alzheimers my mother and me

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New Member

Date Joined May 2013
Total Posts : 3
   Posted 5/3/2013 1:01 PM (GMT -6)   
Hi everyone, I know many of you are dealing with heavy issues and want to thank you for taking time to read mine.
My mother was diagnosed several years ago and is now unable to care for herself in any way. Her new doctor however is doubting her diagnosis because my mom is only 56. We must wait until January to see a new specialist now.
One issue I'm having is that this early Alzheimer's is genetic. She has it, her father had it, and his mother had it. My and my 3 boys are the only ones at the end of that line. I've gotten no answers because my grandmother being so upset over her daughter refuses to discuss with me or the doctor my chances. I know that this seems selfish but from what I've learned its very rare, but high chances if a parent has the genen which we have seen in the last 3 generation, at least 1 kid got it. In that straight line of got it I'm the last one before my kids. If I have one of my kids most likely will too. Its so scary because I've been watching this for years, and know it can start between 30 and 55. I am 32, and my youngest boy is 2. I'm afraid.

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 5/3/2013 3:46 PM (GMT -6)   
Hi thebrothersmother, and welcome to the forum. I'm sorry you are dealing with the unknown, it's very scary isn't it? I have seen both my Mother and Mother in Law fall to Alzheimers, so I know how traumatic it is to wonder if we will be the recipient of this wonderful disease. I already deal with Ulcerative Colitis, so who knows what is down the pike? Our scientists and medical field have made such great strides in medicine within the last 20 years, so I'm hoping that they will find a test or medication to help us with Alzheimers. I know you also worry about you and your children getting early onset and of course rightfully so since you've seen it first hand. I wish you the best, and remember to try and take one day at a time. Take care, and again, welcome to the forum and thank you for sharing.

Gizzy'n me
Veteran Member

Date Joined Jun 2013
Total Posts : 1870
   Posted 7/8/2013 12:23 PM (GMT -6)   
Hello ...
  Please don't let your concern overwhelm you. I think I understand your concern, and it would seem certain that medication improvements keep coming - but try to place your concerns of a possible future negative into a perspective that doesn't interfere with living today. While it is a possibility, it is not a diagnosis.
  My Mother is in a well-run assisted living home for Dimentia, and my Grandmother (her mother) was in a horrible Nursing Home (20+ years prior) with Alzheimers. Just the concept of care ... for Dimentia and Alzheimers has changed a great deal in barely one generation. I expect the types of medication have changed as well.
  In my personal health issues, I have not worried about becoming a dimentia patient. But ... I am in a battle (10-years so far) with Prostate Cancer, Kidney failure because of the cancer growth (2-years+) and COPD for the past 5-years +. I have tried to find a history of prostate cancer in my family, and I cannot find it!
  It could be ... that one generation back people were dying of prostate cancer, but the cause of death was either unknown or mis-diagnosed. It seems to have little history. But, the treatments are constantly changing ... so hope if still alive!!!!
  The oral chemo I just started two weeks ago was just passed by the FDA just 11-months ago ... and yet, that treatment now seems to be a pretty common treatment for advanced prostate cancer.
  The moral of the story ......... hope ....... whether religious or not, is a key in dealing with so many negatives in life. You and your sons have much time for hope for new procedures, medications and diagnosis. Enjoy your boys and your life today ... and hope for tomorrow.  
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