Wife received preliminary diagnosis of AD or frontotemporal dementia

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Lex Luther
New Member


Date Joined Oct 2012
Total Posts : 11
   Posted 12/28/2013 8:20 PM (GMT -7)   
Got this diagnosis last week pending PET scan and results of lumbar (already saw shrinkage on left side from MRI). She is 59, and presents with inability at times to find words. No memory or personality issues. I have been researching intensively and believe that primary progressive aphasia- logopenic best fit the symptoms. I was amazed at how little there is out there regarding potential treatment. Thus far I have obtained lions mane, phosphaticlylserine, vit. E, and CoQ10 to start her out. Her specialist put her immediately on donepezil, stating she did not think it was AD, but wanted to initiate anyway just in case. I am finding that there is confusion in discussions between AD, frontotemporal and aphasia. She has no cognitive disabilities/memory issues, multi tasks and runs a business. I was devastated to see the preliminary diagnosis, and the diverse opinions on progression and life expectancy. Any input on this, experiences, medication etc would be greatly appreciated. We have been together for 40 years and I want to do everything I can for her. I recently also read a study that cannabis may be beneficial. We next see her doctor in a couple of weeks, and I want to be fully prepared. Thanks

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/5/2014 9:34 AM (GMT -7)   
Good day, Lex Luther. I think the research for AD is getting better, but as with any disease, it's tough to find the exact meds or diagnosis because we are all so different. I have Ulcerative Colitis and for the last ten years, it's been a series of different meds, foods etc. that I've had to experiment with to find the right combination that put me into a remission.

Does her current doctor specialize in geriatric/alzheimer's care? If not, you might want to find a doctor that does. Your wife is fortunate to have you as an advocate for her. Research and more research is your best bet -- go to her doctor as you planned...informed! Let us know how her appointment is, and of course, ask any questions you might have.

Lex Luther
New Member


Date Joined Oct 2012
Total Posts : 11
   Posted 1/11/2014 5:21 PM (GMT -7)   
Thanks Lonnie. She is seeing a doctor who specializes in this are. I continue to research.

rebounder4ever
New Member


Date Joined Feb 2014
Total Posts : 10
   Posted 2/28/2014 11:32 AM (GMT -7)   
How is her gut health? Seems more and more is being tied to how the symbiosis of the gut relates to brain health.

It is never too late. EPA/dha does wonders. So does a turn around of diet. Gluten fogs brains. Get rid of gluten and you have eliminated a huge problem - it destroys many a lining, too.

A good probiotic. Fermented *raw, foods; veggies, kraut - does wonders for gut. I like cooling inflammation blog. And read Chris Kresser.

The right type and amount of B vitamins *go methyl. Cheap B12 is cyanide. No one needs THAT!

Vinpocetine. Amino Acids.

No more fluoride. Chlorine. No more aluminum. Volvic water helps detox aluminum out of cells, I have read. (Check for heavy metal? MTHFR mutations? Anemia? VITAMIN D3 !!!!)

I am 58 and worried about this. I have just begun my brain heal regimen. Been organic since 05 and Gluten free 09. Healed my migraines, Peptic ulcer disease, GERD/IBS, chronic sinus issues, multinodular goiter with drastic diet change. Juices, raw fermented veggies. Organic everything. Even went into researching EARTHING/GROUNDING.

Protection against smart meters. NO cordless phones in my home. NO microwave. NO wifi. NO cable tv. NO computer in bedrooms. Use steterizers. Painted wall with black carbon paint on meter wall.

Whatever I can do - I will. I also play games, blog, and want to take Italian class. My exercise is a mini trampoline in the living room. I love nature and am learning how to meditate.

I object to the {rockefeller} change in our medicine and manner of treating health issues. I do homeopathy and so do my pets. Healing tinctures help my circulation. Supplements. Some D3, etc

indoor environmental toxigenic mold exposures "...Four out 12 subjects had seen therapists in the past for depression. Eight out of 12 complained of getting lost in a familiar territory and had troubles getting words out at times and putting their thoughts together. Initial clinical impression was subjective memory dysfunction and possible aphasic symptoms without obvious abnormality and pseudodementia."


http://ispub.com/IJTO/3/1/12980

Post Edited (rebounder4ever) : 2/28/2014 12:00:15 PM (GMT-7)


Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 3/2/2014 11:11 AM (GMT -7)   
Hello ......
 
   First - consult with the right type of doctor. And bring plenty of questions.
 
   Very good that you're researching as much as you are.
 
   My Mother, who recently passed of complications of Dementia, started showing some effects of reduced brain activity possibly as long as 15-years ago. When she passed, she was 95-years old.
 
   Please feel comfortable with her doctor - and trust his/her advice. And don't be afraid to get a second opinion - if needed!
 
Peace and wellness
 
Rob & Gizmo
 
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