Thank you for your reply and your suggestions.... It is so difficult to see our parent(s) suffer this way. I am so sorry that both of your parents have been hit with AD, that is even more difficult.
My "me" time is on the computer. I work full time, and right now it is even more stressful as the owner/president of the company (very small one) passed away on Nov. 9, 2007 after a short illness, so everything is changing there and the other 2 people who I work with in the office do not like the changes, so they keep fighting and complaining. And me, I am just thankful to have full time job and be making a paycheck. We do not know how long that will last with all the problems with the mortgage industry, but, we are fighting to keep going (me and the 2 full time appraisers that it).... Plus, trying to help out my late bosses wife with all the changes, etc. Plus, I have 2 daughters and am a single (divorced) Mom.
However, I know what my Mom is going thru within herself is worse than all of that put together plus......
Unfortunately, I think what happens with these doctors who take care of elderly patients with different diseases that are not curable, is that they have to put up a wall in order to block out all the suffering and eventual passing on. They get that wall up so high and thick that they lose all compassion for the patient and their family, which is not really fair to anyone. My Mom's physician (thru the Nursing Home) is like that.... He gets you so mad..... As he states "we don't really know if she had a siezure or what was going on, the only way to know that is to put her in the hospital for tests". or ----- when we ask if (in his opinion) he feels we are doing everything we can for her, to keep her comfortable, etc." his response "we have been all thru this conversation before". Now, tell me, what kind of answer is that??
I went to see her tonight, it is obvious she did have some type of siezure or TIA - her right eye doesn't open all the way. If I try to hold her hand or touch her gently, she yells out. Even if I try to sit on the end of the bed just to be close to her, she yells out as if I am hurting her..... However, she is eating (hand fed) 100% of her meals (all soft foods) - so that is good.....
What answers are there?? Every AD patient is so different, how do you know if what you are doing is right or wrong???