dear Alcie, drs refer to our condition as an allergy becasue of the histamine triggered when exposed to sulfites,.wheezing in the chest,hard to get your breathe, wonder how much the drs knows about it,or just not taking the time to explain because its complicated and lenghtly, so i get that completely. but its much more then a histamine issue. life threatneing to me,. also anyone with sulfite sensitivity can turn deadly as mine has. i been suffering since i was born,and i always ate very healthy,but never organic. organic,gluten free elimated most of all my suffering. but the problem doesnt ever get fixed or go away,my next meal is always a gamble to send me back into anaphylaxis shock,besides being life threatning ,it isnt a pretty picture, total neurologic breakdown, completely loss myself and the ability to compose myself. total space out. if my wife wasnt with me toexplain they would just think i was wacked out on drugs which is absolutely not the case,wish there was a drug out there i could take to help but,thats not an option. im the real deal. SULFITE OXIDASE DEFICIENCY, less then 50 reported cases in the world. i have a dr of generics with 53 years experience documenting my case.obviously he wants to have this under his belt and im just happy to find a dr who can put some light on this. the convential drs ive seen just think im nuts,wish that was the case i would probably live alot longer,lol. no worries i have a great sense of humor its one of the few things i didnt have to give up.. also hes completely shocked by the overwhelming data i was able to put together on my own over the years of all the misdiagnoses,lots and lots of miss diagnoses,and lots of meds i should have nnever been given if the drs new better. but iim not mad at them it was explained to me that medical school in the usa dont teach about this condition,so you would have to find a dr who has taken it upon him or herself to read into it with an open mind.alot of it goes against what they actually been taught,so they will just turn a shouylder,so rare for them to get a case its not worth there time to study the extensive material as i have with very little dollar return for them. my dr russel cancellari in southhampton new york,said from his extensive studies on sulfite oxidase deficiency is that he believes that it not so rare at all. he said they just dont know what signs to lok for or how to identify it. i know what signs to look for and even the array of blood and urine test to help put the pieces of the puzzle together. no one test or magic bullet. also the cofactors,other deficiencies associated with the condition,such as molybdenum,b12, vitamind,b1,and tetrahydofolate,and p5p-vitamin.