Posted 12/23/2012 3:07 PM (GMT -6)
Hello there. I cannot tell you how happy I am to have found this forum. I have read the first 5 pages or so of this sulfite thread, and then I zoomed to the last one to make sure that the thread is still current. Hurrah! It is!

I am a severe asthmatic and have many allergies including food allergies. about 5 years ago I began to suspect that I had sulfite sensitivity as well. After calling every allergist in the city I finally found only one who had knowledge of the problem. After going to him he confirmed that I had a problem with sulfite, but did not want to do the test to determine intolerance because my asthma is so severe and he did not want to risk making it worse.

I must say that after reading your posts I feel validated. I had suspected that everything ~ even the filtered water that I drink ~ was causing problems to a lesser or greater degree. I also suspected the tea I was drinking, chocolate ~ all of the things that I am finding mentioned here.

The most distressing manifestation of the problem is a horrible facial rash. It was so bad at one point I didn't leave my house for 6 months ~ thankfully I am retired from work.

Because massive doses of benedryl and zyrtec seems to help me, I suspect from your posts that I have an actual allergy to sulfites. I was told that it is not an allergy, but an intolerance... but I questioned that when I was told, and now from your posts I think the physician may have been mistaken.

I am also allergic to sulpha drugs, and foods high in sulfur seem to bother me. Many things which I have read say that there is no connection between these three problems, but I really question that....

It is so very difficult to find things to eat, because in addition to the sulfite problem I am also allergic to apples, pears, cherries, strawberries, bananas (caused anaphylaxis many years ago), grapes, peaches, tree nuts, legumes (peanuts, soy, beans, peas), tomatoes, onions, garlic and hops. And now I find that I must also avoid cheese and eggs ~ I found this site because I had a reaction and all that I had eaten for two days was cheese!

I also have avoided processed meats, and most processed food.

I long ago eliminated any foods with vinegar, which means no condiments or salad dressings, nothing pickled... and no breads or pastries.

I also get the itching throat, asthma, gastric reflux, rapid heartbeat. I had suspected that some of my asthma meds were making me ill too, and it seems from what I have read here that I may be correct. My inhaler makes my throat itch now... it didn't before, but they have changed the propellant...

Thank you so much for being here. At the very least I have some place to come and commiserate, and I have already learned a lot and am now able to feel less paranoid about thinking that nearly everything is making me ill. Thank you, Thank you!

Steffanie

Post Edited (Steffanie) : 12/23/2012 4:03:18 PM (GMT-7)

Posted 12/31/2012 7:45 PM (GMT -6)
Hi all! Like most of you I have a sulfite sensitivity (going on 10 months or so now). I have done a ton of research and am managing my symptoms fairly well. My allergist (who "diagnosed" me) has me on Zyrtec and Singular daily. Those have the added benefit of helping with my other seasonal allergies :-) I also have an inhaler to use when needed, and an epi pen (hopefully I never have to use it!). I also take B12 vitamins which help sooooo much (I can definitely feel the difference if I miss even one day). I would like to try taking Molybdenum, but have read conflicting reports on its usefulness (I'm a scientist, and have read may different peer reviewed articles with different experiments) anyone else have any thoughts?

I have done pretty good cooking from home, and its not a huge deal to me at all since I love to cook. I would like to know what those of you who are loosing weight are doing because I can't seem to loose anything! (I may also have hypothyroidism). I have found many substitutions to normal food, and am in the process of creating a cookbook so that people know what they CAN eat as opposed to what they can not eat. This forum has been helpful, since many of you have issues with more than just the foods I have issues with.

I so far can not tolerate vinegar. Sometimes rice vinegar is OK depending on what else I have had that week, but I try to stay away (I usually only have a little when eating sushi once a month). Corn starch is another huge one for me. I do okay with potato starch, but try not to eat it if I can. Tapioca starch is much milder and I am okay with it in small dosages. Anything malted is EVIL, as well as molasses, maltodextrin (tapioca maltodextrin isn't so bad), and a few other things.
Posted 1/1/2013 6:48 AM (GMT -6)
Molybdenum helps me...if I'm late getting my dose of molybdenum or Vit. B12, I go into anaphylaxis from any food. If I stay on time with the doses of B12 & molybdenum, I can eat a few things ok.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Andrographis & other herbs, homeopathy, supplements, etc.
Posted 1/1/2013 4:08 PM (GMT -6)
UKnewbie,am from UK,suffered with this for most adult life,my GP said probably nver find the casue.Well i di bout 4 years ago now went watch footy away 200 miles,so packed picky things to eat for journley,at destintion we had 2 hours in a bar,drank cider,way home samething,when arrived home started drinking cider again,started getting symptoms,red welts,torso,short of breath etc,noticed on tin of cider said added sulphites goggled it and hey presto me to a tea!! Went back to gp who reffered me on was d/xs with uticaria and angieodemia! but i know its sulfites.I elimnated as much as possible to start with,try organic where possible stayed that way bout 2 years,gradually started reintroducing foods,and am much better,as others have said i now take molybdenum (FROM AMAZON) and B12 complex and B12 i get them holland barrett when on offer!Was previous d/xs IBS even had colonoscopy (dont go there!!) now tolerate most things if dont go overboard.Do u drink wine?high in sulphites and avoid dried fruits esp. apricots.If u have any questions please ask will try to answer or others will on here.Good luck
Posted 1/25/2013 3:04 PM (GMT -6)
I am new to this forum but am grateful to have found it. It is hard for people to understand sulfite sensitivity and what a huge effect it has on someone's life.

I do want to respond to a post I read earlier that said to stay away from mixed spices but that most indivdual spices are usually okay -- I found out the hard way that this is not necessarily true. McCormick ground ginger lists "Ginger and sulfur dioxide" two ingredients and not thinking to check the label of the spice I went into a full blown asthma attack after eating the spice in gingerbread.

I have also learned that with regard to food labeling if the ingredient that may contain sulfites on a label is from a third party (and a lot of them are) the company that is responsible for the labeling does not have to include anything about sulfites on the l label even if it is higher than than then 10 ppm that is allowed. I have contacted many companies to ask them about such ingredients and they are quick to say they cannot guarantee if there are sulfites in the ingredient or how much. This makes label reading even more important.
Posted 1/25/2013 8:24 PM (GMT -6)
Welcome to the forum Jude.

Thanks for posting about ginger. You found a new one for me! I just read the label for pumpkin pie spices (mixed), and it's there too. I've been wondering why I react to pumpkin pies!!

Your gingerbread probably also contained a cup of molasses. If it was sulfured molasses, the tastiest kind, that was likely another trigger. Unsulfured molasses is available. The sugar has sulfite too, but not such a lot unless it's brown sugar.

Pepper can contain sulfites too because peppercorns are often roasted over charcoal in the processing.

Lemon juice in bottles contains more than 100 ppm sulfite, a very high level, but the frozen juice is clean. Tortillas on the shelf, not refrigerated often have sulfite on the label. It only has to be on the label if it's over 100 ppm.

Keep on posting, maybe start your own thread! We need something fresh started and maybe others will read and welcome you.
Posted 2/19/2013 11:46 AM (GMT -6)
good morning all,

might anyone know how long it will take for facial swelling to go away? this is terrible!

thanks so much.

Post Edited (foxpd1) : 2/19/2013 9:56:23 AM (GMT-7)

Posted 2/21/2013 11:00 AM (GMT -6)
Welcome to the forum fox.

You can post your own topic and get better response. This thread is pretty old. Just hit the post new topic button.

Is the swelling from a "true" sulfite allergy? Treatment like prednisone? Sulfites don't usually cause facial swelling on their own. Headaches and gastric reflux and arrhythmias are more common.

We'll be looking for your new post to welcome you to the forum.
Posted 3/12/2013 10:09 PM (GMT -6)
Hello everyone. My name is Shannon and I also suffer from a sulfate allergy..
I'm also 22 and suffer from depression, depersonalization, arthritis, bipolar... well I have a lot on my plate..
I've known about my Allergy for almost 3 years but that doesn't mean it has by any means been easy. My fiancée has been incredibly understanding and supportive but I can't shake the feelings I've been having recently of hopelessness ...
I'll be in the store with friends or even in casual conversation and they'll shake their heads and say that they couldn't deal with so many limitations. It's really been wearing on me lately (perhaps a good deal to do with my depression this time of year) and I'm feeling more and more hopeless.
My fiancée and I have been fighting more and more due to our current situation but I don't know how to make him understand how frustrated and hopeless I am... I've always been the kind of person that if you tell me I can't do something I'm going to and go over the top with it..
I've dealt with knowing I may not be able to walk due to my arthritis, possible meds for my mental issues (which I'm proud to say that I'm unmedicated but that might have to change soon) but the extreme limitations of this might actually be too much for me to handle. I hate having to live in paranoid fear and checking every lable.. its not fair..
I just don't see why it matters anymore!! I miss hot pockets, Cheetos, ans doing my own dishes!!

How do you guys deal with the feelings I'm having now? Any advice would be greatly appreciated because I've been feverishly looking for any hope of a cure or treatment because I can't keep living like this. Thank you everyone.
Posted 3/13/2013 5:57 PM (GMT -6)
Welcome to the forum, Shannon.

I can't advise about depression or arthritis, so I hope you will start your own threads (post new topic) on those forums. I can't really advise on anything because I'm not a doctor, only a patient.

Do you have the "true" sulfite allergy or the more common sulfite "intolerance?" My allergist lumps them together, but I get criticized for that and told I only have the sensitivity. Whatever. I don't care about labels unless they're on packages. :)

Do you have hives or other serious symptoms when you eat sulfites?

There's no cure for sulfite intolerance widely clinically accepted, although some people have reported relief with a wide variety of treatments from B12 etc. I hope you will read some of the other posts. See the search box at the top of any page.

I feel much better when I avoid processed foods, pork, wine and beer, vinegar except rice, corn starch, corn syrup, molasses, and bottled lemon juice (frozen is OK). Physically feeling better makes me feel mentally better. There are many lists of sulfite-containing foods online. I only pay attention to the foods which are high or listed on the labels - like tortillas.

I have grandchildren. You have a fiancee. We don't get to be hopeless. We have work to do - others who need us. I need a little tramadol for my various pains. It helps with my mood too, because it raises serotonin. If you're not seeing a doctor, please do. This is already way above my "pay" grade, which consists of taking the grandkids on walks, making them lunch and listening to them. If all I can do is listen, then I am useful, so I have to keep myself feeling well to do my job.

I hope you will post again on this forum with your own topic as this one is getting old. More people will read and answer.

Best wishes and looking forward to hearing from you again.

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