Posted 6/5/2006 11:46 AM (GMT -7)
Hoping all are doing well and having a great time with loved ones anf friends.......whether they have AD or not I am a firm believer they know we are there for them .....and love them unconditionally........God Bless...........Lyn
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Posted 6/5/2006 1:20 PM (GMT -7)

Hi Lyn and friends, Sylvia your poem touched me deep. Like Lyn you are blessed to have such Moms. Reading it seeing how you both have the deep love reminded me as a child fantasising about having a Mom. But I grew up as I started work at ten daydreaming finished. At 16yrs I was due for Disposal (not my words, but those recorded on official docs.) I was introduced to my birth mother. This stranger asked me my name, on telling her, she looked at the Christian Brother, "Are you sure you have the correct boy?" Thinking did I get it wrong? for if I did I'm in for a hiding. My luck was in when the Brother asked, "What's your number boy?" That's something I'll always get right, 11536. "That's your son". Weeks later I was given over to her, she didn't have a place for me to stay. This year I have discovered someone lied and still the jigsaw is incomplete. I never got to know the woman as I ran away free for the first time in my life in a strange wonderful world. But like any stray I kept my distance and observed, and still do. Something within me refused to let go the belief there were caring Mothers. Thank you for re-enforcing the belief. From Jean I discovered the power of love, is it any wonder I rejoice in returning that love to this special person who I believe was sent to me. This small glimps of my background shows how my perspective differs from most people's. I have completed my story to the time of our marriage, it had been hard work. It has been suggested I do the second story of our life. Of course the longest chapter would be on my caring. I've had a wonderful life and would be pleased to share it with others. I'm not interested in making anything, just hope it might help others. I have recently been told I'm dyslexic! how funny is that?

May your God go with you   

Padraig
Posted 6/5/2006 6:32 PM (GMT -7)
Padraig ....I am so sorry for you and the pain you had to have felt not having your Mom and being known as a number.........God gave you G jean and she has given you the abilty to love and be loved .....You are so good for this forum and I am glad we have you with us .......Sylvia's poem touched us all .........Please give G Jean a big yet gentle hug from me .........God Bless........Lyn
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Posted 6/7/2006 2:20 AM (GMT -7)
I will be in bed most of day today have bronchitis and not feeling to good ..time to quit smoking ........Take care all and God Bless..Lyn
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Posted 6/10/2006 4:23 AM (GMT -7)
Padraig ..........How are you I am starting to worry about you and G Jean ....have not heard anything from you .....Is everything okay??......God Bless....Lyn
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Posted 6/17/2006 6:43 AM (GMT -7)
Hoping you post and let me know how you are doing ......God Bless..Lyn.........Here's to a Great Father's Day for you Padraig..........Miss You........God Bless..Lyn


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Post Edited (Lyn (Howlyncat)) : 6/18/2006 8:17:22 AM (GMT-6)

Posted 6/20/2006 8:16 AM (GMT -7)
Hi Lyn, It has been hell without a landline. It ment I had no phone nor access to the internet for almost a week. It proved very stressful as I hate asking people to let me use their phone. I pray it's OK from now on. Jean is keeping well, except that she is sleeping much of the day. Like every aspect of Alzheimer's the different signs come and go, until they stay. Her limbs are much stiffer some days more than others. Like a child she holds on to my clothing or hands when I wash or dress her, also holds on to the towel when drying her. The first year home she had tremors her hands would tremble it was explained away as part of the illness. I never noticed it vanish over time, could it be withdrawl symptions when I removed all the medication she was receiving at the nursing home? My present concern is her hiccups, can it be some thing I am feeding her? what's the cure? I am off to the hospital tomorrow to have an operation on my gum, it should be interesting when I turn up with Jean. It was carers' week last week and I paid a visit to a show bus they had in the town centre. I found it strange no one wanted to learn about Jean, I was told I was very lucky to be able to look after her without any help and I was a "one off" one in a millon. Questions I asked, they were unable to help with, I just get on with it, telling myself 'so what's new' Must dash and bath Jean before evening meal. How are you and your Dad? try to get as much full fillment as I do caring for Jean
May your God go with you
 
Padraig
Posted 6/21/2006 4:31 AM (GMT -7)
I am so happy to see you .....I figured something was wrong or you would have been on here........I would think for sure it would be withdrawal from meds .why do they constantly over medicate ......You see most times in homes they (the patient ) is in bed not active not getting any kind of interaction at all ..just medicate....I dont think half or more is needed........I really think peeps are to afriaid of this DD to want to learn about it and that saddens me as we have lots to teach from a caregivers stand and as a person with DD...just know you are making a contribution here thats a blessing itself .........I hope all goes well for you and sounds painful I will always find my Dad funny and fulfilling yep even sometimes agravating lol but Oh how I love him ,he is not doing to bad considering ..lots of yard sales and such ...on to this kick with Casinos.......had to say no to that.....he has always been a bettting man on the horses and I will still do that occaionally with him but I am not a Casino person.........Take care and keep posting ..Lots of love to you and G Jean............God Bless......Lyn
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Posted 6/25/2006 8:59 AM (GMT -7)
Hoping all went well with you at the dentists ..How is G Jean doing ...Gentle huggs to her from me .......God Bless.Lyn
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Posted 6/26/2006 2:05 PM (GMT -7)
Still having problems with your internet or are you not well after the dentist visit .....Post and let me know how things are when you are able ...God Bless.Lyn
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Posted 6/27/2006 1:08 AM (GMT -7)

Hi Lyn, Yes I have been having trouble with connecting to the intenet. Had our son over all yesterday says he fixed it, addmitted he made errors before. I expected treatment at dentist, it turned out to be a checkup to find what I required done. The hospital staff and dentist seemed surprised at my taking Jean everywhere with me and asked about help I received:"I look after my wife 24/7 and don't want any help thank you" The dentist said I looked remarkably fit and thought that was why the infection was being contained. They said Jean looked real well. I managed to convince them to give me an early date for the operation to remove a bit of infected root from my gum 6th July. I have to convince myself I can cope no matter what after the operation. Hope you and your Dad are keeping fine, enjoy the moment. At last I am getting on with my early life's story and expect to finish it soon. It will help me to put it behind me. Jean sleeps much longer now, it gives me time to write. Best wishes to you all.

May your God go with you. Padraig

Posted 6/27/2006 2:00 AM (GMT -7)
These darn things can be a pain but they are great for being able to reach acrosss the world to talk and meet friends like you ....I bet they were surprised it is not often you see aman or woman for that matter who looks after therir wife/husband the way you do ...I am honored to know you .......I am so looking forward to reading your "Life Story"........G Jean will sleeep more and more luv as the days go by but she is at peace and knows she has you her greatest love in her corner always ........God Bless and Keep You and G Jean Safe .........Lyn
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Posted 6/27/2006 8:05 AM (GMT -7)
Hi Lyn and fellow carers, I had completed a message and pressed post that meant the end of it. So here goes again. I note your post is at 0400hrs don't you sleep? You must take care of yourself for the sake of your Dad and your own wellbeing. You must be reading my mind as I was considering asking if you would mind reviewing a chapter of the story at a time. I have finished it, but am still crafting it am starting the 3rd chapter. As Jean sleeps a lot, it gives me time to get on with it. I will be pleased to get the early years over and done with and maybe gain peace of mind. Two things I can't understand from reading the entries from experts and fellow carers. How come Jean knows me still, most say their loved ones don't know them. It is said it is impossible for one person to care for a loved one alone, I have been doing it for years. The sadest statement too oft repeated is "I can't bear to visit him/her it's too painful, I want to remember him/her the way they were". Could it be a case of nature and no nurture when it comes to my perspective on life. After all nuns could not get emotionally involved with the children in their care. The blessing is when affection is shown its value is overwhelming. Please take care of your self and savour the moment.
May your God go with you. Padraig.
Posted 6/28/2006 1:53 AM (GMT -7)
Hello there ....I would be honored to read the story a chapter at a time for sure and thanks for asking ........yes I sleep but not to well ....I am breaking out in those sores again I will send you the pics of them they are gross but I have to live with them and I do preety good ,they are so painful it is unbelievable .......Mom knew me as well and my Dad she got cait and I mixed up at times but still knew who I was if I was there w/o cait........She also knew that my Dad loked after her til I got there to take over ......She knows you dont doubt that at all ......Peeps that say that "they cannot go as it hurts them or they want to remember the way the were" are just scared or making excuses IMO........I do believe you are the epitomy of Nature not Nuture ......you really had no one til G Jean and I feel she is the best thing ever to happen to you .....and you for her.......Take care and I will rest I promise ....I have to go to Cait's school today .......got a call from the Principal and she is getting the " Highest Acheivement" award today .she is truly my gift as is G jean yours .......Lots of love and gentle huggs to both .God Bless.Lyn
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Posted 7/1/2006 5:36 AM (GMT -7)
Hi Lyn, Still having problems with connecting to web. AOL beleive they sent faulty equipment and will replace it by Mon 3rd. Also arrange to have our phone line checked. Sorry to hear your sores are playing up again, is there no quick fix? It is illnesses like yours and others which go to re-enforce my appreciation of my own wellbeing. I have just returned from a three mile walk with Jean. She keeps leaning to one side and her head falls back, I'll have to get working on that. I have just been looking through Jeans closed  medical diary from the day of her arrival home, 46pages. Drawings of the preasure sores, gradings and sizes. Notes on medication like morphine etc plus installing a catheter. It is hard to believe she was so ill and I believe it was due to lack of proper care. I can't blame anyone, the needs of both the carer and patient are not properly understood. Sadly no one appers interested in learning from the experts- the carers. Thus the reason for joining this forum.       May your God go with you.              Padraig.
Posted 7/1/2006 12:53 PM (GMT -7)
Hi Padraig.... ..you are so right about peps not wanting not willing to learn sometimes:most times.... ......My sores are really bad right now so I have been resting quite abit have an IV in now so hopefully it starts to heal them soon,,,,I have seen so many pressure sores on peple in homes and in their own homes it is unbelievable : all it takes is a few minutes to keep making sure person is changed positions and that will be some benefit.. .....Why was G Jean on Morphine ? For the bed sores ? Seems like quite a heavy med for that??...... .....WE all are learning from you on this forum so keep on posting I hope your internet gets straightened out soon..... ....I LOVE the first chapter of your draft it is beautiful writing and I am pretty positive you are not dyslexic...... ....Give G Jen a hugg for me .... .Love and God Bless. .Lyn

Post Edited By Moderator (Admin) : 7/11/2006 10:58:38 AM (GMT-6)

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