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Butterflake
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Date Joined Jun 2006
Total Posts : 1650
   Posted 3/27/2015 12:20 PM (GMT -7)   
I certainly understand why there seem to be very few posts from patients with dementia/Alzheimer's, but if there are any of you out there I'd like to hear from you. Last year both my internist and rheumatologist told me to see their neurologist because I had memory problems. It started simply. I was going to cook oatmeal. In front of me I had a pot of water on the stove, container of oatmeal, measuring cup. For a few seconds I couldn't figure out how to get the oatmeal into to pot. Hmm. Ok. I have lupus and lots of brain fog, but I decided to tell my docs of this and other memory difficulties. Neurologist found that my frontal and temporal lobes shrank and my eeg shows decreased activity in my frontal lobe. I basically failed the tests he gave me in his office. Since then things have become much worse. If I can't quickly remember something, I give up. "It will turn up. It's not that important." Really, it's just too hard to think. And it's not just memory. I have days with what I consider major cognitive problems, but also thankfully have days with more clarity. I find it strange that I've never had much trouble expressing myself in writing, but when speaking I frequently forget words and what I was talking about.

For lupus, depression, and other autoimmune illnesses I take heavy duty meds including two infusions each month. I see my neurologist again next week. I thought I'd check out your forum before I see him in case he comes up with bad news in which case I'm sure I will not feel like writing for a while. Love, Butterflake

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 3/28/2015 6:59 AM (GMT -7)   
When did the memory problem start. Can you related to a specific point in time and what changes were going on. If you are taking a lot of medications might discuss the possibility of drug interaction with your doctor. Some people find coconut oil helpful with brain problems. It is based on the principal of letting the brain burn fat instead of sugar. Sugar is very harmful for the brain. You might look at a Ketogenic diet.

http://www.paleoplan.com/2012/05-30/ketogenic-diet-and-alzheimers-make-the-news/

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 3/28/2015 8:12 AM (GMT -7)   
Thanks for replying eat2bwell. The oatmeal incident is when I really thought I might have a problem. That was probably 1 1/2 years ago. For about 8 months after that only I noticed memory/cognitive problems. Now my family is very aware of my memory problems, but they don't notice the cognitive problems like I do. I will check out the ketogenic diet, but what I really want to know is, do you have Alzheimer's?
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 3/28/2015 9:55 AM (GMT -7)   
I have not been diagnose with Alzheimer's and doing everything I can not to have Alzheimer's. Try to limit the sugar and carbs as much as possible. Think diet is the big key.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 3/29/2015 8:40 AM (GMT -7)   
I think eating well is common sense and I'm not quite sure why you are on our forum.
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 3/30/2015 6:03 PM (GMT -7)   
I am here to try and answer questions concerning health. I was so sick about 7 years ago that I wanted to die. I want to share the information I have obtained in getting my health back. I could not be diagnosed with any specific disease. My Primary Care Physician told me it was old age and I would have to learn to live with it. I had to search the internet to try and find the answer for my problem. Every disease I looked at seem to have diet as a key to healing. You are correct; diet should be common sense but if it was we would not have all the disease we have today. Hippocrates the father of western medicine told us "Let your food be your medicine and your medicine be your food". When you see all the food McDonald's is selling the word is not getting out. I have brother-in law with Alzheimer's. I mention to him about the coconut oil. He tried it for a while and decided it was not helping. He slept less meaning he was more alert but did not find it helpful. We had dinner one night with him and I noticed he was drinking diet Dr. Pepper(Aspartame). He had cake and pie for desert. According to the Ketogenic Diet you have to give up the sugar and simple carbs. Some people are not willing to do this but they should have the information so they can make it their decision. Coconut oil is not the magic ingredients it is only one thing which has shown a benefit in treating Alzheimer's. It is about everything we put in our mouth, inject in our bodies, put on our skin and breath. We live in a toxic world and in order for our bodies to deal with the toxins we need vitamins and minerals. That is how the body repairs itself. Best we get our vitamins and minerals from the raw fruits and vegetables. Did a lot of juicing when I was sick. Unfortunately people do not take diet seriously and it is the most important thing we can do to have good health.
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