The side effects aren't nearly as bad at 20 mg as they were at the higher dose! I still feel them though, but now I'm just a moody *^% instead of a lunatic!
My poor husband has been so patient, though I know it's wearing on him too. (A while back I blew up about
something, and he quipped "so, when's your head going to start spinning around" -- it actually helped defuse me and had me laughing, since on the pred. I tend to blow up at stupid little things... or cry over stupid little things...)
The insomnia was awful from about
100 mg/ down to 30 mg. I'm still struggling with it, but it's definitely a lot better now that the dose is lower. I've also gone from too sick to my stomach to eat much, to now wanting to eat every darned thing in sight. I swear, I can't get enough cheese. I really, really, really am craving cheese. Mozarrella, feta, blue cheese, chevre cheese.. .any good cheese...
I hate being on the pred, but I know it's a real life saver. Without it, I'm sure I'd be dead. I have had it via IV many times during ER visits/hospital stays for bad attacks, and yeah, it's awful via IV. But again, it's probably saved my life.
I'm hoping that things stabilize and I can come off of the pred soon and get back to being normal. At least for now I can breathe! I don't know how people that have to be on it really long term can deal with it. In the grand scheme of things, 6 months isn't long, but some people have to take it for years, or are on it permanently. I'm not sure I could handle that!