Anyone else with a sulfite intolerance? I would love to hear from you!

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Alcie
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Date Joined Oct 2009
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   Posted 9/17/2012 4:29 PM (GMT -6)   
I checked the site but found no scientific evidence, only summaries of conclusions with no links to where they came from. I must have missed something somewhere. I didn't see who wrote that site.

One study I found is a 2004 study of 19 normal people in whom magnesium levels were measured after they soaked in MgSO4 baths. Another study was an in vitro study of cells regarding sulfotransferase. A third unpublished 1993 study was said to show low sulfate in 13 autistic children.

mikemac
Regular Member


Date Joined Feb 2012
Total Posts : 23
   Posted 9/17/2012 5:18 PM (GMT -6)   
Also are you at all familiar with dr Amy Yasko. She's the best here in the USA on the PST deficiency. Did you read the one with dr rosemary on the Epsom salts.she talks about it in there..also look at e methylation cycle that's where the problems occur. I don't have my access to my flew at the moment, but I want to co plate the package to you..if u want to share an email I can dump a bunch of data on there..I haven't figured how to drag my saved favorites to the forum.. But I need to complete this for you.

mikemac
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Date Joined Feb 2012
Total Posts : 23
   Posted 9/17/2012 5:53 PM (GMT -6)   
http://treatautismnow.wordpress.com/2010/06/05/phenols-pst-and-sulphur-metabolism/ this is some good data on the subject i talked about here. see if you can pull that up Alcie

Nobledrew7
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Date Joined Sep 2012
Total Posts : 1
   Posted 9/26/2012 6:40 PM (GMT -6)   
Greetings everyone,

this forum was very helpful, thank you all for your posts.. I was wondering as well many sources tell what foods*NOT* to eat with sulphites, but there's a plethora of foods on that list, nearly 80% of the foods we consume and from super markets etc contain some sort of sulphite or preservative.. So instead of not what to eat, what can we eat? What are good non suplhite diets that we can adhere to everyday making sure our intolerance doesn't get the best of us. Anyone know any whole day diets (breakfast, lunch, and dinner) that has worked for them.

Thanks and God Bless.

~Drew.

Razzle
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Date Joined Aug 2007
Total Posts : 4415
   Posted 9/27/2012 5:51 AM (GMT -6)   
Not much left for me to eat, being also gluten sensitive and with a ton of food allergies in addition to the sulfite issues... I basically can only eat rice, potatoes, butter, cheese, and a few fruits & veggies (sparingly).

The biggest help for most with sulfite issues is supplementing Molybdenum. The enzyme that processes sulfites depends on molybdenum to function. Deficiency of molybdenum, therefore, can be one cause for Sulfite Sensitivity (and also Multiple Chemical Sensitivities).

Another thing that has helped me is Yucca root, because with my particular methylation cycle genomic variants, I tend to produce too much ammonia. Yucca root helps to bind and eliminate the ammonia.

Also, Vitamin B12 is critically important for those with methylation issues such as myself. I have to get mine via shots, because my gut is too messed up and I can't seem to even absorb sublingual Vitamin B12.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Singulair, Andrographis & other herbs, homeopathy, supplements, etc.

MarmiteEnthusiast
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Date Joined Oct 2012
Total Posts : 1
   Posted 10/6/2012 11:53 AM (GMT -6)   
Finding the amount of info in the thread huge! Could anyone tell me if I need to be worried about which brand of vitamin supplement to take. I want to follow the advice I read here and take a suppliment to see if it improves my symptoms...but I am scared....

norravavare
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Date Joined Oct 2012
Total Posts : 1
   Posted 10/23/2012 3:33 PM (GMT -6)   
Hi. I just signed up for this site because of this thread. I've read about half of it and my eyes are blurry... but anyway.

Does anyone else on here have a sulfur intolerance/allergy to all forms of sulfates, sulfites, sulfa etc? I get allergic and intolerant symptoms to food/medications and personal care/cleaning products. I have found people with one or the other, but no one with both. I have spent the past 16 years trying to track down why this is happening and how to help myself. I also have a slew of doctors who don't believe me. I dont look sick and all my typical blood work is perfect. The only thing that has helped is avoidance and regular acupuncture. The older I get the harder staying healthy and pain free is. I had a magnesium sulfate IV a few years ago and I cant seem to recover from it. This appears to be hereditary. My grandmother had all my health problems and more. My mother seems to have much milder version of my "allergy".

Thanks
Norravavare

svb2003
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Date Joined Feb 2012
Total Posts : 3
   Posted 11/5/2012 1:10 PM (GMT -6)   
I see a number of people saying that B-vitamins are important to take when you have sulfite intolerance issues. I'm eating fairly safely, but can't seem to put weight on. I keep losing and losing and now it's getting dangerous. Besides being terrified I'm exhausted. I know I don't absorb much, I have no colon due to Crohns Disease surgery so I'm at a disadvantage to start.
 
Does anyone take a B-Vitamin or Multi-Vitamin supplement successfully? I'm willing to try just about anything, I go for acupuncture twice a week and it has been helping, but I still keep losing weight. We're trying me on some herbs, but they seem to upset other things...no sulfites or corn starch or anything in them, we've done crazy research on that front.
 
I know I need supplements, B-Vitamins are a good place to start. I'd REALLY like to avoid the injections if I can, I've been poked and prodded FAR too much.
 
Thank you, I really appreciate the help!
 
Samantha

Alcie
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Date Joined Oct 2009
Total Posts : 5004
   Posted 11/6/2012 7:04 AM (GMT -6)   
For those posting about not being able to eat anything:

As long as you cook your own food from scratch you can eat most foods. Of course avoid pork, and onion family. I have to keep beef to very small portions. Other than that, the basic unseasoned (except salt) foods should be OK, but that's what keeping a Food Journal will help you figure out.

For most of us, if you don't have other intolerances and allergies, the main thing is to avoid processing of any kind. Corn is fine, but dextrose and corn starch are toxic. Anything processed from pork, eg. gelatin, is very toxic. Mixed seasonings and those with pepper can be sulfited, but individual spices should be fine.

Raw nuts are mostly OK, but roasted nuts are often bleached with sulfite.

Home made bread or bread from a bakery that advertises no preservatives is mostly safe unless you have a wheat problem.

I only take a tiny daily multivitamin with no additives, because I can't swallow the horse pills. I need B12 because of stomach surgery. I take 2000 units of D twice a day in winter, once a day in summer because I had my D level tested. Add 100 units of D for every 1 (whatever that unit is) you are low. You can look that up on old posts - see search box at top of page.

There's no reason to be hysterical or avoid eating anything that has a tiny amount of sulfite. Look at the websites in the old posts. There are lists of sulfite levels and Rick's No Sulfites website will teach you how to calculate your tolerance and the amount of sulfite in portions you consume.

The Housemouse website has a lot of information for those who have sulfate in skin and detergent products.

I'm not much of a believer in alternative practices, herbs and potions. I'm doing well just staying within my tolerance level. I do not have the extreme "allergy" to sulfites, but I do have life threatening reactions. There may be some truth in molybdenum and other things, but I have no personal experience and have read no scientific research.

Most doctors don't believe us, but my allergist does. She guided me through keeping a journal and food challenges. You can find all the information by putting some keywords into the search box.

UKNewbie
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Date Joined Nov 2012
Total Posts : 1
   Posted 11/10/2012 5:23 PM (GMT -6)   
Hello,
 
I've stumbled across this forum by accident after my dinner made me most unwell (I was looking for a connection between foods I know I am intolerant to and food I ate tonight).
 
I'm an asthmatic, onion intolerant, migraine sufferer with ongoing abdominal problems which the doctors have been unable to diagnose the cause of, so I am sure you can understand why this thread caught my eye.
 
I'm interested to know, particularly from UK sufferers, how they approached their GPs with regards to investigating whether they have a suphide/sulfite intolerance. I think my GP thinks there is something in my illness, but I suspect the consultant I have been previously referred to (and am seeing again this week) thinks I am a bit of a hypochondriac, so I'm not sure how it will be taken if I suggest looking into this.
 
Also, a quick question - has anyone experienced elevated liver functions in blood tests (part of the reason for my latest consultant visit), or occasional blood blisters on the tongue (the latter seems a curiosity to my doctor but not anything they have tried to investigate! Info I've found on this symptom is minimal, although it is suggested that it is related to reactions to food)?
 
UKNewbie

Alcie
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Date Joined Oct 2009
Total Posts : 5004
   Posted 11/10/2012 7:05 PM (GMT -6)   
Welcome to the forum, UK.

Read through this thread and also look up some of the others. Put a few keywords into the search box at the top of the page. There's tons of threads, hundreds of posts.

The only way to find out what your food intolerances are is to keep a very good food journal and after you have a partial list try food challenges. How to do this is in several of the posts you can look up. Talk with your doctor, preferably an allergist, about your particular reactions and whether it is safe to do the food challenges. I get tachycardia (rapid heart beating) so I had to be extra careful. If you get asthma attacks it could be dangerous to eat too much of a food trigger!

Sorry, but I don't know anything about the liver problem or tongue blisters. I get a lot of gastric reflux reaction, but if you have a "true allergy" (look up the difference between this and "sensitivity") maybe you could get reactions like those.

Coljones
New Member


Date Joined Nov 2012
Total Posts : 1
   Posted 11/29/2012 2:04 PM (GMT -6)   
Hi, my name is colin.
I am 42 & have been suffering with sulphite intolarance for a couple of years or so.
My symptons range from tingling & numbness in arms and legs,heart pulps,bowl & stomach probs,throat restriction to neck pain leading to total loss of feeling from neck down and black out followed by two day migrain. Pretty scarey really!!!
 
 
Waitrose will very kindly print off a list of there products that dont have sulphites added.
 
TO BE USED ONLY AS A GUIDE!!!! sulphites contained naturally not listed. 
 
I have also become intollerant to MSG & SOYA so food shopping is becoming difficult.
Doctor has given me epi pens (loaded with sulphites) but when needs must.
 If anyone can help it would be great.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 11/29/2012 6:58 PM (GMT -6)   
For a good list foods containing sulfites and how to calculate the amounts in foods try the free online book at http://www.learningtarget.com/nosulfites/index.htm

The problem with prepared foods is that sulfites may be in a large number of their ingredients. This book also lists amounts of sulfites in natural foods.

The author is also a migraine sufferer.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4415
   Posted 12/5/2012 9:34 AM (GMT -6)   
Yes, I know of others with sulfite intolerance who had elevated liver enzyme leves.

And I myself have gotten blood blisters in my mouth from dental injections (most of which contain sulfites) and from supplements or foods containing sulfites.

norravavare -- Yes, I am also intolerant to most all forms of sulfur, not just sulfites. I cannot use products on my skin that contain sulfates, cannot eat foods high in sulfur (cabbage family, onion family, etc.), cannot take medications that contain sulfa (sulfasalazine, many diaretics, etc.), etc.

If magnesium sulfate initiated a reaction for you from which you have not recovered, I suspect you have a problem with methylation. Methylation is needed to process most everything (environmental toxins and metabolic byproducts).

Dr. Amy Yasko has a nutritional protocol for those with genetic variants in the genes that control methylation. These genetic variants cause over- or under- function of the various enzymes involved in methylation, which can then affect many aspects of health.

Email me if you want more info (click the envelop icon under my name on the left).
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Singulair, Andrographis & other herbs, homeopathy, supplements, etc.

Steffanie
New Member


Date Joined Dec 2012
Total Posts : 3
   Posted 12/23/2012 2:07 PM (GMT -6)   
Hello there. I cannot tell you how happy I am to have found this forum. I have read the first 5 pages or so of this sulfite thread, and then I zoomed to the last one to make sure that the thread is still current. Hurrah! It is!

I am a severe asthmatic and have many allergies including food allergies. about 5 years ago I began to suspect that I had sulfite sensitivity as well. After calling every allergist in the city I finally found only one who had knowledge of the problem. After going to him he confirmed that I had a problem with sulfite, but did not want to do the test to determine intolerance because my asthma is so severe and he did not want to risk making it worse.

I must say that after reading your posts I feel validated. I had suspected that everything ~ even the filtered water that I drink ~ was causing problems to a lesser or greater degree. I also suspected the tea I was drinking, chocolate ~ all of the things that I am finding mentioned here.

The most distressing manifestation of the problem is a horrible facial rash. It was so bad at one point I didn't leave my house for 6 months ~ thankfully I am retired from work.

Because massive doses of benedryl and zyrtec seems to help me, I suspect from your posts that I have an actual allergy to sulfites. I was told that it is not an allergy, but an intolerance... but I questioned that when I was told, and now from your posts I think the physician may have been mistaken.

I am also allergic to sulpha drugs, and foods high in sulfur seem to bother me. Many things which I have read say that there is no connection between these three problems, but I really question that....

It is so very difficult to find things to eat, because in addition to the sulfite problem I am also allergic to apples, pears, cherries, strawberries, bananas (caused anaphylaxis many years ago), grapes, peaches, tree nuts, legumes (peanuts, soy, beans, peas), tomatoes, onions, garlic and hops. And now I find that I must also avoid cheese and eggs ~ I found this site because I had a reaction and all that I had eaten for two days was cheese!

I also have avoided processed meats, and most processed food.

I long ago eliminated any foods with vinegar, which means no condiments or salad dressings, nothing pickled... and no breads or pastries.

I also get the itching throat, asthma, gastric reflux, rapid heartbeat. I had suspected that some of my asthma meds were making me ill too, and it seems from what I have read here that I may be correct. My inhaler makes my throat itch now... it didn't before, but they have changed the propellant...

Thank you so much for being here. At the very least I have some place to come and commiserate, and I have already learned a lot and am now able to feel less paranoid about thinking that nearly everything is making me ill. Thank you, Thank you!

Steffanie

Post Edited (Steffanie) : 12/23/2012 4:03:18 PM (GMT-7)


Dawn12884
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 12/31/2012 6:45 PM (GMT -6)   
Hi all! Like most of you I have a sulfite sensitivity (going on 10 months or so now). I have done a ton of research and am managing my symptoms fairly well. My allergist (who "diagnosed" me) has me on Zyrtec and Singular daily. Those have the added benefit of helping with my other seasonal allergies :-) I also have an inhaler to use when needed, and an epi pen (hopefully I never have to use it!). I also take B12 vitamins which help sooooo much (I can definitely feel the difference if I miss even one day). I would like to try taking Molybdenum, but have read conflicting reports on its usefulness (I'm a scientist, and have read may different peer reviewed articles with different experiments) anyone else have any thoughts?

I have done pretty good cooking from home, and its not a huge deal to me at all since I love to cook. I would like to know what those of you who are loosing weight are doing because I can't seem to loose anything! (I may also have hypothyroidism). I have found many substitutions to normal food, and am in the process of creating a cookbook so that people know what they CAN eat as opposed to what they can not eat. This forum has been helpful, since many of you have issues with more than just the foods I have issues with.

I so far can not tolerate vinegar. Sometimes rice vinegar is OK depending on what else I have had that week, but I try to stay away (I usually only have a little when eating sushi once a month). Corn starch is another huge one for me. I do okay with potato starch, but try not to eat it if I can. Tapioca starch is much milder and I am okay with it in small dosages. Anything malted is EVIL, as well as molasses, maltodextrin (tapioca maltodextrin isn't so bad), and a few other things.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4415
   Posted 1/1/2013 5:48 AM (GMT -6)   
Molybdenum helps me...if I'm late getting my dose of molybdenum or Vit. B12, I go into anaphylaxis from any food. If I stay on time with the doses of B12 & molybdenum, I can eat a few things ok.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Andrographis & other herbs, homeopathy, supplements, etc.

SICKOFSULPHITES
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Date Joined Aug 2012
Total Posts : 36
   Posted 1/1/2013 9:08 PM (GMT -6)   
UKnewbie,am from UK,suffered with this for most adult life,my GP said probably nver find the casue.Well i di bout 4 years ago now went watch footy away 200 miles,so packed picky things to eat for journley,at destintion we had 2 hours in a bar,drank cider,way home samething,when arrived home started drinking cider again,started getting symptoms,red welts,torso,short of breath etc,noticed on tin of cider said added sulphites goggled it and hey presto me to a tea!! Went back to gp who reffered me on was d/xs with uticaria and angieodemia! but i know its sulfites.I elimnated as much as possible to start with,try organic where possible stayed that way bout 2 years,gradually started reintroducing foods,and am much better,as others have said i now take molybdenum (FROM AMAZON) and B12 complex and B12 i get them holland barrett when on offer!Was previous d/xs IBS even had colonoscopy (dont go there!!) now tolerate most things if dont go overboard.Do u drink wine?high in sulphites and avoid dried fruits esp. apricots.If u have any questions please ask will try to answer or others will on here.Good luck

Jude03
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Date Joined Jan 2013
Total Posts : 1
   Posted 1/25/2013 2:04 PM (GMT -6)   
I am new to this forum but am grateful to have found it. It is hard for people to understand sulfite sensitivity and what a huge effect it has on someone's life.

I do want to respond to a post I read earlier that said to stay away from mixed spices but that most indivdual spices are usually okay -- I found out the hard way that this is not necessarily true. McCormick ground ginger lists "Ginger and sulfur dioxide" two ingredients and not thinking to check the label of the spice I went into a full blown asthma attack after eating the spice in gingerbread.

I have also learned that with regard to food labeling if the ingredient that may contain sulfites on a label is from a third party (and a lot of them are) the company that is responsible for the labeling does not have to include anything about sulfites on the l label even if it is higher than than then 10 ppm that is allowed. I have contacted many companies to ask them about such ingredients and they are quick to say they cannot guarantee if there are sulfites in the ingredient or how much. This makes label reading even more important.

Alcie
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Date Joined Oct 2009
Total Posts : 5004
   Posted 1/25/2013 7:24 PM (GMT -6)   
Welcome to the forum Jude.

Thanks for posting about ginger. You found a new one for me! I just read the label for pumpkin pie spices (mixed), and it's there too. I've been wondering why I react to pumpkin pies!!

Your gingerbread probably also contained a cup of molasses. If it was sulfured molasses, the tastiest kind, that was likely another trigger. Unsulfured molasses is available. The sugar has sulfite too, but not such a lot unless it's brown sugar.

Pepper can contain sulfites too because peppercorns are often roasted over charcoal in the processing.

Lemon juice in bottles contains more than 100 ppm sulfite, a very high level, but the frozen juice is clean. Tortillas on the shelf, not refrigerated often have sulfite on the label. It only has to be on the label if it's over 100 ppm.

Keep on posting, maybe start your own thread! We need something fresh started and maybe others will read and welcome you.

foxpd1
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Date Joined Feb 2013
Total Posts : 1
   Posted 2/19/2013 10:46 AM (GMT -6)   
good morning all,

might anyone know how long it will take for facial swelling to go away? this is terrible!

thanks so much.

Post Edited (foxpd1) : 2/19/2013 9:56:23 AM (GMT-7)


Alcie
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Date Joined Oct 2009
Total Posts : 5004
   Posted 2/21/2013 10:00 AM (GMT -6)   
Welcome to the forum fox.

You can post your own topic and get better response. This thread is pretty old. Just hit the post new topic button.

Is the swelling from a "true" sulfite allergy? Treatment like prednisone? Sulfites don't usually cause facial swelling on their own. Headaches and gastric reflux and arrhythmias are more common.

We'll be looking for your new post to welcome you to the forum.

Lady Alchemy
New Member


Date Joined Mar 2013
Total Posts : 2
   Posted 3/12/2013 9:09 PM (GMT -6)   
Hello everyone. My name is Shannon and I also suffer from a sulfate allergy..
I'm also 22 and suffer from depression, depersonalization, arthritis, bipolar... well I have a lot on my plate..
I've known about my Allergy for almost 3 years but that doesn't mean it has by any means been easy. My fiancée has been incredibly understanding and supportive but I can't shake the feelings I've been having recently of hopelessness ...
I'll be in the store with friends or even in casual conversation and they'll shake their heads and say that they couldn't deal with so many limitations. It's really been wearing on me lately (perhaps a good deal to do with my depression this time of year) and I'm feeling more and more hopeless.
My fiancée and I have been fighting more and more due to our current situation but I don't know how to make him understand how frustrated and hopeless I am... I've always been the kind of person that if you tell me I can't do something I'm going to and go over the top with it..
I've dealt with knowing I may not be able to walk due to my arthritis, possible meds for my mental issues (which I'm proud to say that I'm unmedicated but that might have to change soon) but the extreme limitations of this might actually be too much for me to handle. I hate having to live in paranoid fear and checking every lable.. its not fair..
I just don't see why it matters anymore!! I miss hot pockets, Cheetos, ans doing my own dishes!!

How do you guys deal with the feelings I'm having now? Any advice would be greatly appreciated because I've been feverishly looking for any hope of a cure or treatment because I can't keep living like this. Thank you everyone.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 3/13/2013 4:57 PM (GMT -6)   
Welcome to the forum, Shannon.

I can't advise about depression or arthritis, so I hope you will start your own threads (post new topic) on those forums. I can't really advise on anything because I'm not a doctor, only a patient.

Do you have the "true" sulfite allergy or the more common sulfite "intolerance?" My allergist lumps them together, but I get criticized for that and told I only have the sensitivity. Whatever. I don't care about labels unless they're on packages. :)

Do you have hives or other serious symptoms when you eat sulfites?

There's no cure for sulfite intolerance widely clinically accepted, although some people have reported relief with a wide variety of treatments from B12 etc. I hope you will read some of the other posts. See the search box at the top of any page.

I feel much better when I avoid processed foods, pork, wine and beer, vinegar except rice, corn starch, corn syrup, molasses, and bottled lemon juice (frozen is OK). Physically feeling better makes me feel mentally better. There are many lists of sulfite-containing foods online. I only pay attention to the foods which are high or listed on the labels - like tortillas.

I have grandchildren. You have a fiancee. We don't get to be hopeless. We have work to do - others who need us. I need a little tramadol for my various pains. It helps with my mood too, because it raises serotonin. If you're not seeing a doctor, please do. This is already way above my "pay" grade, which consists of taking the grandkids on walks, making them lunch and listening to them. If all I can do is listen, then I am useful, so I have to keep myself feeling well to do my job.

I hope you will post again on this forum with your own topic as this one is getting old. More people will read and answer.

Best wishes and looking forward to hearing from you again.
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