/3/2011 5:18 PM (GMT -6)   
Hi muse. Welcome to the forum! We're not doctors here, so take what we write with a couple grains of salt, and talk to your doctor for professional advice.

Have you been diagnosed with a sulfite (sulphite) intolerance?

I looked up trazodone on Drugs.com and found no sulfite in it or its "inactive" ingredients. The website did note anaphalactic reactions though. I know I react badly to it.

I don't know anything personally about codeine contin, but wikipedia says it causes depression and allergic reactions too.

Neutrogena T-gel seems to have coal tar in it, so that could be a source of sulfite. I personally wouldn't use it unless it was recommended by a physician for psoriasis or something. I do use Neutrogena products and have better luck with them than most soaps and shampoos and body washes. I would look at the trazodone and codeine before blaming the shampoo.

People who get migraines - is that what you are having? - can be having reactions to sulfite consumed up to 2 days previously. The only way to check this out is to keep a really good food journal. If you write down everything you eat, drink, all meds and the times consumed, and then write down your reactions, you can go over the journal and find out if there is any connection between your reactions and what you ate.

After finding some suspect foods you can do a "challenge test." I've posted lots on this in other threads. You can look it up by putting the words in the search box at the top of the page.

Best wishes.
Alcie
 
 

sdss1377
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Date Joined Dec 2011
Total Posts : 2
   Posted 12/1/2011 1:07 AM (GMT -6)   
I am allergic to sulfa, sulfates and sulfites. Sulfites give me cramps in my feet and calves and thighs.
Sulfates give me cramps in my colon and intestines and I end up in the ER. sulfa would probably kill me.

Sulfites also dry out my skin and hair they are in soaps and shampoos. Sulfites and sulfates are also used as preservatives in food. Sulfates are also a mineral in grapes and other foods. Natural or organic foods are the best bet when trying to avoid these and high fructose corn syrup.

sdss1377
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/1/2011 1:11 AM (GMT -6)   
I am not sure about your medications but the best thing to do is always ask your pharmacist and look up your meds online for ingredients and binding agents. I just recently had an infection in my eye and the dr. prescribed an antibiotic to take 4x per day for 7 days. I asked the pharmacist if there were sulfates in the Rx and sure enough there was. I refused to take the Rx and relied on my faith in healing. I looked up the antibiotics for eye infections and they all had a sulfate. I did not want to take the chance of losing my eye or my life.

Alcie
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Date Joined Oct 2009
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   Posted 12/1/2011 3:18 PM (GMT -6)   
Hi ssds, welcome to the forum.
 
I'm not quite sure if I understand your reactions.  I suspect you are a little mixed up between sulfites and sulfates.  Sulfites are SO3 and Sulfates are SO4.  Sulfites are found in grapes, pork, onions and such naturally.  Sulfites are often in medicines as preservatives and can break off, but don't always do so, when they are part of the compounds.  Sulfates in medicines are harmless.
 
The body cannot live without sulfates inside, but in shampoos and such they can cause lots of problems.  I get the dry hair too.
 
The prescription antibiotic eyedrops for eye infection has never been a problem for me.  I suspect you were prescribed gentamycin sulfate.  It's not a sulfite!  It should not trigger your allergy problem.  There are also OTC eye drops without preservatives.  I use Genteal brand successfully.  It comes in various strengths of "gell-ness."  Of course this isn't an antibiotic.
 
You have to try the antibiotics to see if they react for you.  I haven't had a problem even with sulfa drugs, but I only have the sensitivity.  I don't get the oro-pharyngeal swelling and hives of the true allergy some people have.  If you just have the sensitivity, just trying it shouldn't be a serious problem, although if you've already had a reaction, then you have to avoid it.  But you can, and should, check with a really good, experienced allergist!
 
OTC drugs are just as bad as prescription ones.  Liquid meds are the worst.  It's the coloring and sweeteners and flavors.  Liquid Benadryl is loaded with sulfite, but the tablets are fine.
 
I carry around 2 pages of meds that have given me reactions.  I've needed it a few times.  I can't remember everything.  My reaction is serious - stomach refluxing, then tachycardia that can send me to the ER.
 
You can get an entire book free online from http://www.learningtarget.com/nosulfites/index.htm
They also have a book for sale with the amounts of sulfite in medicines, which I did buy and have found very useful.  I am not selling the book, nor do I receive anything from the person who has it available.  I recommend reading and studying the free stuff first, before buying anything. 
 
There's a lot of difference between having a tiny bit of sulfite in something and going beyond your daily tolerance.  The free book tells you how to calculate how much you are consuming.
 
I hope I haven't scared you off.  I don't mean to criticize.  I've just been studying this stuff since it gave me a heart attack many years ago.  It's pretty serious stuff, and I learn as much from others as I teach them.  I can also be wrong.  I'm just a really old patient.

Stella5
New Member


Date Joined Nov 2011
Total Posts : 4
   Posted 12/7/2011 1:29 PM (GMT -6)   
Hello. I am a new member of this forum. I am suspecting sulfites are my problem, well possibly one of them anyways. I am glad to see there is some support out there for those of us going through this. This has been very difficult to figure out, and is frustrating to not be able to get the support from family and my doctors (because there is no way to test for this.) I did just find a doctor that said he could do a challenge with me by feeding it to me, so we will see how that goes!

Thank you for being here!

Jen

cutedame
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Date Joined Dec 2011
Total Posts : 1
   Posted 12/13/2011 3:11 PM (GMT -6)   
Hi I am new to the forum as well...have been dealing with sulfite allergy since 2006...had gastric bypass in 2004 and then 2 years later was eating balsamic vinegar with bread and broke out in hives from head to toe...continued happening after wine etc...so that is how I became aware...then in 2009 I came down with a wheat allergy...this has made my life hell..having both of these...and gastric bypass...which limits what I can eat already...it really is torture...now reading about vitamin probs leading to this it is all making sense...cause gastric bypass causes vitamin deficiencies in B vitamins, iron and calcium...fabulous eh?

Would love to hear if anyone else has had stomach surgery and is going thru this as well..I need support big time...cause I am going crazy when it comes to what I can and can't eat...arghhhh!

Love to you all and thanks for the support!
MaryJo

>>>>>>>>>>>>>>

Wheat, Banana and Sulfite allergies.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 12/13/2011 6:30 PM (GMT -6)   
Sounds like you could possibly have the true allergy to sulfites.  Have you seen an allergist for this?  It's really rare to have more than just the sensitivity, although we have members who have the allergy.  I would recommend you get some good medical testing from an allergist who has had experience - ask before just going to any old allergist.  Some don't even believe in it.
 
I've had a relative who had a gastric bypass.  She needed loads of vitamins.  You have to watch biotin - heavy on sulfite!  Vitamins don't cause the allergy, but that one can cause a reaction if you are allergic. 
 
Read the book I recommended a couple of posts up.  It will tell you how to calculate how much sulfite is in foods and meds.
 
Best wishes.  Let us know how it's going!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4415
   Posted 12/14/2011 8:13 PM (GMT -6)   
But sulfite reactions can certainly mimic severe allergic reactions - some of my sulfite reactions can be considered to be anaphylactoid, and require steroids and antihistamines as treatment (just as any other anaphylactic reaction would).

Cutedame, I think it was you who emailed me...I've replied, in any event.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Singulair, Andrographis & other herbs, homeopathy, supplements, etc.

Stella5
New Member


Date Joined Nov 2011
Total Posts : 4
   Posted 12/15/2011 8:32 AM (GMT -6)   
Does anyone know if the antiobiotic Rifaxamin contains sulfites?

Also I recently (within the last several months) rapidly developed sensitivities to soy, lactose, and it seems sulfites.
Doctors think I may have Chron's or some bacterial overgrowth. I wondered if anyone ever eats at a restaurant anymore, and if you do what you order. I haven't been out in a long time.

Also, I need to gain some weight and would love to hear ideas of your favorite foods or snacks!

Thanks much, Jen

rmtmom
New Member


Date Joined Dec 2011
Total Posts : 6
   Posted 12/15/2011 12:00 PM (GMT -6)   
Hi,

Is it possible to have temporary sulfite intolerance? This is the 3rd occurrence of it and it always seems to start with my 10 year in the swimming pool. For some reason if I follow the pool with an epsom salts bath, he's okay with it. But if I forget, he starts coughing and then his stomach goes haywire. He says the coughing is because of his stomach (acid reflux?) and his poop starts showing undigested food. The first episode lasted almost a year and he kept losing weight (wasn't absorbing nutrients from his food). I was so stressed, doctors galore (none could find out the source). He has asthma (and allergies) so the coughing aggravated it (was put on inhalers, steroids, etc) and none of the docs would believe that it was the stomach). My current theory is that the swimming pool probably has a copper ionizer and copper depletes molybdenum which starts his episodes and that the epsom salts (magnesium sulfate) counteracts it (when I remember to give him the bath). This article helped a lot: http://www.newtreatments.org/Sulfur/ga/252/Autism%20and%20phenol-sulphotransferase - very long article.

Anyway, fast forward 3 years and I learn something new each time. At least now I think I have the right term - sulfite sensitivity. At first, I thought that it was phenol sensitivity because so many of the foods overlap. When he's not in his episode, he's fine with pork, garlic, onions, broccoli, etc. He has a lot of allergies so I've been cooking from scratch for him all his life so it's a bit easier than for all you guys who have been eating processed foods.

I have a few questions: Do you know if potato chips (eg Cape Cod potato chips) have sulfites? Is taurine okay - it's a sulfur amino acid but it helps with digestion/bile? Some of the sites say taurine is a no-no. He's already taking a lot of folate/B12 for his MTHFR (folate genetic mutation) and have added molybdenum away from other supplements. I've also been giving him histidine which is an amino acid that produces histamine and involved in digestion but I'm a bit hesitant with it because it chelates minerals. Don't know if some of you want to try it as it's involved in CDO (cysteine dioxygenase) which is an iron-histidine enzyme involved in the sulfur oxidation of l-cysteine (see www.cfsn.com/sulph.html). His amino acid profile from 3 years ago shows low histidine and high cysteine so there some breakdown happening somewhere.

Anyone with any ideas about how to fix his stomach/digestion? He's driving me nuts (his food has no taste without the onions and garlic) and being restricted from pork, broccoli, etc. I've tried glycine - supposed to help produce bile and he can't swallow pills so no HCL, testing for acid reflux, etc. He coughs and gets a stuffy nose when he has stuff with sulfite in it. BTW, zinc sulfate ( Metagenics Zinc Drink) seems to make the stuffiness better (I'm giving the supplements separately so they don't counteract each other). Will giving him supplements in sulfate form help eg chrondroitin sulfate (glucosomine sulfate is made from shellfish to which he's allergic)? Something in some system is broken and I need to jump start it because he's okay with these foods when he's not in his "episodes." TIA.

rmtmom
New Member


Date Joined Dec 2011
Total Posts : 6
   Posted 12/15/2011 1:38 PM (GMT -6)   
Also, he had a test called Nutreval (http://www.truehealthlabs.com/nutreval-test/) done 3 years ago that has really helped me try to muddle through this. It's expensive but it tests for amino acids, vitamins, and minerals. His amino acid profile was a picture of (some) deficiencies which caused excesses (buildups) of the others - like a system of tubes some of which were clogged.

He has several things against him - MTHFR (which I think is the root cause of his problems - methylation), resulting in a deficiency of folate, causing a deficiency of histidine, resulting in the allergies (histamine), stomach problems (lack of stomach acid), malabsorption - resulting in a vicious cycle (lack of histidine and so on again). He also has Gilbert's Syndrome (elevated bilirubin - is that something to do with bile?) - dear husband's genes are smhair I need a bio-chemist (that's what the pediatrician tells me when I tell him all this stuff).

Any thoughts/comments?

rmtmom
New Member


Date Joined Dec 2011
Total Posts : 6
   Posted 12/15/2011 3:42 PM (GMT -6)   
Do you put sulfites on your potato chips?

There may be some sulfite agents used during the storage season which is usually between the end of September to mid spring.

Also checked his shower filter:

Thank you for your email. The Sprite Shower Filters do contain some calcium
sulfite, however, we are happy to make the filters with pure zinc and
copper. You can special order the filters by calling toll free
1-800-327-9137.

Kind Regards,

Michelle Farley
Sprite Industries
1791 Railroad St
Corona, CA 92880
Ph: 951-735-1015; 800-327-9137
Fax: 951-735-1016

Now, I'm wondering how much zinc and copper (especially since copper blocks molybdenum absorption) gets in his water. What a choice - chlorine/sulfites or copper (sigh).

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 12/15/2011 5:21 PM (GMT -6)   
Stella: Soy often has sulfites, and I've reacted to most of the products I've tried.
I became lactose intolerant as an adult for sure, maybe had a problem with sulfites as a baby, since I didn't tolerate formulae well - lots of dextrose in them back then.
I have no problem with milk proteins, so I add a tsp of whey to my coffee, oatmeal ... It's a protein, quite different from lactose, a sugar!
Snacks - I don't really recommend eating snacks, but Cheez-It crackers, at least the regular ones, are pretty low in sulfite. Put them on top of stuff to add cheese flavor instead of high sulfite cheese.
 
rmtmoom: Doesn't sound quite right for a sulfite intolerance. You sound very knowledgeable. I'd guess you are following with a good doctor. Avoiding processed foods is a good route for all of us. At least we know what's in our diets.
Instead of onions and garlic I use single spices in moderation - tiny pinch! - never any mixed spices! Fresh is best, but dried ones are OK. Pepper has sulfite! I don't use much salt, don't need it with the right spice! (except beef) My mom made up a real neat chart. It's taped inside my cupboard. Here's part of it:
Basil - chicken and tomato soups, beef, pork, lamb, chicken,green beans, tomatoes, squash.
Dill - carrots, cauliflower, peas, potatoes, cottage cheese, chicken, rice dishes, tomato soup.
Marjoram - avocado, chicken and potato soup, burgers, beef, pork, lamb, fish fillets, zucchini.
Oregano - vegetable juice, stews, burgers, chicken, boiled eggs, broiled seafood, broccoli, cabbage, tomatoes.
Rosemary - chicken, pea, spinach soups, beef, game, poultry, scrambled eggs, fish, lentils, peas.
Sage - chowders, chicken and bland cream soups, cold roast beef, pork, lamb, veal, chicken, turkey, poultry, fish fillets, Brussels sprouts, Lima beans, squash, tomatoes.
Thyme - gumbo, borsch, roast, poultry stuffing, scrambled eggs, tuna,chicken salad, carrots, potatoes.

Post Edited (Alcie) : 12/15/2011 4:26:16 PM (GMT-7)


rmtmom
New Member


Date Joined Dec 2011
Total Posts : 6
   Posted 12/15/2011 5:22 PM (GMT -6)   
Apparently, sodium sulfite is used in swimming pools.

http://www.ehow.com/info_7873298_uses-sodium-sulfite-swimming-pools.html

rmtmom
New Member


Date Joined Dec 2011
Total Posts : 6
   Posted 12/15/2011 5:57 PM (GMT -6)   
Alcie,

All the doctors think I'm crazy. I'm just muddling along trying to fit the pieces together - being thankful that he's still young enough to listen to me (as opposed to a teenager). I'm hoping that he's not getting worse with each episode (exposure) and praying that he'll recover (as he did the other 2 times - not that it'll take a year like the 1st time). His diet is already so restricted from his allergies that I can't imagine if this sulfite thing is permanent. His weight is borderline failure to thrive as it is.

Thanks for the list of seasonings.

So no one has any idea about whether sulfates are okay? My reasoning is that if the sulfites aren't being converted to sulfates which the body needs then maybe supplying them via other avenues (magnesium, zinc, chondroitin sulfates) would help unclog his system and get his stomach working properly again.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 12/15/2011 9:21 PM (GMT -6)   
rmtmom - I'm fairly confused as to your son's diagnosis. What sorts of doctors have you had him to besides the general pediatrician? Any pediatric specialists? Since he seems not to have problems all the time with foods that contain sulfites, I wonder if he really has the sensitivity. I got my best information from my second allergist. She had me keeping a good food journal then doing food challenge testing. I wouldn't recommend doing challenge testing with foods you already know cause reactions though! Especially with a child this should be done under the guidance of a doctor.

Sulfates that occur in normal foods should be OK, but don't overdo anything. We're not prescribing anything here. We're not doctors, just patients. All we can say is what's worked in our limited cases, and that probably has nothing to do with your son. I would absolutely not add any chemicals without being told to by a doctor for a specific deficiency or treatment!

rmtmom
New Member


Date Joined Dec 2011
Total Posts : 6
   Posted 12/15/2011 11:33 PM (GMT -6)   
Alcie, there is no diagnosis. 3 years ago when he had his 1st episode, I took him to the pediatrician (antibiotics for stuffy nose - claimed sinusitis), ped. pulmonologist & ped. allergist (for coughing) - got inhaler & steroids, ped. gastro for stomach - (claimed acid reflux - prescribed pepcid AC), ped urologist (abnormal urine test) while avoiding the problem foods. I eventually took him to a doc that dealt with autistic kids (he's not - just has a lot of the same symptoms). He ran a lot of tests (that's how I found out about the genetic mutation) but his primary focus was chelating him of mercury. He did run the Nutreval and that info together with much reading on my part explained why he was having a lot of the problems he had.

When he's healthy, his body processes the sulfites fine. But whatever's in the pool that messes him up, suddenly his body can't process them and he coughs like crazy when he eats them & gets stuffy nose. I recently found this at http://www.beatcfsandfms.org/html/Sulfides.html

Signs of a Sulfite problem
Below are several clues that one is sensitive to sulfites (which probably means the sulfite oxidase enzyme is down):

1) One becomes tired after ingesting one of the foods, listed above, that contains sulfites. One can look at the food label to see if the product contains sulfites.
2) One coughs after ingesting sulfites, due to the impairment of the lung ATP energy.
3) One has asthma.

4) One develops low blood glucose (sugar) after ingesting sulfites (since sulfites disrupt the regulation of blood sugar).
5) One gets a headache after ingesting sulfites.
6) One experiences itching and reddening of the skin after ingesting sulfites contained in foods, drinks or drugs.

The allergist won't even diagnose him with asthma because whatever score he has when he blows into that peak meter (?) doesn't qualify. He's not on medication (only when he has a bad cold) because I am careful with his environment (air cleaner) and his food (organic meats, lots of fruits and vegs). And he doesn't use any toothpaste, sunscreen, lotions, etc. The doctors treat the symptoms but as far as finding the cause, I'm on my own trying to piece things together. Maybe I just haven't had good luck with docs but they all think the solution is drugs, drugs and more drugs when I prefer the natural way.

Sorry for the long epistle.

Roxana
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/16/2011 1:08 PM (GMT -6)   
I just joined this forum today and very pleased to read all that everyone has to say.

I just joined this forum today and very pleased to read all that everyone has to say.

I have been diagnosed with a sulphite/sulphate allergy and also an iodine allergy since 1996 when I fell into anaphylactic shock. After that, I spent a whole year eating only freshly cooked foods (because the doctor’s said that after 20 minutes, cooked foods start to decompose and develop fungi and sulfites). During that year I could only drink water and eat fresh foods (nothing canned, frozen and nothing from restaurants or salad bars). After the year was through, I started re-introducing items.

I have eliminated all meat and milk products, fructose syrups, eggs, and certain fruits from my diet and I feel much better. People say that they couldn’t do that, but if they had one serious asthma attack, I guarantee they would change their minds.
I wanted to warn people that although there are many products in the States with a circled “s” warning of a sulphite containing products, there are others that don’t mention it. Olives are a good example, they use sulphites in the maceration process. Same with pickles. I actually ate a pickle yesterday and has a horrid asthma attack, called Vlasic and asked because it wasn't mentioned on teh label and they are in the process of getting back to me.

I just wanted others with the same allergy to know about it.

Roxana
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Date Joined Dec 2011
Total Posts : 2
   Posted 12/16/2011 1:14 PM (GMT -6)   
I also forgot to mention that ne of you wrote that the sulfite allergy reaction causes sugar in blood to go down, and it just so happens that yesterday when I had my allergic reaction t a pickle, and after I took a large dose of cortisones and antihystamines, I craved sweets to the point of eating about 10 tollhouse cookies that would normally give me a sugar high.

Alcie
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Date Joined Oct 2009
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   Posted 12/17/2011 8:33 PM (GMT -6)   
Hi Roxana, welcome to the forum. It sounds like you have some serious reactions to foods.

I'm curious about the pickle reaction. According to my book, a Vlasic Kosher Dill pickle has only 2 micrograms sulfite per pickle. I wonder if something in the added "flavor" could have caused the problem. On the other hand, if you consumed much of the vinegar - 1Tbsp apple cider vinegar contains about 150 micrograms sulfite, which could trigger someone with a true, anaphalactic-type reaction.

I've never noticed that circled "s" but will look for it.

Going vegan, basically what you've done, is good for a lot of people. If you look up the video "The Last Heart Attack" with Dr. Sanjay Gupta of CNN, there's a lot of research for eating that way. Since I can't eat soy and some nuts, I can't even go completely vegetarian though. I wouldn't have a source of protein. I do avoid lactose, beef, pork.

Salad bars are supposed to be clean today. It's been illegal to spray them with sulfites for a long time, but was a concern when you were diagnosed.

You've brought up some important points! I hope you will continue to post, and avoid pickles!

Razzle
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Date Joined Aug 2007
Total Posts : 4415
   Posted 12/20/2011 9:07 AM (GMT -6)   
rmtmom,

Yes, the stuffy nose could be from sulfites. The smell of my Husband's ham (loaded with sulfites, so I don't eat it) plugs up my nose...

It sounds like the swimming pool exposure overloads his enzyme pathways and it can take time to recover. Have you had the full methylation panel from Dr. Yasko's lab done on him? It might reveal other methylation issues in addition to the MTHFR variant, and if he is hetero for the SUOX or CBS variants, then that could explain his temporary intolerance when the enzymes are overloaded.

Yucca Root (not to be confused with Yuca Root, which is a completely different plant) can help some with the sulfite processing indirectly because it helps with the excess ammonia generated by the malfunctioning sulfite enzyme.

I also make sure I am getting enough zinc, B12, molybdenum, magnesium and iron - these are the other nutrients that are needed for the sulfite enzymes to function correctly.

GABA and nettle leaf are also helpful for me.

And for my nose, I find fenugreek and thyme very helpful...I take capsules (2 at night, 2 in the morning) of something called FenuThyme made by Nature's Way (I have no financial connections with this product/company) because it is a perfect combination of the thyme and fenugreek. It keeps my nose from getting too plugged up.

I wonder if there could also be a candida issue? Systemic candida may get aggravated when he is in situations where other molds or fungi are around...wet environments are particularly prone to mold.

Does he take any probiotics?

Also, you might want to double check all his asthma meds - sometimes they add sulfites to those, and it may not even be listed on the label (things like polysorbates, citric acid, flavors/colors, etc. can contain sulfites but the drug manufacturer won't specify on the label whether these ingredients are sulfited).
 
Oh, and yeah, taurine isn't good because I think I remember reading something about it getting converted into cysteine or something like that...not sure.  But I know taurine is on the "no" list for sulfite intolerance.

Feel free to email me if you have more questions - click the envelop icon under my name on the left side of this post...

Take care,
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Singulair, Andrographis & other herbs, homeopathy, supplements, etc.

Post Edited (Razzle) : 12/20/2011 8:10:18 AM (GMT-7)


melnits
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Date Joined Dec 2011
Total Posts : 2
   Posted 12/27/2011 10:25 PM (GMT -6)   
Thank you for being Here!

Felt very lonely in this!

Any chef in the making! I need sulfite free recipes?

by the way I also reacted to Kale, Kelp and Pmegranate juice! Anyone?


ILa

alphagirl
New Member


Date Joined May 2011
Total Posts : 4
   Posted 1/3/2012 8:39 AM (GMT -6)   
Razzle -I am very interested that the nettle helped - I was drinking nettle tea, but felt like I was having a reaction to it. How does it help you? I am wondering if instead of a reaction I was actually detoxing - sometimes things get worse before they get better!

Also, what B vitamins do you take? I cannot find any without sulfites added, and I am really low. I have some Country Life B caps - I thought I would be ok because they are vegetarian, but then I discovered that vegetable cellulose is sulfited so now I am scared to take them. Please let me know which supplements you take, I would love to find some non-sulfited ones!

Tracy
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