Posted 6/19/2007 2:41 PM (GMT -6)
Hi, not sure if I should comment or not. I had severe dementia a couple of years ago. Lost 80% of my memory at the time, getting much better now. I know at times I thought I was 18 (actually 36), couldn't understand who some people were (like my kids), couldn't understand why everything looked different and got mad at the changes, didn't understand what people were saying but very keen on the feelings in the atmosphere, got lost all the time walking on my street (I have lived there 31 years) and sometimes in my house.. I could go on and on...
I guess I just wanted to say is that the people who were with me day in and day out I knew even though I couldn't place how I knew them. What they said to me or in conversation, it took a long time, effort and energy to figure out what they were talking about. Like an animal though, I could sense if they were angry, happy, sad or excited. I think I got fear and excited confused though. I just didn't always understand their reasoning or what ideas they were trying to convey. I understood simple directions, although I would forget midstream sometimes. I knew who loved me and who didn't. People I don't know still come up and talk to me as if they knew me all their life and know personal details about me. But I don't know them, sometimes a face seems familiar and that is about it. I know if they are nice or not nice. That is about it. I knew my sister-in-law back then as the nice lady who took care of me. I didn't know her as family, just the person who fed me and took care of me (and apparently my kids too). My daughter then 8, I couldn't understand why so big for age 2, my sunshine, and sometimes she was someone I didn't know just some pesky kid that kept coming in my room. My son David was a year or so then. I didn't know him at all. (It kills me now to think about it). I know he was a good baby.
It seems like my head didn't know things, but my heart did. Your heart knows people you love and it never changes - even if you don't fully recognize them and have periods of mixed emotions. Now I see my kids and it is like that period of my life never happened, I recognize them fully just like I did prior to the dementia. ALthough we all know it did happen and there are a lot of fences to mend from it. I am extremely spiritual now. I believe there is an essence or spirit in us and once there is a connection or strong relationship between two people it will never go away. It may change, it may regress and it may grow, but it will always be there.
Your head just processes things...your heart knows things.
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurgitation, dementia/Alheimer's (improving); GERD; blood clots in eyes/vision loss, narcolepsy, rheumatic arthritis and arthralgia, IBS, ovarian cysts, raynauds, EBV/CFS, mild inflammation of liver and spleen. Rx: Atenolol, Aricept, Flexeril, Motrin, just off Provigil
Previous 1996-2006 - discoid rash, hemi-pelagia, migraines, hands/feet sensory loss, anmesia, PTSD/Depression, imbalance, weakness and muscle spasms, shooting pain, dizziness, fine motor movement problems, miscarried 2 children & severe complications w/2 I managed to get out, False positive syphilis, swollen glands, high fine speckled & homogeneous ANA; Positive IgM; constant staph and strept UTI infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, high Methylmalonic acid, high Epithelial cell counts, off and on low red/white or pallet counts, hypothyroidism/Hashimoto's disease, postural hypotension, dyspnea, periods of hypertension/hypotension, lipedemia, mouth/lip ulcers, pneumonia, skin tightness/hardenes, ligament conjectures, weird purple pimple rashes on legs, hypopigmentation (leopard spots) on legs and arms, vein swelling, abnormal menustration, uterian fibroids and some of the current problems. Rx: usually Toridol, nerve blockers and antibiotics.
P.S. You asked.... Probably forgot a few.