((((((((( PR Glo ))))))))))
Sending you big hugs Glo. I'm SO sorry that you are having such a hard time caring for your Aunt. I can't imagine being the primary care taker at this stage. My dad had Alz and my mom, of course, was his primary care taker and I would go over 2 or 3 days a week for a few hours and send her out of the house to visit with friends or shop. I don't know how folks live with this chaos 24/7. So . . . bless you for being so caring.
I sent letters to each of my siblings and assigned them each a Saturday each month to care for Dad while Mom had time to herself. That worked GREAT and each one did take their turn for many months. But it sounds like your family is too far apart for that. . . so I'm not sure how you get them involved . . . but they really should be involved. . . . they usually will if they know how to help. . . it just needs to be expressed very clearly (as my letter to my sibs). I had actually telephone each sib a couple times and asked for help . . . they each agreed, but the help never came. When I assigned an absolute day for each, they really stepped up.
You may need to take the post you made above . . . and re-write it in very clear paragraphs, making it easier to read. It is really a clear statement of what is going on. This should be provided to each doctor BEFORE the next exam so he/she isn't sitting there reading it in the exam room.
Also . . . very clearly specify what you want the doctor to do. I'm not sure what that might be . . . but you should contact your local Alz agency right away and get some good advice from folks who should know what you need. They may need to put her in a facility some time soon if her kids don't step up and figure things out. I'm not sure why this is being left up to you . . . except that you ARE doing the doing . . . so that lets everyone else off the hook for now.
You may need to put the kids on notice that they must take over. That would only be right. What would they do if you weren't living so close?? Distance really isn't an excuse to leave your mother's care to a niece.
I'm sure you'll get some great advice from HowLynCat when she see's your post. She cared for a mom and then a dad who both had this DD.
In the meantime . . . hugs, prayers and . . .
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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