Lewy Body Dementia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

5yrs out
New Member

Date Joined Aug 2012
Total Posts : 4
   Posted 12/1/2013 11:26 PM (GMT -6)   
My husband was diagnosed with LBD this past week. He had been showing signs of memory loss for the past couple of years nothing really serious so we just chalked it off to old age(74) we were not really too worried about it. His primary Dr. had sent us to a nero dr. a couple yrs ago who felt it was nothing to worry about either so we just rolled with the forgetfullness..about 5 weeks ago his legs and feet starting swelling and there was a sudden rise in his blood pressure. I took him to the dr. who changes his B/P meds the swelling went down but the B/P continued to be in the 200's so I took him back to the dr. and he ordered a CBC which came back showing kidney failure so the dr. sent us to a kidney dr. who again changed his B/P meds. I noticed within a couple of days his speech was slurred and he started having really strange behaviors like seeing things that were not there and what I called night terrors. He would get out of bed at 3:00am wandering the house and then wake me up with crazy stories that he had been kidnapped and held against his will by neighbors and he had been gone for days but was finally able to escape thew a small window and find his way home. Then he suddenly lost his motor skills and I called the Dr. back who ordered another CBC and this time he was in kidney failure..They admitted him to the hosip. and thankfully were able to bring his kidney function back and cure a UT infection. They saw him experience some of these night terrors in the hosip. and at 1st thought he was suffering from Uremia but after a week of the infection being gone and a CT scan of his head they said it was LBD. I brought him home the night before Thankgiving and he has had a few moments clarity but not very much. He seems more paranoid and his short term memory is completely gone. He is seeing things that are not there and very confused. I had never heard of this disease until last week and would like to see if anyone can help me to better understand what I am dealing with. Thank you....

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 12/2/2013 9:32 AM (GMT -6)   
5yrsout, welcome to the forum. It sounds like you have a lot going on right now with your husband. Being a caregiver is a tough job. I don't know too much about LBD, but I found this website that might help you -- it is specifically for caregivers of lbda patients.
Good luck and I hope this helps.

New Member

Date Joined Apr 2013
Total Posts : 14
   Posted 12/2/2013 12:50 PM (GMT -6)   
So sorry your husband is going through this, and you, too. I wish I had something specific to offer as far as LBD goes but I'm unfamiliar with it. It sounds like you're an amazing source of support to him and I wish you all the best. I'll be rooting for you in the coming days. Sending along a hug!

5yrs out
New Member

Date Joined Aug 2012
Total Posts : 4
   Posted 12/9/2013 12:18 AM (GMT -6)   
Thank you for your comments...I too know very little about this disease but thanks to the internet I have been able to find out more about it...I found a family who's Mother had it and they did a journal from the day of her diagnosis until her passing..I read this and then spoke with our Dr. who said it was right on what we can expect....This disease not only takes the mind but the body too and the worst part is there is so little known about it and its under diagnosed very often...I hope and pray we can find a way to help all people with these type of diseases....
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, July 21, 2018 10:21 PM (GMT -6)
There are a total of 2,984,094 posts in 327,180 threads.
View Active Threads

Who's Online
This forum has 161969 registered members. Please welcome our newest member, Alarik.
341 Guest(s), 11 Registered Member(s) are currently online.  Details
GreenBeans, Froggy88, AAL900, DonN, Dale B, Pratoman, Beachbumgirl, Noah2112, NOTkidneystones, ccc-better, straydog