Hello, I am new to this forum. First, I am amazed by the courage you all have! Second I wish to lean on you for support and guidance.
My story. Back in 2003 I had classic lyme symptoms that went undiagnosed for a year. My symptoms included.
Fatigue (heavy legs).
Buzzing in my feet
Organ pain all over the abodomen.
Seeing flashes of light and feeling of electricity passin through my body.
I did the whole DR. thing and came up with no answes but elvated mono titers. I was 23 years old. I must make a note that when I was 18 I tested flase positive for syphilis at a blood drive at school. Long story short multiple Drs. Later I went to a Lyme dr. Igenex positive test result. I have hunted and fished all over the Midwest so lyme was suspected. After a year under his care I did get some relief. Herbals and abx. I did however experiances some memory and thinking issues after. I went on to run a marathon and live life.
11 years later met the girl of my dreams want to propose this Christmas. In 2016 felt tired all the time in the morning. Drinking large amounts of coeffee and not lived a totally healthy lifestyle. I was able to work out, work, and return to college. It wasn’t until January of last year that I noticed changes.
We were going into the process of buying a home. I was working two jobs and school on top of it. Lots of stress in my life. On the day we got a call from the realtor saying offer accepted I had a panic attack by my own doing. That’s when all hell broke loose.
The following day I had tight muscles in my neck and I noticed ringing in my head with mild pressure in the back of my head. I began my day thinking nothing of it until I literally felt something release from my brain down my spine and into my legs. After that I have had massive amounts of muscle twitching, neuropathy in extremities. Dementia like symptoms memory, thinking, light sensitivity, burning across my scalp. Panic attacks out of nowhere. These panic attacks were nothing I have ever experienced. It was like my nerves were so inflamed that my nerves were trying to jump out of my body. And three months later I had severed on set of OCD/impulsive thinking, mood swings, depression, crying. loss of drive Etc.
The only thing the dr. came up with is you are overweight, bp is elevated and your Free Test is just under normal range. "Not a concern it’s just anxiety and stress causing all of this". Finally convinced him to see a nuero and had an MRI came back normal except mild cerebral sulci promance for age. He assured me I was fine and it was just stress. I also had a period when I ate anything with a carb my body felt like it was on fire.
Today, 8 months later I have better days than bad. The only thing that creeps me out still is that I have the hissing in my head. Once a month I get a week of ocd and my thinking is about 80% better. I am afraid that the ocd and impulsive thinking, slight paranoia. Always a mellow person before this. This is not as bad anymore but still comes. Dr.s want me to use a anti depressants.
My questions are
I am afraid I have early onset dementia or other nuero degenerative dieses im only 34 years old.
Could this be a virus attacking my brain?
Is this Lyme?
I had just below standard range of Vit D as well 31.5 taking 10,000 iu 3x a week.
I have been taking pau d arco, cats claw, and olive leaf powder. I do say it has been helping. All my symptoms seem nuero and my energy is fine. Just want my brain back.
If it is a reactivation of Lyme I don’t have $ for a llmd. I do have good insurance though. Does anyone know of a good dr. that takes insurance in se Wi?