Alright so talk me off the roof my friends

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Regular Member

Date Joined Jun 2007
Total Posts : 167
   Posted 4/11/2008 12:59 PM (GMT -7)   
I haven't posted in a week or so because I'm freaking about this situation...  k I went to the Doc because I've felt weird ever since I stopped taking Chantix (beginning of Feb)... I endured this weird dizzy/disassociated feeling for nearly 3 weeks and finally knew I had to go see the Doc... he is one I've only seen once before so he doesn't know much about my health anxiety...  he ordered an MRI to see if maybe I had MS... totally freaked out waiting for the results (panic times 10000000000000) anyway, I don't have MS (yeah) but I do have a 1.3 cm cyst (likely benign) in the pineal region of my brain... they want to wait six months and re-do the MRI to make sure it hasn't grown.

Veteran Member

Date Joined Dec 2006
Total Posts : 707
   Posted 4/11/2008 2:02 PM (GMT -7)   


First of all, I'm not a doctor, but I can understand why you would be freaking out.  I did too when I had an MRI years ago and it showed a cyst in my brain.  That was over 3 years ago.  Cysts are benign and usually don't mean anything at all.  The good news is that the doctor used the word "benign".  They will just check it in 6 months to make sure it is stable in size.  Nothing to freak out about.  But, I'd say if it effecting you like this, call your doctor and talk to the doctor about the cyst and ask questions and get answers.  Knowing and understanding the health concern will help.

Thou shalt smile and have a nice day.  It frustrates those who have other plans for thee.
Anxiety 2007; IBS 2004; Chronic Hives 2002.
Medications:  Allegra, Zantac, Ultram PRN, Xanax, Darvocet, Ursodiol.

Regular Member

Date Joined Apr 2008
Total Posts : 112
   Posted 4/11/2008 3:31 PM (GMT -7)   
My mother has this problem with cysts, sometimes they remove them. some are just watched. I have had trobule with my pituitary glad and tumors. At one point it grew and I permently lost some vision and all of my side vision. I also went five years with no periods. With tumors they used drugs to slowly shrink it although if it grows this time they will remove it. If the cyst grows, they can remove -the operation if done in CA or Boston would involve no cuts. They would go through your nose or mouth. Although cysts do grow, they also tend to shrink. Sometimes they cycle through this. I would just at this time continue with scans and check in with an endrocrinologist.


Regular Member

Date Joined Jun 2007
Total Posts : 167
   Posted 4/11/2008 4:19 PM (GMT -7)   
Holy Moly you guys are sooo great!! I am thankful to know that I'm not alone...  My Doc. told me it was nothing to worry about and that he would refer me if he thought there was anything to be concerned about.  Let me tell ya,  I went home and re-searched the heck outta these cysts and found that they are common (at least "small" ones are common... .5 cm or less).  Because mine happens to be 1.3 cm (which is quite a bit bigger) I called back the Doc's office and basically had a melt down with the nurse - the Doc told me to go ahead and see a neuro-surgeon to help myself feel better.  I go on the 30th.  I feel like I've been in a chronic state of of anxiety since Feb. and I do not feel like myself... I am constantly looking at my children and trying to figure out how they'll cope without me... I am really good at catatophizing everything when there's never anything wrong... now there may potentially be something and I find myself such a ridiculous mess.  I'm having crazy aches and pains all over the place (especially my neck and back and have nearly convinced myself that this must be the result of tumors all down my spinal column).  If any of you have some ideas to help me to stop focusing inwardly and to be able to be a participant in my own life I would really appreciate it. 
Oh I should probably mention that I have also nearly weaned myself off Zoloft over the past month.  I'm down to taking 25mg every other day and let me tell you how flippin weird that makes me feel.  I have been on 100 mg for the last 5 years.  I decided that maybe the Zoloft wasn't working anymore because I felt so weird all the time.  The Doc. says it has nothing to do with the cyst.... hmmmmmmm

Veteran Member

Date Joined Jul 2005
Total Posts : 1952
   Posted 4/11/2008 6:58 PM (GMT -7)   

Oh, Liz, I do sympathize!  Health anxiety is utterly draining.  I don't ahve any really good strategies because it's still kind of new for me, but I have recently been getting some calmness back by making followup appointments with all my doctors to ask all the questions that don't seem to occur to me -- or don't initially worry me -- when I first hear their diagnosis (even if it's that I'm fine).  I'm so glad your doctor seems supportive - trying to assure you that there is nothing he thinks is life-threatening, and encouraging you to get further opinions and advice to help ease your mind.

I also take my boyfriend along to all my appointments.  I claim he's my second set of ears.  When I'm home freaking out about my health, I can ask him to sort of replay the doctor's advice and comments, and that makes my own memories and feelings about them clearer.  If he couldn't go, I think I'd take a tape recorder.

I have also gotten into the habit of telling my doctors I have a great deal of anxiety about the issue, and could they please tell me one more time that there's nothing going on that can kill me.  By the time I've asked that three times (SERIOUSLY) in an appointment (bless their hearts, my docs are all SO patient about this), it sinks in just a little, and I trust it a tiny bit more than I did before.

It sounds silly, and I'd be embarrassed if I weren't far more worried about just being able to function!  If looking a little foolish helps me operate like a normal human being, call me Bozo the Clown and bring it on!

Hang in there, Liz!


Veteran Member

Date Joined Jul 2006
Total Posts : 2721
   Posted 4/11/2008 8:24 PM (GMT -7)   
Get. Down. From. The. Roof. Sweetie!!! You don't have MS (hooray)...
Don't let your anxiety and panic take over and rule you..yes maybe, possibly...the cyst may not be benign in six months but do you really want to waste six months in high anxiety over a maybe??
Liz, you are wonerful and have so much more to give and do and be.  Don't let a possible prognosis hold you back (or let anxiety x1000000) get the better of you.  Write down the worst case scenario..put it on a piece of paper, fold it up and put it away for six months sweetie.
Having said that..arghhh!!! My inner panic machine is doing double duty for you..this is denying gentle with yourself and know we are here to support you..please vent at will!!!! x
Co-moderator Anxiety/Panic
Panic Attack Survivor
Weekend Warrior Princess

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 4/12/2008 6:55 AM (GMT -7)   


Are you on the roof of a houseboat...............then just dive into the water and you will be ok.  Sweetie, I am so sorry this has happened but as you can see the members are awesome and so many have gone through the same type of Health Anxiety so you my friend are normal.

You have the right to rant, vent, worry and cry and let it all out.  Then come here and talk about your fears and how you can reduce them.  We are so great at giving you advice.................we live to come here and tell people what we think  :)

You will be in my prayers and just keep on going, don't let this stop you from being happy with the good things.  I wish you peace.

Kitt, Moderator: Anxiety ~ Panic 
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/12/2008 10:41 AM (GMT -7)   
As you can see the support is here and we will be
YES get off the roof you are fine
Health anxiety can wreak havoc in your life cause you to lose yrs to it
I have suffered for so long and then to find I am more happy NOT looking up sx on the internet

GREAT input everyone...............
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns

Veteran Member

Date Joined Jul 2006
Total Posts : 2721
   Posted 4/12/2008 7:18 PM (GMT -7)   
Git Down now sweetie!!! Know we are supporting you very inch of the way xxxx
Co-moderator Anxiety/Panic
Panic Attack Survivor
Weekend Warrior Princess

Veteran Member

Date Joined Aug 2007
Total Posts : 1193
   Posted 4/13/2008 10:22 AM (GMT -7)   
I'm glad to see so many members have responded and helped you.  I didn't realize that the problem of cysts was so common.  Now that you know you don't have MS  you can breathe a sigh of relief.  But as Meg said, do you really want to waste the next 6 months being in panic mode about the cyst.  She has some great advice for you about writing it down on a piece of paper, folding it up and putting it away for the next six months.  Keeping yourself in such a panic state isn't good for you.  Try to use some of the relaxation techniques that are posted, try to keep yourself occupied with a hobby, reading, etc. - whatever makes you happy.  When you do get overwhelmed by this problem, just try to imagine yourself in a warm tropical place with a cute cabana boy - LOL.  Seriously, just try to relax - I know, it's much easier said than done.  I'm trying to do the same thing because I'm also dealing with a couple of health issues that I need to get under control.  So the anxiety is much higher than usual.  We can work together to help keep our anxiety/panic in check.  Please keep posting to let us know how you are doing and remember if you start having other symptoms or feel worse in any way, make sure to call your doctor.
Take care and lots of (((((hugs))))) for you,

Co-Moderator Anxiety/Panic Disorders

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